Table 3 Characteristics of included articles
Author, Year | Country | Aim of the study | Diagnosis Identified | Type of Participants and sample size | Study design | Methodological approach | Quality Score |
|---|---|---|---|---|---|---|---|
1) Agudu 2017 [25] | Ghana | To explore and describe the experiences of family caregivers caring for patients with dementia | Dementia | Family caregivers n = 10 Female n = 9 Male n = 1 Age 25–74 | Qualitative | Face-to-face in-depth interviews | ***** (100%) |
2)Agyeman et al. 2019 [26] | Ghana | To explore the sociocultural beliefs, understandings, perceptions, and behaviours relating to living with dementia in Kintampo | Dementia | Family caregivers n = 10 Female n = 6 Male n = 4 | Qualitative-Case studies | In-depth interviews | ***** (100%) |
3) Bosch 2014 [27] | South Africa | To explore the needs and experiences of caregivers of persons with Alzheimer’s disease living in black rural communities in Mpumalanga, South Africa | Alzheimer’s Disease | Caregivers n-11 Female n = 10 Male n = 1 Age 23–82 | Qualitative | Individual interviews | ***** (100%) |
4) Deist and Greeff 2017 [28] | South Africa | To identify factors associated with family resilience in families caring for a parent with dementia. | Dementia | Families in which adult children were caring for a parent with dementia. n = 47 Female n = 38 Male n = 9 Age 20–64 | Mixed methods | Quantitative survey and qualitative interviews | ***** (100%) |
5) Deist and Greeff [29] | South Africa | To explore factors associated with family resilience in families caring for a family member with dementia | Dementia | Families in which a spouse was caring for a partner with dementia. n = 44 Female n = 29 Male n = 15 Age 43–90 | Mixed methods | Quantitative survey and qualitative interviews | ***** (100%) |
6) Dotchin et al. 2014 [30] | Tanzania | To document the burden of caregiving for people with Parkinson’s disease (PD) and dementia. | Dementia | Caregivers for PLWD Female n = 38 | Quantitative | Questionnaire/ survey | **** 80% |
7) Gurayah 2015 [31] | South Africa | To explore the phenomenon of caregiving for people with dementia in a rural context in South Africa. | Dementia | Caregivers n = 5 4 Females (3 daughters and 1 wife of the PLWD) 1 Son of the PLWD Age 46–68 | Qualitative | Individual interviews | ***** (100%) |
8) Hendricks-Lalla and Pretorius 2020 [32] | South Africa | To explore the experiences of male familial caregivers of persons with Alzheimer’s disease from low socio-economic status | Alzheimer’s disease | Male family caregivers of persons with Alzheimer’s disease n = 11 (6 children (sons), 5 spouses (husbands) Age 48–83 | Qualitative | Semi-structured interviews | ***** (100%) |
9) Mayston et al. 2017 [33] | Nigeria = only country of interest | To explore the social and economic effects of caring for an older dependent person, including insight into pathways to economic vulnerability. | Dementia | n = 24 sites and n = 60 interviews total across 4 countries In Nigeria: 7 household (cases) with 20 interviews n = 14 with caregivers n = 6 with older people- not | Qualitative (Case studies across urban and rural sites) | Interviews with family members of older dependent persons (some with dementia) | ***** (100%) |
10) McFarland 2010 [34] | Botswana | To share a personal experience of caring for a terminally ill family member who was afflicted with Pick’s Disease, a type of dementia | Pick’s Disease | 1 female caregiver | Qualitative research | Self-reflection of a personal experience with Pick’s Disease | ****** (100%) |
11) Mkhonto and Hanssen [35] | South Africa | To explore and describe the link between culture and dementia care with the focus on the influence of the belief in dementia as witchcraft and people with dementia as witches | Dementia/Alzheimer’s disease | n = I8 close family members - 16 female and 2 male) n-19 nurses caring for patients with dementia | Qualitative | in-depth qualitative interviews | ***** (100%) |
12) Mahomed and Pretorius 2020 [36] | South Africa | To explore the needs of male caregivers of people with Alzheimer’s disease (AD) by ascertaining the availability and utilisation of Alzheimer’s disease-related resources in low-income communities in the Western Cape | Dementia/Alzheimer’s disease | Males familial caregivers of persons with Alzheimer’s disease n = 11 18 mean age = 61.18 Co-residents 5 sons; 5 husbands ;1 son-in law Age 49–87 | Qualitative | Semi-structured interviews | ***** (100%) |
13) Mushi et al. 2014 [37] | Tanzania | To explore the social cultural beliefs surrounding dementia and the life experience of people with dementia and their caregivers. | Dementia | 25 paired interviews with PWD and their caregivers and 16 interviews with caregivers alone Caregivers n = 16 Females = 11 Males n = 5 Age 19–58 | Cross-sectional qualitative design | Qualitative interviews | ***** (100%) |
14) Potgieter et al. 2012 [38] | South Africa | To identify and describe the changes in the time perspective of persons caring for a spouse diagnosed with Alzheimer’s disease | Dementia | Female participants n = 40 Age 53–82 years | Mixed methods | Qualitative and quantitative instruments | ***** (100%) |
15) Potgieter and Heyns 2006 [39] | South Africa | To identify stressors and strengths reported by female caregivers of spouses diagnosed with Alzheimer’s disease | Dementia | Caregivers (female) n = 8 Age 37–71 | Mixed methods | Qualitative, interviews triangulated with quantitative measures | ***** (100%) |
16) Pretorius et al. 2009 [40] | South Africa | To explore the experiences of men caring for spouses suffering from dementia from a salutogenic perspective | Dementia | Men caring for a spouse with dementia. n = 10 Age- 61–86 | Mixed methods | Semi-structured interviews and quantitative questionnaire | **** (80%) |
17) Prince and 10/66 Dementia Research Group 2004 [41] | 24 centres in developing countries worldwide, including Nigeria | To comprehensively assess the care arrangements for people with dementia in developing countries | Dementia | 706 interviews with people with dementia and their caregivers n = 20 in Nigeria. Female n = 19 Male n = 1 Age 40–64 | Quantitative descriptive | Descriptive and comparative study | (**** 80%) |
18) Smith et al. 2018 [42] | South Africa | To explore and describe the transition experiences of eight family members regarding how they became caregivers of their relatives with dementia. | Dementia | Family caregivers n = 8 Females n = 7 male n = 1 1 male- spouse 4 daughters;1 spouse; 1 sister; 1 daughter Age: 47–72 Mean age = 60.6 | Qualitative Phenomenological design | Visual participatory methods in the form of collages and interviews | ***** (100%) |
19) Raphael et al. 2017) [43] | Nigeria | To explore the impact of educational intervention on the family caregivers for older people with dementia | Dementia | Family caregivers n = 56 Female n = 51 Male n = 5 Age 18–72 | Quantitative | quasi-experimental: pre and post-test design | Not rated |