The overall ToC visualization in Fig. 2 shows the contextual drivers and facilitators as well as the intended medium- and long-term social impact of a possible transfer of the innovative NH’s concept to other NHs and finally on a national level. Fig. 3 displays the concrete input, activities, output, short-term outcomes, causal pathways, and assumptions on the local level.
Contextual drivers and facilitators
Different challenges on a broader societal level as well as problems experienced in nursing practice were described by our interview partners and stakeholders as impulses for change. They are related to structures of the German healthcare system, nursing legislations, and demographic developments which are reflected in recent literature.
Social, economic, and political conditions
In the German statutory health care system, services are historically divided into three different sectors with specific tasks, remuneration systems, accessibility, and referral procedures [42]. The three sectors are outpatient health care, hospitals, and outpatient or inpatient rehabilitation. This structure poses challenges to patients, practitioners, health institutions, and national funding. It entails a high level of bureaucracy, economic burdens for insurances due to ineffective use of services, and suboptimal interprofessional collaboration and patient pathways [43]. The majority of the population (87.8%) is publicly insured [44]. While private health insurance terms vary, they tend to refund more than the statutory ones. Less established treatments, e.g., musical therapy, are not covered by public health insurance. Similar differences exist between statutory and private nursing care insurances, which pay for nursing care at home and in NHs.
According to German legislations, therapeutic treatment shall not be provided by nursing or social care staff but only by therapists and needs to be prescribed by physicians. Likewise, basic nursing activities (“Grundpflege”, i.e., personal hygiene, eating, mobility, prevention, self-sufficiency, and communication) shall only be carried out by nurses, not by social care workers. This legal distinction between therapy, nursing, and social care sometimes conflicts with the reality of interactions between staff and residents, as will be shown below.
Because of the highly demanding working conditions, fewer qualified nurses work long-term in professional care settings. Frequent sickness, early retirement, and change of profession are common phenomena [45]. In light of the shortage of skilled labor in the care sector and the continuously growing number of people in need for care, Germany seeks to develop innovative approaches. One of them is to reduce stationary care, guided by slogans such as “rehabilitation before care” and “ambulant before stationary” [1]. Recent strategies to substitute workforce losses with qualified nurses from other countries have not been sufficiently effective [46]. To improve working conditions, the nursing legislation reform from 2017 redefined the nurse-per-resident-ratio for each federal state in accordance with residents’ care need levels. However, the Covid-19 pandemic has demonstrated and worsened the problematic shortage of skilled nursing staff as even more care workers leave their profession [47]. A new Nursing Reformation Act was passed in 2021, by which agreed wages for nurses shall be raised and a nation-wide staff ratio implemented by 2022/23 to counteract the current problematic developments.
Residents’ and staff’s experiences in nursing homes
The innovative NH’s concept had been developed over a timeframe of 20 years by the NH director, staff members, and other collaborating actors. A key motivation were the perceived “inhumane” conditions in the NH and broader medical practices. Physicians considered many older people as “not mobilizable”. Indeed, participants complained that residents were often confined to a wheelchair and positioned in front of the television all day. Further, immobility of residents was induced or worsened by polymedication or as adverse effects of medications, such as sedatives for dementia [48]. Additionally, depression or embitterment disorder (“Verbitterungsstörung”) due to the experience of a traumatic life event or gradual decrease in quality of life may reduce older people’s motivation and capacity to engage in physical activities and vice versa [49]. In such cases, psychosocial therapies are a necessary component to improve mobility, but they are not provided as needed. A study from 2019 showed that only 12% of older people experiencing depression are receiving psychotherapy in Germany [50].
Neglect of older residents in institutional settings is a worldwide phenomenon [51]. According to studies, it has an occurrence of 11 to 14% in Germany [52]. Many cases of deficient or abusive care in German NHs depict negative images of NHs as “last stop” or “custody care” [53,54,55,56]. They illustrate a range of interconnected problems such as the shortage of qualified nurses, a lack of quality and empathy in care, an overuse of neuroleptics and excessive restrictions of residents’ autonomy, undernourishment, and insufficient therapeutic and social activity offers.
