Table 1 Characteristics of the sample and descriptive statistics for study variables
People with dementia | T1 (n = 1487) | T2 (n = 1160) | T3 (n = 836) | Caregiver | T1 (n = 1234) | T2 (n = 947) | T3 (n = 722) |
|---|---|---|---|---|---|---|---|
(N) | (N) | (N) | (N) | (N) | (N) | ||
Withdrew/lost to follow-up | - | 270 | 263 | Withdrew/lost to follow-up | - | 234 | 179 |
Did not take part at this timepoint | - | 11 | - | Did not take part at this timepoint | - | 15 | - |
Died | - | 46 | 72 | Person with dementia died | - | 36 | 61 |
Caregiver died | - | 2 | 0 | ||||
N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | ||
Sex | Sex | ||||||
Male | 834 (56.1) | 654 (56.4) | 467 (55.9) | Male | 377 (30.6) | 291 (30.7) | 227 (31.4) |
Female | 653 (43.9) | 506 (43.6) | 369 (44.1) | Female | 857 (69.4) | 656 (69.3) | 495 (68.6) |
Socio-economic status* | Socio-economic status* | ||||||
Class 1 | 613 (41.2) | Class 1 | 505 (40.9) | ||||
Class 2 | 430 (28.9) | Class 2 | 431 (34.9) | ||||
Class 3 | 415 (27.9) | Class 3 | 256 (20.7) | ||||
Never worked/missing | 29 (2.0) | Never worked/missing | 42 (3.4) | ||||
Dementia diagnosis | Care recipient diagnosis | ||||||
Alzheimer’s disease | 829 (55.7) | 647 (55.8) | 480 (57.4) | Alzheimer’s disease | 692 (56.1) | 529 (55.9) | 414 (57.3) |
Vascular dementia | 160 (10.8) | 114 (9.8) | 81 (9.7) | Vascular dementia | 134 (10.9) | 90 (9.5) | 70 (9.7) |
Mixed Alzheimer’s and vascular | 315 (21.2) | 260 (22.4) | 182 (21.8) | Mixed Alzheimer’s and vascular | 253 (20.5) | 208 (22.0) | 152 (21.1) |
Frontotemporal dementia | 53 (3.6) | 39 (3.4) | 31 (3.7) | Frontotemporal dementia | 44 (3.6) | 36 (3.8) | 29 (4.0) |
Parkinson’s disease dementia | 41 (2.8) | 33 (2.8) | 16 (1.9) | Parkinson’s disease dementia | 40 (3.2) | 31 (3.3) | 19 (2.6) |
Dementia with Lewy bodies | 49 (3.3) | 39 (3.4) | 27 (3.2) | Dementia with Lewy bodies | 41 (3.3) | 32 (3.4) | 22 (3.0) |
Unspecified dementia/other | 40 (2.7) | 28 (2.4) | 19 (2.3) | Unspecified dementia/other | 30 (2.4) | 21 (2.2) | 16 (2.2) |
Caregiver status | |||||||
Spouse/partner | 1013 (82.1) | 798 (84.3) | 613 (84.9) | ||||
Family/friend | 221 (17.9) | 149 (15.7) | 109 (15.1) | ||||
M (SD), missing | M (SD), missing | M (SD), missing | M (SD), missing | M (SD), missing | M (SD), missing | ||
Mean age | 76.4 (8.48), 0 | 77.1 (8.38), 0 | 77.5 (8.46), 0 | Mean age | 69.1 (10.94), 0 | 70.3 (10.47), 0 | 71.0 (10.36), 0 |
ACE-III | 69.4 (13.08), 96 | 66.5 (15.83), 102 | 64.8 (17.81), 108 | Stress | 19.15 (9.82), 54 | 21.8 (10.07), 63 | 23.1 (10.15), 46 |
Personality* | Personality* | ||||||
Neuroticism | 10.2 (3.46), 24 | Neuroticism | 10.9 (3.15), 6 | ||||
Extraversion | 11.7 (3.73), 17 | Extraversion | 12.1 (3.34), 10 | ||||
Conscientiousness | 13.5 (3.04), 26 | Conscientiousness | 15.5 (2.66), 6 | ||||
Openness | 12.8 (3.18), 47 | Openness | 13.2 (2.95), 22 | ||||
Agreeableness | 15.8 (2.81), 19 | Agreeableness | 16.3 (2.61), 5 | ||||
‘Living well’ | ‘Living well’ | ||||||
Quality of life | 36.9 (5.89), 135 | 37.0 (5.90), 133 | 37.0 (5.60), 134 | Quality of life (factor score) | 0.2 (2.06), 23 | 0.1 (2.06), 46 | -0.17 (2.07), 31 |
Satisfaction with life | 26.2 (6.05), 37 | 26.3 (6.12), 68 | 26.3 (6.31), 87 | Satisfaction with life | 23.8 (6.48), 14 | 22.5 (6.80), 46 | 21.8 (6.58), 31 |
Well-being | 61.2 (20.40), 21 | 60.8 (20.75), 49 | 61.4 (20.92), 68 | Well-being | 55.4 (19.70), 14 | 54.0 (20.54), 42 | 52.2 (20.30), 28 |