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Table 3 Building a new life themes, sub themes and data excerpts

From: Building a new life: a qualitative study of how family carers deal with significant changes

Theme/Sub Theme

Data Excerpts

Building New Relationships

“The change in your relationship with your loved one or the changes in your other relationships that you may be having on a day-to-day basis” (FG9).

/With Family Member

“I categorize most of the changes as having to do with building a new relationship [with my family member living in LTC].”” (FG3)

/People Outside of LTC

“So, I see it in one hand a relationship with your spouse and on the other hand building a new relationship outside of that relationship” (FG3)

/With Staff

“Knowing the staff, the PSWs [personal support workers], they’re your link” (FG7).

Finding Space for Themselves

“…this inside pulling of trying to be loving to your mother but also trying to find that space for yourself. “(FG8)

/Sharing Care

“So, you know, you’ve given up the day-to-day physical. Now, there’s the emotional and the worry, right? So, it’s different” (FG1).

/Finding Balance

“So, what happens is like I work till late at night trying to get laundry done and things like that. And in the morning, I’m tired because just to – and it’s hard to get a balance” (FG7)

Factors Supporting Building a New Life:

/Understanding Dementia

“I think it’s understanding the disease.” (FG7)

/Support from Others

“Calling on others for support, I think, is huge. That’s one of the things that I said, you know, just rallying the troops”(FG8)

/Connecting with Resources

“As well as maybe a resource list of when things kind of fail, you can reach out to these people to help you advocate for what they need” (FG3).

/Being Included in Care Decisions

“And we’re not getting care conferences. …I think that’s a way of isolating me, like keeping me out of the loop” FG3)