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Table 1 RADIX questions used to create high awareness group

From: Does awareness of condition help people with mild-to-moderate dementia to live well? Findings from the IDEAL programme

RADIX Item

(Dementia representation component)

Possible responses

Response indicating ‘high awareness’ a

What do you call this difficulty or condition that you have?

(Identity)

(How does the person refer to condition, e.g. dementia, memory problems, forgetfulness etc. Used as ‘identity label’ in further questions)

• Gives a diagnostic label indicating dementia.

Are you aware of a specific diagnosis? What does the doctor call it?

(Diagnostic identity)

(Is a specific diagnosis given, including ‘dementia’ or specific dementia subtype)

• Acknowledges diagnosis and gives specific diagnosis.

What do you think caused or causes your [identity label]?

(Cause)

• Ageing

• Changes within the brain

• Illness/disease/physical condition

• Hereditary condition

• Lifestyle/life events

• Don’t know

• Changes within the brain

• Illness/disease/physical condition

What do you think will happen to your [identity label] over time?

(Timeline)

• Get better

• Stay the same as it is now

• Get worse

• It will get worse (agree or strongly agree)

  1. aConsidered high awareness of condition if gave ‘high awareness’ responses to all four questions