Table 1 Responses of carers to the COVID-19 lockdown survey questions
Total (N = 184) | bvFTD (n = 62) | PCA (n = 59) | PPA (n = 36) | DLB (n = 10) | fFTD (n = 8) | fAD (n = 3) | Other (n = 6) | ||
|---|---|---|---|---|---|---|---|---|---|
Questions about the person with dementia | |||||||||
Decline in cognitive symptoms | 70% | 66% | 69% | 72% | 80% | 75% | 100% | 67% | |
Negative impact on behaviour or wellbeing | 57% | 47% | 64% | 53% | 70% | 63% | 100% | 83% | |
Loss ability to do things | 62% | 55% | 66% | 50% | 90% | 88% | 67% | 83% | |
General health affected negatively | 47% | 38% | 45% | 53% | 70% | 71% | 100% | 67% | |
Medication changes† | 26% | 23% | 29% | 18% | 50% | 25% | 0% | 50% | |
Reduced ability to connect with people socially | 71% | 60% | 78% | 75% | 90% | 75% | 67% | 67% | |
Questions about the carer | |||||||||
Level of stress or health negatively impacted by the lockdown | 79% | 72% | 80% | 83% | 90% | 75% | 100% | 83% | |
Negative impact on support received for caring | 55%* | 52% | 58% | 58% | 50% | 40% | 100% | 50% | |
Harder for carer to provide care and support | 93%** | 92% | 93% | 67% | 100% | 100% | 100% | 100% |