Elder mistreatment is associated with different organizational aspects (e.g., infrastructural deficiencies, poor management, unskilled or unmotivated staff, resident characteristics, institutional work culture) as well as macro-structural factors [7]. This includes bad working conditions for NH staff such as a high work load, interpersonal conflicts, poor salary, lack of appreciation for their work, and excessive documentation requirements [57]. Nursing staff frequently experiences stress-related health issues (e.g., sleeping problems, depression and burnout, musculoskeletal disorders) and engages in health-damaging behavior such as smoking, poor diet, or substance abuse [58]. Additionally, many nurses are frustrated about not being able to care for residents as they would like to, which compelled the NH director to initiate a change of practice.
Networks, infrastructure, and power relations
NHs in Germany do not usually employ their own physicians or therapists. As patients have freedom of choice, residents in NHs could theoretically select their preferred physician or specialists. Upon moving into a NH, many residents prefer to keep their former physician. However, working with a NH requires physicians and therapists to have enough time for regular visits, or residents to be transported to the physician’s or therapist’s practice. To reduce these costs, NHs try to form cooperation contracts with physicians, specialists (e.g., cardiologists), dentist, and therapists. In some cases, however, there are not enough physicians and therapists available to form such a cooperation, especially in rural areas. Interactions between physicians, therapists and nursing staff usually occur via medical and nursing documentation, prescriptions, and referrals. According to our interview partners, communication via fax is still a common practice in many NHs as physicians are too busy to be available for telephone calls and email is not well established.
In the case of the participating NH, a collaboration was formed between the NH, a neurologist/psychiatrist, and a pharmacist. This alliance developed through a long-term exchange about the problems inherent to NHs and a shared vision of an ideal quality care. The key actors (NH director, neurologist, and pharmacist) promoted and advertised the NH’s approach to form collaborations and gain funding for additional therapeutic, nursing and social care activities. Recently, articles about the NH have been published to further promote the concept [31, 32]. However, the approach was met with resistance by insurers and policymakers in the past, who argued that such a nursing concept was too expensive, not feasible, and working against the legal distinction between medical treatment and nursing practice. Encouraging such a project was even considered as “opening Pandora’s box” with financially unsustainable and large-scale political consequences. Shifts in the stakeholders’ management boards and the persisting problems in nursing care contributed to a change of perspective and a collaboration between a large statutory health insurer and the NH after several years.
Input, activities, and outcomes on the nursing home level
As depicted in the theory of change model in Fig. 3, input, activities and outcomes do not necessarily succeed each other in chronological order, but were established in iterative interactions over time.
Relevant actors in and outside the innovative NH are a charity organization, a neurologist, a pharmacist, the NH director, therapists, nurses, social care workers, housekeeping staff, volunteers, regional organizations (e.g., the local fire department, a regional orchestra), residents themselves, and their relatives. Additional input and resources are extra funding from a charity organization enabling a higher staff ratio, the integration of staff members’ individual skills, gifts and donations from organizations and relatives, the facility’s location next to a river and an adjacent garden, and its living and group rooms with daylight lamps. Compared to other facilities of similar scale, the NH employs additional 7.5 full-time positions in nursing, 1.2 in therapy, and 1.0 in care management. The overall staff-to-resident ratio is 1:2 and therefore much higher than legally required. This allows for additional therapy and social activities and more time for the therapeutic nursing practice itself. Innovative practices of the NH include enhanced interprofessional team meetings, therapeutic instructions to nurses, a broader therapy and social activity offer, systematic continuation of therapy in nursing and social care, advocacy for the therapeutic care concept, supervision of staff members, and increased communication with relatives. The practices lead to numerous, mutually reinforcing effects. These mechanisms are described in detail in the following paragraphs. Possible measurable outcomes of the activities’ effects could include a higher employee satisfaction, higher quality of life for residents, cost reduction for insurances, and stronger engagement of regional stakeholders.
