Lennartsson C, Heimerson I. Elderly people’s health: health in Sweden: the national public health report 2012. Chapter 5. Scandinavian Journal of Public Health. 2012;40(Suppl 9):95–120.
Article
PubMed
Google Scholar
National Board of Health and Welfare. Health and social care for elderly: Status report 2017 (In Swedish: Vård och omsorg om äldre: Lägesrapport 2017). In: Edited by (Socialstyrelsen) Eb. Stockholm: National Board of Health and Welfare; 2017.
National Board of Health and Welfare. Elderly Reform Act (In Swedish: Ädelreformen). In: Edited by (Socialstyrelsen) Eb. Stockholm: National Board of Health and Welfare; 1996.
Brännström M, Hägglund L, Fürst CJ, Boman K. Unequal care for dying patients in Sweden: a comparative registry study of deaths from heart disease and cancer. European Journal Of Cardiovascular Nursing: Journal Of The Working Group On Cardiovascular Nursing Of The European Society Of Cardiology. 2012;11(4):454–9.
Article
Google Scholar
Hall S, Petkova H, Tsouros A, Costantini M, Higginson I. Palliative care for older people: better practices. Copenhagen: World Health Organisation, Regional Office for Europe; 2011.
Lindskog M, Tavelin B, Lundström S. Old age as risk indicator for poor end-of-life care quality - a population-based study of cancer deaths from the Swedish Register of Palliative Care. European Journal Of Cancer. 2015;51(10):1331–9.
Article
PubMed
Google Scholar
Åhsberg E, Fahlström G. Changes in place of death among elderly in Sweden—a register study. Nordic Journal of Nursing Research. 2012;32(2):21–4.
Article
Google Scholar
Evans CJ, Ho Y, Daveson BA, Hall S, Higginson IJ, Gao W. Project GC: place and cause of death in centenarians: a population-based observational study in England, 2001 to 2010. PLoS Med. 2014;11(6). https://doi.org/10.1371/journal.pmed.1001653.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ (Clinical Research Ed). 2005;330(7498):1007–11.
Article
Google Scholar
Ellershaw J, Neuberger RJ, Ward C. Care of the dying patient: the last hours or days of life Commentary: a “good death” is possible in the NHS. BMJ. 2003;326(7379):30–4.
Article
PubMed
PubMed Central
Google Scholar
Bollig G, Rosland JH, Gjengedal E. They know!- Do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes. Palliat Med. 2015;30(5):456–70.
Article
PubMed
PubMed Central
Google Scholar
Lloyd A, Kendall M, Murray SA, Starr JM. Physical, social, psychological and existential trajectories of loss and adaptation towards the end of life for older people living with frailty: a serial interview study. BMC Geriatr. 2016;16(1):176.
Article
PubMed
PubMed Central
Google Scholar
Ronaldson S, Devery K. The experience of transition to palliative care services: perspectives of patients and nurses. Int J Palliat Nurs. 2001;7(4):171–177.
Article
PubMed
CAS
Google Scholar
Strohbuecker B, Eisenmann Y, Galushko M, Montag T, Voltz R. Palliative care needs of chronically ill nursing home residents in Germany: focusing on living, not dying. Int J Palliat Nurs. 2011;17(1):27–34.
Ferris FD, Bruera E, Cherny N, Cummings C, Currow D, Dudgeon D, JanJan N, Strasser F, von Gunten CF, Von Roenn JH. Palliative cancer care a decade later: accomplishments, the need, next steps—from the American Society of Clinical Oncology. J Clin Oncol. 2009;27(18):3052–8.
Article
PubMed
Google Scholar
Gaertner J, Wolf J, Frechen S, Klein U, Scheicht D, Hellmich M, Toepelt K, Glossmann J-P, Ostgathe C, Hallek M. Recommending early integration of palliative care—does it work? Support Care Cancer. 2012;20(3):507–13.
Article
PubMed
Google Scholar
Gorlén TF, Gorlén T, Neergaard MA. Death in nursing homes: a Danish qualitative study. Int J Palliat Nurs. 2013;19(5):236–42.
Article
PubMed
Google Scholar
Palliative care in the end of life. The National Care Program (In Swedish: Palliativ vård i livets slutskede. Nationellt vårdprogram). Stockholm: Regional Co-operative Cancer Centers (Regionala cancercentrum i samverkan); 2016.
Watson J, Hockley J, Dewar B. Barriers to implementing an integrated care pathway for the last days of life in nursing homes. Int J Palliat Nurs. 2006;12(5):234–40.
Article
PubMed
Google Scholar
Wowchuk SM, McClement S, Bond J Jr. The challenge of providing palliative care in the nursing home. Int J Palliat Nurs. 2007;13(7):345–50.
Article
PubMed
Google Scholar
Brandt HE, Deliens L, Ooms ME, van der Steen JT, van der Wal G, Ribbe MW. Symptoms, signs, problems, and diseases of terminally ill nursing home patients: a nationwide observational study in the Netherlands. Arch Intern Med. 2005;165(3):314–20.
Article
PubMed
Google Scholar
Porock D, Oliver DP. Recognizing dying by staff in long-term care. Journal of Hospice & Palliative Nursing. 2007;9(5):270–8.
