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STAGE 1: QUALITATIVE INTERVIEWS
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Family carers of people living with dementia (n = 14)
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Age (years)a
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62.5 (14.4)
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Identifying gender (Female: Male)b
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11 (78.6): 3 (21.4)
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Country of residence (Australia)b
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14 (100)
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In employment (Yes: No)b
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4 (28.6): 10 (71.4)
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Relationship to care recipient (Partner: Offspring)b
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7 (50): 7 (50)
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Length of time caring for care recipient (years)a
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6.5 (2.9)
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Age of care recipient (years)a
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78.6 (10.4)
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Identifying gender of care recipient (Female: Male)b
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9 (64.3): 5 (35.7)
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Care recipient’s type of dementiab
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Alzheimer’s disease
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7 (50)
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Unspecified
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4 (28.6)
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Frontotemporal
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1 (7.1)
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Lewy-body
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1 (7.1)
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Vascular
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1 (7.1)
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Professional stakeholders (n = 14)
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Academic clinicians with expertise in ageing & dementia (n = 5)
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Identifying gender (Female: Male)b
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4 (80): 1 (20)
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Country of residence (Australia)b
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5 (100)
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Roleb
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Clinical psychologist
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1 (20)
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Mental health nurse
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1 (20)
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Occupational therapist
|
1 (20)
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Old age psychiatrist
|
1 (20)
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Social gerontologist
|
1 (20)
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Academic clinicians with expertise in compassion (n = 4)
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Identifying gender (Female: Male)b
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2 (50): 2 (50)
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Country of residence (Australia: UK)b
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1 (25): 3 (75)
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Roleb
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Clinical psychologist
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3 (75)
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Counsellor
|
1 (25)
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Carer support professionals (n = 5)
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Identifying gender (Female: Male)b
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4 (80): 1 (20)
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Country of residence (Australia)b
|
5 (100)
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|
Roleb
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Counsellor
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2 (40)
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Senior management (education, training, & improvement)
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2 (40)
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Educator
|
1 (20)
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STAGE 2: CO-DESIGN GROUP
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Family carers of people living with dementia (n = 6)
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Age (years)a
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61 (8.0)
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Identifying gender (Female: Male)b
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5 (83.3): 1 (16.7)
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Country of residence (Australia)b
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6 (100)
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In employment (Yes: No)b
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3 (50): 3 (50)
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Relationship to care recipient (Partner: Offspring)b
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1 (16.7): 5 (83.3)
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Length of time caring for care recipient (years)a
|
5.8 (2.8)
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Age of care recipient (years)a
|
86 (9.2)
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Identifying gender of care recipient (Female: Male)b
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4 (66.7): 2 (33.3)
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Care recipient’s type of dementia (Alzheimer’s disease: Mixed)b
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4 (66.7): 2 (33.3)
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