Table 3 Responses of carers organised by living situation
Carers living together in the community with the person with dementia | Total (N = 120) | bvFTD (n = 38) | PCA (n = 40) | PPA (n = 25) | DLB (n = 6) | fFTD (n = 5) | fAD (n = 2) | Other (n = 4) | ||
|---|---|---|---|---|---|---|---|---|---|---|
Questions about the person with dementia | ||||||||||
Decline in cognitive symptoms | 70% | 61% | 78% | 68% | 83% | 80% | 100% | 50% | ||
Negative impact on behaviour or wellbeing | 58% | 50% | 73% | 44% | 67% | 80% | 0% | 75% | ||
Loss ability to do things | 61% | 50% | 73% | 44% | 100% | 80% | 50% | 75% | ||
General health affected negatively | 44% | 38% | 43% | 44% | 67% | 80% | 0% | 50% | ||
Medication changes | 24% | 22% | 28% | 16% | 33% | 20% | 0% | 50% | ||
Reduced ability to connect with people socially | 72% | 64% | 80% | 68% | 100% | 80% | 50% | 50% | ||
Questions about the carer | ||||||||||
Level of stress or health impacted negatively by the lockdown | 73% | 68% | 73% | 76% | 83% | 80% | 100% | 75% | ||
Negative impact on support received for caring | 59% | 54% | 65% | 60% | 50% | 40% | 100% | 50% | ||
Carers of people with dementia living in the community but not together | Total (N = 24) | bvFTD (n = 11) | PCA (n = 5) | PPA (n = 8) | DLB (n = 0) | fFTD (n = 0) | fAD (n = 0) | Other (n = 0) | ||
Questions about the person with dementia | ||||||||||
Decline in cognitive symptoms | 63% | 64% | 40% | 75% | - | - | - | - | ||
Negative impact on behaviour or wellbeing | 63% | 64% | 40% | 75% | - | - | - | - | ||
Loss ability to do things | 71% | 73% | 80% | 63% | - | - | - | - | ||
General health affected negatively | 52% | 36% | 50% | 75% | - | - | - | - | ||
Medication changes | 29% | 36% | 20% | 25% | - | - | - | - | ||
Reduced ability to connect socially | 88% | 73% | 100% | 100% | - | - | - | - | ||
Questions about the carer | ||||||||||
Level of stress or health impacted by the lockdown | 83% | 64% | 100% | 100% | - | - | - | - | ||
Negative impact on support received for caring | 38% | 45% | 0% | 50% | - | - | - | - | ||
Carers of people with dementia living in care homes Questions about the person with dementia | Total (N = 40) | bvFTD (n = 13) | PCA (n = 14) | PPA (n = 3) | DLB (n = 4) | fFTD (n = 3) | FAD (n = 1) | Other (n = 2) | ||
Decline in cognitive symptoms | 75% | 85% | 57% | 57% | 75% | 67% | 100% | 100% | ||
Negative impact on behaviour or wellbeing | 48% | 23% | 50% | 50% | 75% | 33% | 100% | 100% | ||
Loss ability to do things | 60% | 54% | 43% | 43% | 75% | 100% | 100% | 100% | ||
General health affected negatively | 54% | 38% | 50% | 50% | 75% | 50% | 100% | 100% | ||
Medication changes | 30% | 15% | 36% | 36% | 75% | 33% | 0% | 50% | ||
Reduced ability to connect socially | 60% | 38% | 64% | 64% | 75% | 67% | 100% | 100% | ||
Questions about the carer | ||||||||||
Level of stress or health impacted by the lockdown | 93% | 92% | 93% | 93% | 100% | 67% | 100% | 100% | ||
Harder for carer to provide care and support | 93% | 92% | 93% | 93% | 100% | 100% | 100% | 100% | ||