Table 2 Description of participants
a. Personal and demographic variables | ||||
|  | Whole sample (n = 917) | Low awareness group (n = 83) | Rest of cohort including high awareness group (n = 834) | High awareness group (n = 103) |
| Â | N (%) | N (%) | N (%) | N (%) |
Sex | ||||
 Female | 383 (41.8) | 33 (39.8) | 350 (42.0) | 44 (42.7) |
 Male | 534 (58.2) | 50 (60.2) | 484 (58.0) | 59 (57.3) |
Age at baseline | ||||
  < 65y | 87 (9.5) | 6 (7.2) | 81 (9.7) | 24 (23.3) |
 65-69y | 120 (13.1) | 11 (13.3) | 109 (13.1) | 16 (15.5) |
 70-74y | 160 (17.4) | 9 (10.8) | 151 (18.1) | 22 (21.4) |
 75-79y | 216 (23.6) | 12 (14.5) | 204 (24.5) | 23 (22.3) |
 80+ | 334 (36.4) | 45 (54.2) | 289 (34.7) | 18 (17.5) |
 Mean (SD) | 75.78 (8.46) | 78.34 (9.14) | 75.62 (8.35) | 71.32 (9.08) |
Time since diagnosis | ||||
  < 1y | 477 (52.0) | 39 (47.0) | 438 (52.5) | 42 (40.8) |
 1-2y | 264 (28.8) | 19 (22.9) | 245 (29.4) | 38 (36.9) |
 3y and above | 108 (11.8) | 11 (13.3) | 97 (11.6) | 18 (17.5) |
 Missing | 68 (7.4) | 14 (16.9) | 54 (6.5) | 5 (4.9) |
Education level | ||||
 No qualification | 253 (27.6) | 22 (26.5) | 231 (27.7) | 29 (28.2) |
 School leaving certificate 16y | 168 (18.3) | 15 (18.1) | 153 (18.3) | 15 (14.6) |
 School leaving certificate 18y | 304 (33.2) | 26 (31.3) | 278 (33.3) | 35 (34.0) |
 University | 173 (18.9) | 14 (16.9) | 159 (19.1) | 24 (23.3) |
 Missing | 19 (2.1) | 6 (7.2) | 13 (1.6) | 0 |
Dementia subtype | ||||
 AD | 508 (55.4) | 47 (56.6) | 461 (55.3) | 53 (51.5) |
 VaD | 105 (11.5) | 12 (14.5) | 93 (11.2) | 16 (15.5) |
 Mixed | 177 (19.3) | 13 (15.7) | 164 (19.7) | 14 (13.6) |
 FTD | 34 (3.7) | 7 (8.4) | 27 (3.2) | 3 (2.9) |
 PDD | 33 (3.6) | 1 (1.2) | 32 (3.8) | 10 (9.7) |
 DLB | 37 (4.0) | 1 (1.2) | 36 (4.3) | 4 (3.9) |
 Other | 23 (2.5) | 2 (2.4) | 21 (2.5) | 3 (2.9) |
Deprivation quintile | ||||
 Q1 (most deprived) | 88 (9.6) | 13 (15.7) | 75 (9.0) | 8 (7.8) |
 Q2 | 131 (14.3) | 13 (15.7) | 118 (14.1) | 18 (17.5) |
 Q3 | 205 (22.4) | 16 (19.3) | 189 (22.7) | 21 (20.4) |
 Q4 | 225 (24.5) | 19 (22.9) | 206 (24.7) | 25 (24.3) |
 Q5 (least deprived) | 268 (29.2) | 22 (26.5) | 246 (29.5) | 31 (30.1) |
Caregiver relationship | ||||
 No caregiver in study | 162 (17.7) | 16 (19.3) | 146 (17.5) | 21 (20.4) |
 Spouse/partner | 630 (68.7) | 56 (67.5) | 574 (68.8) | 72 (69.9) |
 Other | 117 (12.8) | 11 (13.3) | 106 (12.7) | 9 (8.7) |
 Missing | 8 (0.9% of total, or 1.1% of those with caregiver) | – | 8 (1% of total, or 1.2% of those with caregiver) | 1 (1% of total, or 1.2% of those with caregiver) |
b. Cognitive and psychological variables | ||||
