Table 1 Outline of the ‘Have a Say (HAS)’ ACP programme
Week | Format | Objectives | Content |
|---|---|---|---|
1 | ♦ A nurse-led group-based session ♦ Micro-movie and video watching ♦ Group discussion | ♦ Increase participants’ understanding of dementia and advance care planning (ACP) ♦ Support participants to understand and share their views about future health decline ♦ Increase participants’ understanding of future care options ♦ Raise participants’ awareness of ACP | ♦ Introduce the nature and trajectory of dementia and the care needs of people with dementia ♦ Share the life stories of two persons with dementia, one who has completed ACP and one who has not, through micro-movie ♦ Introduce information about ACP, including its rationale, contents, and benefits, using video clips ♦ Introduce various life-sustaining treatment options using video clips and demonstrate medical equipment, e.g. endotracheal tube and feeding tube ♦ Facilitate group discussion among participants to share their views about future health decline, end-of-life care preferences, and surrogate decision-making |
2 | ♦ ACP facilitator-led dyadic sessions ♦ Individualised ACP discussion guided by an ACP booklet | ♦ Explore participants’ values, preferences, and family resources and dyads’ concerns related to future care planning ♦ Provide information on various options for each future care issue ♦ Facilitate the discussion ♦ Support the dyads to make decisions about future care options ♦ Document participants’ views and preferences in the ACP booklet | ♦ Discussion topics covered: - Personal values, wishes, and views about own health and future care - Place of care - Daily care arrangements - Feeding options |
3 | ♦ Discussion topics covered: - Life-sustaining treatments at the end-of-life stage - Legal and financial arrangements - Surrogate decision-makers - Funeral arrangement - Other unfulfilled wishes |