In the monthly case meetings, primary nurses (“Bezugs-pflege”), housekeeping, and social care staff meet up with therapists, a neurologist, and a pharmacist to define and monitor each resident’s therapy and rehabilitation plan. Case meetings in other NHs do not include as many different professions, especially missing regular participation of a neurologist, pharmacist, and therapists. These enhanced case meetings are crucial because all different professions come together as a team and think about treatment potential from their respective expertise. This enables a more comprehensive estimation of the residents’ state and needs. Neurologist and pharmacist reconsider the medication, especially regarding maleficent polymedication and adverse effects (e.g., decreased mobility). Therapists suggest treatment options and potential for rehabilitation. Primary nurses and social care staff provide first-hand knowledge about the resident’s needs, individual life history, possible motivation for engaging in activities, and treatment progress.
Informal communication between colleagues is highly relevant as well. During shift changeovers or regular care practices, information about residents’ daily situation and treatment progress is exchanged. Staff members ask others for help if they lack the required knowledge, time, or practical qualification for the resident’s needs, which makes the provided care more effective.
The NH calls their own approach “therapeutic care with rehabilitative elements”. The central aspect, therefore, is the integration of therapeutic measures by (social care) nurses into everyday activities. This process is accompanied by the multidisciplinary team meetings and rehabilitative goalsetting described above. In practice, therapeutic care means that housekeeping, nurses, and social staff encourage and assist residents in managing tasks themselves. Thus, they promote self-sufficiency and attend to each resident’s needs, capacities, and rehabilitation potential individually. For example, residents are helped into their shirt but may be encouraged to button it themselves. Similarly, encouraging the use of the hemiplegic arm training was shown to take place not only during therapy sessions but also during activities of daily living (ADLs), such as eating and grooming.
To enable nursing and social care staff to include such therapeutic elements, therapist regularly instruct other staff members on exercises to be integrated in ADLs. For example, nurses are advised to avoid using hoists and instead try to assist residents to transfer or use a mobility frame in order to promote standing and walking endurance during daily routines. Physical and ergonomic therapy and its continuation in nursing care was perceived to lower the need for residents to be transported to the session with external therapists and physicians, and to increase their mobility and basic life skills. Preliminary quantitative analyses by one of our team’s primary researchers (MR) showed reduced rates of hospitalization and higher rates of residents returning to their own home. Both aspects together with lower medication rates may contribute to a cost reduction for insurers.
However, the broader therapeutic offer to residents consists not only of physical and ergonomic therapy but additional opportunities for stimulation and physical mobilization through musical and art therapy which is financed by a charity organization. Music and art are constantly integrated into everyday activities (e.g., while getting up, during meals) to stimulate and activate residents. As the NH’s musical therapist described it, music has the capacity to connect different people in a joint activity and is especially useful to activate memories, revive life history, and help residents to feel a sense of identity. In some instances, however, musical or art therapy might evoke painful memories that need to be worked through with residents, therapist, nurses, and sometimes relatives.
Residents’ treatment successes contribute significantly to staff members’ professional satisfaction and work motivation. Staff members view their work as more meaningful which, in turn, fosters greater empathy and care underpinned by a focus on residents’ individual histories.
Social activity offers (e.g., bowling, newspaper reading, singing together, conversation, gaming afternoons) provide leisure activities, communication, and a sense of community among residents. They are offered by social care workers, volunteers, and sometimes relatives. Special social activities such as concerts are held by regional organizations and help residents to feel connected to the broader society while enjoying entertainment. Apart from the availability of activity, social care workers provide meaningful companionship and a daily structure which are crucial to residents’ wellbeing. Social care workers accompany residents, stimulate conversations, or simply listen to them. This kind of relationship work is essential for figuring out how to motivate residents and engage them in the therapeutic care process. Such findings are then communicated to other professions through the formal or informal processes described above.
In the innovative NH, the integration of staff members’ individual skills and trainings had been developed organically over time. For example, housekeeping staff might play music at events such as church holiday celebrations. This helps residents to recognize staff members as individuals with different roles and characteristics and increases a sense of familiarity and community. On the other hand, staff members feel appreciated as individuals and can participate in different activities in the NH, which increases their job satisfaction.
