Skip to main content

Table 2 Responses of people living with dementia

From: “I felt like I had been put on the shelf and forgotten about” – lasting lessons about the impact of COVID-19 on people affected by rarer dementias

 

Total

(N = 24)

 

bvFTD

(n = 5)

PCA

(n = 8)

PPA

(n = 7)

DLB

(n = 3)

fFTD

(n = 0)

fAD

(n = 1)

Other

(n = 0)

Decline in cognitive symptoms

38%

 

40%

38%

43%

33%

-

0%

-

Negative impact on behaviour or wellbeing

50%

 

80%

38%

29%

100%

-

0%

-

Loss ability to do things

46%

 

60%

38%

43%

67%

-

0%

-

General health affected negatively

42%

 

40%

38%

29%

100%

-

0%

-

Medication changes

13%

 

0%

0%

14%

33

-

100%

-

Negative impact on support received

54%

 

40%

63%

57%

33

-

100%

-

Reduced ability to connect with people socially

74%

 

40%

88%

83%

67

-

100%

-

  1. Bold = 75% or more “yes” responses
  2. Underlined = 50–74% “yes” responses