Table 2 Summary of the factors impacting poor mental health, wellbeing, and quality of life in carers

Bleijlevens et al., 2015, Holland [40]

Decrease in burden found at 3-month follow-up after transition, although clinical significant burden was still present then.

Decrease in psychological distress found at 3-month follow-up after transition, although no significant changes in health related QOL were reported in this group.

Gaugler et al. 2007, USA [43]

Decreases in stressors and indicators of negative mental health, such fatigue due to informal role provision, anxiety and anger, were found over time.

Gaugler et al., 2010, USA [41]

Decrease in burden found at 6-month and 12-month post-placement.

Smaller decrease in depressive symptoms found at 6-month and 12-month post-placement.

Metzelthin et al., 2017, Holland [44]

While objective caregiver burden (measured by the number of caregiving hours) may decrease with admission, carer’s subjective burden remained high following transition of the care recipient to permanent care

Schulz et al., 2004, USA [8]

The use of anxiolytics increased with placement and nearly 50% of carers were at risk of clinical depression after placement. Small improvements were more commonly observed in spouses whom visited frequently and those less satisfied with the care.