Table 1 Study participants
Stakeholders (notation used in quotations) | Inclusion criteria | Methods | Number of participants in interviews (focus groups) | Comparative case studies: number of participants in: | |
|---|---|---|---|---|---|
Interviews (focus groups) | Observation | ||||
National experts (NE) [30] | Professionals with academic and/or clinic expertise in dementia and/or EoLC; policy experts | Telephone and face-to-face semi-structured interviews | 30 (0) | NA | NA |
Service managers (SM) [31] | Professionals managing care homes, hospices and home care services for people with dementia; service development leads in such services | Telephone and face-to-face semi-structured interviews Observation | 33 (0) | 2 (0) | 2 |
Frontline staff (FS) [31] | Care assistants, senior care assistants and nurses in services providing EoLC to people with dementia. (Some service managers and service development leads also took part in focus groups) | Focus groups and observation | 0 (53) | 16 (6) | 76 |
People with dementia (PWD) [32] | People with dementia who had joined the Case Register for those willing to take part in research studies and those registered with Join Dementia Research. People with dementia resident in services participating in the comparative case studies | Individual face-to-face interviews following a Q-sort activity Observation | 11 (0) | 0 (0) | 40 |
Family carers (BC – bereaved carers; CC – current carers) [32] | Bereaved and current carers of people with dementia who received support from participating services. | Face-to-face semi-structured interviews One focus group Observation | 18 (4) | 3 (0) | 2 |
Health care professionals (HCP) | Professionals providing care to residents in comparative case study sites | Face to face semi-structured interviews Observation | NA | 3 (0) | 2 |