Table 1 Sample Characteristics
From: Family caregiving in the community up to 8-years after onset of dementia
Incidence N = 1158 | 2-years Post Incidence N = 508 | 4-years Post Incidence N = 183 | 6-years Post Incidence N = 76 | 8-years Post Incidence N = 30 | |
|---|---|---|---|---|---|
Age, mean (SD), y | 81.4 (7.5) | 82.8 (7) | 83 (7) | 83.6 (7.1) | 84.7 (7.3) |
Educational, mean (SD), y | 10.9 (3.6) | 10.7 (3.7) | 10.1 (3.7) | 9.4 (3.9) | 9 (3.8) |
Female, n (%) | 694 (59.93) | 329 (64.76) | 124 (67.76) | 52 (68.42) | 15 (50) |
Race, n (%) | |||||
White | 928 (80.14) | 403 (79.33) | 130 (71.04) | 46 (60.53) | 17 (56.67) |
African American | 184 (15.89) | 86 (16.93) | 45 (24.59) | 27 (35.53) | 12 (40) |
Othera | 46 (3.97) | 19 (3.74) | 8 (4.37) | 3 (3.95) | 1 (3.33) |
Number of functional limitations (0–10), mean (SD) | 3.2 (3.2) | 3.8 (3.2) | 4.7 (3.3) | 5.6 (3.4) | 4.9 (3.8) |
Number of chronic conditions (0–8), mean (SD) | 3 (1.6) | 3 (1.6) | 3.1 (1.6) | 3.4 (1.4) | 3.9 (1.6) |
Medicaid, n (%) | |||||
Yes | 177 (15.3) | 85 (16.7) | 39 (21.3) | 21 (27.6) | 9 (30.0) |
No | 940 (81.2) | 407 (80.1) | 134 (73.2) | 52 (68.4) | 21 (70.0) |
Unknown | 41 (3.5) | 16 (3.2) | 10 (5.5) | 3 (4.0) | 0 (0.00) |
Long-term care insurance, n (%) | |||||
Yes | 98 (8.5) | 57 (11.2) | 15 (8.2) | 9 (11.8) | 2 (6.7) |
No | 1014 (87.6) | 436 (85.8) | 158 (86.3) | 63 (82.9) | 27 (90.0) |
Unknown | 46 (4.0) | 15 (3.0) | 10 (5.5) | 4 (5.3) | 1 (3.3) |
Proxy respondent, n (%) | 420 (36.3) | 232 (45.7) | 99 (54.1) | 49 (64.5) | 16 (53.3) |
Net worth, mean (SD), $ | 377,534 (1,585,096) | 320,275 (809,095) | 255,612 (490,421) | 295,121 (758,520) | 195,305 (410,057) |
Marital status, n (%) | |||||
Married/partnered | 529 (45.68) | 215 (42.32) | 73 (39.89) | 31 (40.79) | 12 (40.0) |
Separated /divorced | 92 (7.94) | 37 (7.28) | 15 (8.2) | 5 (6.58) | 3 (10.0) |
Widowed | 513 (44.3) | 248 (48.82) | 91 (49.73) | 39 (51.32) | 14 (46.7) |
Never married | 24 (2.07) | 8 (1.57) | 4 (2.19) | 1 (1.32) | 1 (3.3) |
Number of sons, mean (SD) | 1.7 (1.5) | 1.8 (1.5) | 1.9 (1.5) | 2.1 (1.5) | 2.3 (1.6) |
Number of daughters, mean (SD) | 1.7 (1.6) | 1.7 (1.5) | 1.9 (1.4) | 2 (1.4) | 1.9 (1.6) |
Number of married children, mean (SD) | 2.3 (1.8) | 2.3 (1.8) | 2.3 (1.8) | 2.6 (1.7) | 2.4 (1.5) |
Number of living siblings, mean (SD) | 2 (2.2) | 2.1 (2.3) | 2.3 (2.4) | 2.6 (2.8) | 2.4 (2.3) |
Number of grandchildren, mean (SD) | 6.65 (6.1) | 6.52 (5.7) | 7.63 (6.4) | 8.30 (6.4) | 7.23 (4.3) |
Number of great grandchildren, mean (SD) | 0.23 (0.6) | 0.27 (0.7) | 0.26 (0.7) | 0.25 (0.5) | 0.23 (0.5) |
No caregiver, n (%) | 393 (33.9) | 121 (24.8) | 35 (19.1) | 8 (10.5) | 3 (10.0) |
Spouse, mean (SD) | 0.27 (0.4) | 0.28 (0.5) | 0.30 (0.5) | 0.32 (0.5) | 0.23 (0.4) |
Adult child, mean (SD) | 0.53 (0.9) | 0.71 (1.0) | 0.84 (0.9) | 0.95 (1.0) | 0.93 (0.8) |
Other relative, mean (SD) | 0.24 (0.6) | 0.31 (0.7) | 0.37 (0.7) | 0.47 (0.7) | 0.60 (0.8) |
Nonrelative, mean (SD) | 0.06 (0.3) | 0.05 (0.3) | 0.02 (0.2) | 0.01 (0.1) | 0.10 (0.3) |
Paid caregivers, mean (SD) | 0.21 (0.5) | 0.31 (0.7) | 0.30 (0.6) | 0.48 (0.8) | 0.37 (0.6) |