Building New Relationships
“The change in your relationship with your loved one or the changes in your other relationships that you may be having on a day-to-day basis” (FG9).
/With Family Member
“I categorize most of the changes as having to do with building a new relationship [with my family member living in LTC].”” (FG3)
/People Outside of LTC
“So, I see it in one hand a relationship with your spouse and on the other hand building a new relationship outside of that relationship” (FG3)
“Knowing the staff, the PSWs [personal support workers], they’re your link” (FG7).
Finding Space for Themselves
“…this inside pulling of trying to be loving to your mother but also trying to find that space for yourself. “(FG8)
“So, you know, you’ve given up the day-to-day physical. Now, there’s the emotional and the worry, right? So, it’s different” (FG1).
“So, what happens is like I work till late at night trying to get laundry done and things like that. And in the morning, I’m tired because just to – and it’s hard to get a balance” (FG7)
Factors Supporting Building a New Life:
“I think it’s understanding the disease.” (FG7)
/Support from Others
“Calling on others for support, I think, is huge. That’s one of the things that I said, you know, just rallying the troops”(FG8)
/Connecting with Resources
“As well as maybe a resource list of when things kind of fail, you can reach out to these people to help you advocate for what they need” (FG3).
/Being Included in Care Decisions
“And we’re not getting care conferences. …I think that’s a way of isolating me, like keeping me out of the loop” FG3)