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Table 3 Compensating for the reduced ability of people with dementia to self-manage: CMOcs, consensus statements and outcomes

From: Developing an Intervention for Fall-Related Injuries in Dementia (DIFRID): an integrated, mixed-methods approach

 

CMOc

Consensus statements

Outcome

Operationalisation

CMOc4

Context: cognitive impairment may limit the ability of people with dementia to comply with instructions and form habits

Mechanism (resource): staff tailor the intervention (e.g. exercises) to the circumstances of people with dementia and embed it in their existing routines

Mechanism (reasoning): intervention becomes routine and habitual

Outcome: more successful rehabilitation can be achieved

Interventions should be based on goals set by the patient and carer

Agreed in round 1 (86–100%)

• Goal Attainment Scaling [91] (GAS) implemented

• Compass of Life [92] included to assist in goal identification

Therapists should work with service users to minimise the risk of falling, as this may improve confidence and enable realistic risk taking.

Falls risk assessment included

Therapists should help the service user and caregiver to develop a meaningful programme of activities

• Assessment records personal preferences, routines, and priorities

• Therapists develop programme of meaningful activities based on information gathered

Therapists should undertake observed activities with the service user to facilitate new learning

Included in assessment

Exercise interventions should be informed by evidence based formats such as the Otago programme but tailored to the circumstances of people with dementia and embedded in their daily life

Agreed in round 2 (69%)

• During training, staff are encouraged to use evidence-based formats creatively

• Training also includes advice on creating programmes and embedding them into routines

• Coloured paper provided for embedding strategies

CMOc5

Context: cognitive impairment may limit the ability of people with dementia to self-manage changes in circumstances

Mechanism (resource): ongoing follow-up is provided

Mechanism (reasoning): staff are able to reinforce previous interventions and adapt them to meet changing needs

Outcome: improvements in mobility are sustained and new falls risks reduced

The total number of physiotherapy sessions available in the first 3 months (including sessions delivered by a support worker) should be 16, 20 or 24

No consensus after 2 rounds (31–62%)

Implemented 2 assessment sessions and maximum 22 therapy sessions delivered by a mix of OT, physiotherapist and support worker

The total number of occupational therapy (OT) sessions available in the first 3 months should be 3–4

CMOc6

Context: the burden on informal carers is high when caring for relatives or friends with dementia who are at risk of falling

Mechanism (resource): carer support and education is provided

Mechanism (reasoning): carer stress is reduced and skills increased

Outcome: carers’ capacity to assist with the delivery of interventions increases

Carer stress should be routinely assessed

Agreed in round 1 (93–100%)

• Carer stress included in assessment

• Training emphasises ensuring carers have capacity to be involved

Therapists should facilitate caregivers, family and friends to adopt a positive approach to risk

• Training includes advice on carer education, including accepting ‘positive risk’

• Carer education leaflets provided for dissemination [93, 94]

Intervention staff should be able to provide basic carer education & support, referring to other agencies as needed

Agreed in round 2 (77%)