Regional organizations and relatives contribute by sending gifts and donations like flower arrangements for residents or homemade cake for staff members, which helps to create a sense of community, appreciation, and belonging between the NH and local community.
The NH’s garden and the facility’s location next to a river serve as additional spaces for therapy, leisure activities, and relaxation, and therefore support the daily routines as well as residents’ wellbeing. Similarly, large living rooms with integrated daylight lamps add to a balanced day-and-night-rhythm, promote a comfortable atmosphere, and provide space for encounters with staff and other residents.
While some of the other regional NHs follow aspects of therapeutic care or other NH innovations (e.g., activating care, leisure activities, animal-assisted therapy), none of them applies them as systematically and comprehensive as the innovative NH. Although the concept and practice of therapeutic care has been refined over the past 20 years, occasional problems arise. Shortage of staff is still an issue because individual, therapeutic care requires more time. The NH director supervises the execution of therapeutic care, shortcomings are discussed, and improvement strategies developed in collaboration with other staff members.
Long-term impact on the national level
The intended long-term impact of all these activities covered interrelated aspects of the problems in nursing care (see Fig. 2). As a final aim of our broader society, a reformation of the nursing legislation, we posit the need for high quality and socio-economically effective nursing practice that works across sectors and includes therapeutic and rehabilitative elements. This should entail financial compensation and higher staff ratios that improve working conditions and therefore the quality of care, residents’ care experience, and staff’s physical and emotional wellbeing. Such a legislation could ultimately make the nursing profession itself more appealing and thus help to reduce the nursing staff shortage.
The second aim concerns the improvement of the public image of ageing, older people, NHs, and staff. More precisely, this is accompanied by an appreciation of old age as a valuable stage of life and older people as valuable members of society. NHs should be viewed and experienced as a living environment based on values of humanity for residents and staff alike. Nursing and social care staff should be recognized as crucial actors for creating such a living environment. The willingness of stakeholders and policy makers to increase funding and reshape legislation should grow through this heightened appreciation.
Third, an integrative social structure should be promoted by including older people in NHs into the broader society’s activities and collaborations with regional actors and stakeholders.
Assumptions and rationales
As a first precondition for the NH’s effectiveness, relevant actors needed to be convinced of or open to the innovation’s potential benefits. This is crucial for the NH’s staff as well as medical and pharmaceutical experts, charities and stakeholders as potential funders, and regional organizations.
The ToC’s underlying mechanisms and assumptions are connected to the organizational culture that is established in everyday interactions. A second assumption, therefore, is that NH practices are based on values of humanity, such as compassion, humaneness, or grace. Staff members are then more likely to care for residents in an empathic, individual way, assuming they have enough time to do so. Nursing, as the innovative NH’s employees described, is considered a calling, not just a job. However, not all nurses have the same work ethic or competences. More empathic nurses should be assigned to work directly with residents while others might be better qualified for organizational tasks, as the innovative NH director explained. Staff members, therefore, need to be considered and assigned to tasks appropriate for their individual strengths and weaknesses.
A third assumption is that residents would like to experience themselves and be perceived as individuals with specific characteristics and life histories. This requires them to open up and trust which can only be reached by sensitive interaction over time and equally applies to staff members who need to feel treated with respect and empathy themselves. Fourth, the experience of being relevant, or needed by others, and a part of the community is essential for residents’ wellbeing, treatment success, and ultimately the creation of a meaningful living environment.
Fifth, care itself is conceptualized in a complex way, which blurs the distinction between nursing and social care enshrined in the German social security legislation. The assumption is that everyone interacting with the residents is taking part in their care, be it the facility manager changing light bulbs and having a chat with them or the neurologist checking their medication. And sixth, as the therapeutic care is heavily relying on formal and informal communication between staff members, mutual appreciation and respect for each other’s expertise are crucial to promote interprofessional learning without competitive thinking between colleagues.