|  | Whole sample (n = 917) | Low awareness group (n = 83) | Rest of cohort including high awareness group (n = 834) | High awareness group (n = 103) |
| Â | Mean (SD); n | Mean (SD); n | Mean (SD); n | Mean (SD); n |
ACE-III total | 69.33 (13.07); 846 | 65.03 (13.21); 71 | 69.72 (12.99); 775 | 71.33 (13.12); 97 |
ACE-III attention | 13.95 (2.96); 889 | 13.10 (3.24); 77 | 14.03 (2.92); 812 | 14.04 (3.01); 100 |
ACE-III fluency | 6.77 (3.10); 894 | 6.26 (3.19); 77 | 6.82 (3.09); 817 | 6.93 (3.05); 101 |
ACE-III language | 22.55 (3.49); 866 | 21.79 (3.67); 73 | 22.62 (3.46); 793 | 23.40 (3.11), 99 |
ACE-III memory | 13.60 (5.31); 877 | 11.55 (5.02); 74 | 13.79 (5.30); 803 | 14.73 (5.34); 98 |
ACE-III visuospatial | 12.45 (3.33); 882 | 12.41 (3.08); 74 | 12.45 (3.35); 808 | 12.45 (3.37); 100 |
Personality trait | ||||
 Neuroticism | 10.12 (3.42); 882 | 8.10 (2.96); 81 | 10.33 (3.40); 801 | 10.94 (3.44); 100 |
 Conscientious | 13.61 (3.07); 882 | 14.85 (2.35); 81 | 13.48 (3.10); 801 | 13.14 (3.41); 99 |
 Openness | 12.87 (3.13); 874 | 13.23 (3.20); 79 | 12.84 (3.12); 795 | 12.68 (3.37); 99 |
 Agreeable | 15.81 (2.79); 886 | 15.43 (2.90); 81 | 15.85 (2.77); 805 | 16.02 (2.93); 100 |
 Extraversion | 11.77 (3.67); 886 | 12.69 (3.42); 81 | 11.68 (3.69); 805 | 10.69 (3.83); 99 |
 QoL-AD | 36.91 (5.97); 850 | 40.97 (5.02); 76 | 36.51 (5.91); 774 | 35.25 (5.91); 95 |
 WHO-5 | 61.19 (20.84); 911 | 71.28 (19.20); 83 | 60.18 (20.74); 828 | 55.65 (21.30); 103 |
 SwLS | 26.20 (6.18); 905 | 29.02 (5.16); 82 | 25.91 (6.20); 823 | 23.22 (6.50); 103 |
 Optimism | 15.01 (3.58); 883 | 16.36 (3.55); 77 | 14.88 (3.56); 806 | 14.18 (3.99); 99 |
 Self-efficacy | 29.47 (5.51); 868 | 31.81 (5.77); 74 | 29.26 (5.43); 794 | 27.39 (5.97); 99 |
 Self-esteem | 29.50 (3.75); 851 | 31.36 (3.93); 72 | 29.33 (3.69); 779 | 28.93 (3.61); 98 |
| Â | N (%) | N (%) | N (%) | N (%) |
GDS-10 group | ||||
 Not Depressed | 630 (68.7) | 74 (89.2) | 556 (66.7) | 61 (59.2) |
 Depressed | 267 (29.1) | 7 (8.4) | 260 (31.2) | 40 (38.8) |
 Missing | 20 (2.2) | 2 (2.4) | 18 (2.2) | 2 (1.9) |
c. Caregiver-rated variables | ||||
|  | Whole sample (n = 917) | Low awareness group (n = 83) | Rest of cohort including high awareness group (n = 834) | High awareness group (n = 103) |
| Â | Mean (SD); n | Mean (SD); n | Mean (SD); n | Mean (SD); n |
FAQ-I | 17.46 (8.56); 697 | 20.69 (8.18); 62 | 17.15 (8.54); 635 | 16.85 (8.08); 74 |
NPI-Q total | 3.52 (2.46); 717 | 3.34 (2.23); 64 | 3.53 (2.48); 653 | 3.60 (2.48): 77 |
Caregiver RSS | 19.07 (9.98); 709 | 18.55 (8.71); 64 | 19.12 (10.10); 645 | 19.87 (8.72): 79 |