Article
Google Scholar
Sahlberg-Blom E, Hårsmar A-L, Österlind J. Assistant Nurses’ descriptions of signs of dying among older people in nursing homes. Nordic Journal of Nursing Research. 2013;33(3):20–4.
Article
Google Scholar
Krueger RA, Casey MA. Focus groups : a practical guide for applied research. 5th ed. Thousand Oaks: SAGE; 2015.
Tornstam L. Gero-transcendence: a reformulation of the disengagement theory. Aging Clin Exp Res. 1989;1(1):55–63.
Article
CAS
Google Scholar
Ahlström G, Nilsen P, Benzein E, Behm L, Wallerstedt B, Persson M, Sandgren A. Implementation of knowledge-based palliative care in nursing homes and pre-post evaluation by cross-over design: a study protocol. BMC Palliative Care. 2018;17(1):52.
Article
PubMed
PubMed Central
Google Scholar
Tornstam L. Gerotranscendence-a theory about maturing into old age. J Aging Identity. 1996;1:37–50.
Google Scholar
Tornstam L. Gerotranscendence-a theoretical and empirical exploration. In: Ageing and the religious. Dimension Westport: Auburn House; 1994.
Wadensten B. The theory of gerotranscendence as applied to gerontological nursing–part I. Int J Older People Nursing. 2007;2(4):289–94.
Article
Google Scholar
Wadensten B, Carlsson M. The theory of gerotranscendence in practice: guidelines for nursing–part II. Int J Older People Nursing. 2007;2(4):295–301.
Article
Google Scholar
Wadensten B, Carlsson M. Adoption of an innovation based on the theory of gerotranscendence by staff in a nursing home–part III. Int J Older People Nursing. 2007;2(4):302–14.
Article
Google Scholar
Montoya-Juarez R, Garcia-Caro MP, Campos-Calderon C, Schmidt-RioValle J, Gomez-Chica A, Marti-Garcia C, Cruz-Quintana F. Psychological responses of terminally ill patients who are experiencing suffering: a qualitative study. Int J Nurs Stud. 2013;50(1):53–62.
Article
PubMed
Google Scholar
Tollen A, Fredriksson C, Kamwendo K. Elderly persons with disabilities in Sweden: their experiences of everyday life. Occup Ther Int. 2008;15(3):133–49.
Article
PubMed
Google Scholar
Beck I, Törnquist A, Broström L, Edberg A-K. Having to focus on doing rather than being-nurse assistants’ experience of palliative care in municipal recidential care settings. Int J Nurs Stud. 2012;49(4):455–64.
Article
PubMed
Google Scholar
Jakobsson E, Bergh I, Gaston-Johansson F, Stolt C-M, Öhlén J. The turning point: clinical identification of dying and reorientation of care. J Palliat Med. 2006;9(6):1348–58.
Article
PubMed
Google Scholar
National Board of Health and Welfare. The National Knowledge Support Document for Good Palliative Care at the End of Life (In Swedish: Nationellt kunskapsstöd för god palliativ vård i livets slutskede: vägledning, rekommendationer och indikatorer-stöd för styrning och ledning). In: Edited by (Socialstyrelsen) Eb. Stockholm: National Board of Health and Welfare; 2013.
Ministry of Health and Social Affairs. The Swedish Health and Medical Services Act (In Swedish: Hälso- och sjukvårdslag). 2017. https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/halso%2D-och-sjukvardslag_sfs-2017-30. Accessed 20 Mar 2018.
Ekman I, Swedberg K, Taft C, Lindseth A, Norberg A, Brink E, Carlsson J, Dahlin-Ivanoff S, Johansson I-L, Kjellgren K. Person-centered care—ready for prime time. Eur J Cardiovasc Nurs. 2011;10(4):248–51.
Article
PubMed
Google Scholar
McCormack B. Person-centredness in gerontological nursing: an overview of the literature. J Clin Nurs. 2004;13(s1):31–8.
Article
PubMed
Google Scholar
McCormack B, McCance TV. Development of a framework for person-centred nursing. J Adv Nurs. 2006;56(5):472–9.
Article
PubMed
Google Scholar
Waldrop DP, Nyquist K. The transition from routine care to end-of-life care in a nursing home: exploring staff perspectives. J Am Med Dir Assoc. 2011;12(2):114–20.
Article
PubMed
Google Scholar
Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–25.
Article
PubMed
Google Scholar
Houben CH, Spruit MA, Groenen MT, Wouters EF, Janssen DJ. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc. 2014;15(7):477–89.
Article
PubMed
Google Scholar
Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340:c1345.
Article
PubMed
PubMed Central
Google Scholar
Flo E, Husebo B, Bruusgaard P, Gjerberg E, Thoresen L, Lillemoen L, Pedersen R. A review of the implementation and research strategies of advance care planning in nursing homes. BMC Geriatr. 2016;16(1):24.
Article
PubMed
PubMed Central
CAS
Google Scholar
Lincoln YS, Guba EG. Naturalistic inquiry. Beverly Hills: Sage Publications; 1985.
World Medical Association. World Medical Association Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects. JAMA. 2013;310(20):2191–4.
Article
CAS
Google Scholar