No dementia, no cognitive impairment n = 33 | Minimal-mild dementia, moderate cognitive impairment n = 81 | Moderate-severe dementia, severe cognitive impairment n = 66 | Total n = 180 | |||||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
n | (%) | n | (%) | n | (%) | n | (%) | |||||||||
Age at death | ||||||||||||||||
Median [IQR] | 89.7 | [87.1–92.0] | 90.7 | [86.9–94.2] | 92.3 | [88.5–95.7] | 91.3 | [87.5–94.4] | ||||||||
[range] | [81.6–102.8] | [79.2–106.7] | [89.9–100.8] | [79.2–106.7] | ||||||||||||
≤ 89 years old | 19 | (58) | 36 | (44) | 23 | (35) | 78 | (43) | ||||||||
≥ 90 years old | 14 | (42) | 45 | (56) | 43 | (65) | 102 | (57) | ||||||||
Sex | ||||||||||||||||
Male | 16 | (48) | 27 | (33) | 14 | (21) | 57 | (32) | ||||||||
Female | 17 | (52) | 54 | (67) | 52 | (79) | 123 | (68) | ||||||||
Marital status | ||||||||||||||||
Married | 5 | (15) | 16 | (20) | 17 | (26) | 38 | (21) | ||||||||
Widowed | 27 | (82) | 54 | (67) | 42 | (64) | 123 | (68) | ||||||||
Separated/Divorced | 1 | (3) | 0 | (0) | 1 | (2) | 2 | (1) | ||||||||
Single | 0 | (0) | 11 | (14) | 6 | (9) | 17 | (9) | ||||||||
Education | ||||||||||||||||
Left school aged ≤14 | 17 | (52) | 56 | (69) | 42 | (64) | 115 | (64) | ||||||||
Left school aged ≥15 | 16 | (48) | 25 | (31) | 23 | (35) | 64 | (36) | ||||||||
School leaving age unknown | 0 | (0) | 0 | (0) | 1 | (2) | 1 | (<1) | ||||||||
Social classa | ||||||||||||||||
Non-manual | 17 | (52) | 30 | (37) | 32 | (48) | 79 | (44) | ||||||||
Manual | 16 | (48) | 51 | (63) | 32 | (48) | 99 | (55) | ||||||||
Social class unknown | 0 | (0) | 0 | (0) | 2 | (3) | 2 | (1) | ||||||||
Place of residence last interviewb | ||||||||||||||||
Home (house, flat or ‘granny flat’) | 31 | (94) | 73 | (90) | 30 | (45) | 134 | (74) | ||||||||
alone | 20 | (65) | 48 | (66) | 14 | (47) | 82 | (61) | ||||||||
with others | 11 | (35) | 25 | (34) | 16 | (53) | 52 | (39) | ||||||||
Long-term carea | 2 | (6) | 8 | (10) | 36 | (55) | 46 | (26) | ||||||||
residential care home | 2 | (100) | 7 | (88) | 33 | (92) | 42 | (92) | ||||||||
nursing home | 0 | (0) | 0 | (0) | 2 | (6) | 2 | (4) | ||||||||
long-stay ward | 0 | (0) | 1 | (13) | 1 | (3) | 2 | (4) | ||||||||
Disability in activities of daily living when last interviewed | ||||||||||||||||
No disability | 7 | (21) | 2 | (2) | 1 | (2) | 10 | (6) | ||||||||
Disability: instrumental ADLs only | 5 | (15) | 14 | (17) | 1 | (2) | 20 | (11) | ||||||||
Disability: basic + instrumental ADLs | 21 | (64) | 65 | (80) | 64 | (97) | 150 | (83) | ||||||||
Receiving service support (if community-dwelling) | ||||||||||||||||
None | 10 | (32) | 21 | (29) | 10 | (33) | 41 | (31) | ||||||||
Once a week | 7 | (23) | 21 | (29) | 10 | (33) | 38 | (28) | ||||||||
More than once | 14 | (45) | 29 | (40) | 8 | (27) | 51 | (38) | ||||||||
Unknown | 0 | (0) | 2 | (3) | 2 | (7) | 4 | (3) | ||||||||
Hospital admissions between last interview and death | ||||||||||||||||
None | 17 | (52) | 42 | (52) | 39 | (59) | 98 | (54) | ||||||||
One or more | 15 | (45) | 35 | (43) | 25 | (38) | 75 | (42) | ||||||||
Unknown | 1 | (3) | 4 | (5) | 2 | (3) | 7 | (4) | ||||||||
Hospital admissions per year between last interview and death, if any | ||||||||||||||||
Median [IQR] | 0.9 | [0.6–1.7] | 0.7 | [0.5–1.7] | 0.6 | [0.4–1.2] | 0.8 | [0.5–1.6] | ||||||||
[range] | [(0.2–29.6] | [0.2–3.7] | [0.2–4.6] | [0.2–29.6] | ||||||||||||
Duration of final illness | ||||||||||||||||
Less than 1 week | 8 | (24) | 19 | (23) | 17 | (26) | 44 | (24) | ||||||||
7 days up to 1 month | 16 | (49) | 36 | (44) | 28 | (42) | 80 | (44) | ||||||||
1 month or more | 9 | (27) | 26 | (32) | 21 | (32) | 56 | (32) | ||||||||
Place of care during final illnessb | ||||||||||||||||
Home | 11 | (33) | 17 | (21) | 5 | (8) | 33 | (18) | ||||||||
Long-term care | 4 | (12) | 18 | (22) | 50 | (76) | 72 | (40) | ||||||||
Hospital | 18 | (55) | 46 | (57) | 11 | (17) | 75 | (42) | ||||||||
Place of deathb | ||||||||||||||||
Home | 4 | (12) | 12 | (15) | 3 | (5) | 19 | (11) | ||||||||
Long-term care | 7 | (21) | 19 | (23) | 50 | (76) | 76 | (42) | ||||||||
Hospital | 22 | (67) | 50 | (62) | 13 | (20) | 85 | (47) | ||||||||
Place of death not usual address | ||||||||||||||||
No | 7 | (21) | 25 | (31) | 43 | (65) | 75 | (42) | ||||||||
Yes | 26 | (79) | 56 | (69) | 23 | (35) | 105 | (58) | ||||||||
Time from last interview to death | ||||||||||||||||
Years: median [IQR] | 1.8 | [1.2–2.5] | 1.6 | [0.8–2.5] | 2.2 | [1.0–3.3] | 1.8 | [1.0–2.8] | ||||||||
[range] | [0.1–5.3] | [0.3–5.7] | [0.1–6.8] | [0.1–6.8] |