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Table 1 Characteristics of deceased study participants

From: Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study

  No dementia, no cognitive impairment n = 33 Minimal-mild dementia, moderate cognitive impairment n = 81 Moderate-severe dementia, severe cognitive impairment n = 66 Total n = 180
n   (%)   n   (%)   n   (%)   n   (%)  
Age at death
 Median [IQR] 89.7   [87.1–92.0] 90.7   [86.9–94.2] 92.3   [88.5–95.7] 91.3   [87.5–94.4]
 [range]    [81.6–102.8]    [79.2–106.7]    [89.9–100.8]    [79.2–106.7]
 ≤ 89 years old 19   (58)   36   (44)   23   (35)   78   (43)  
 ≥ 90 years old 14   (42)   45   (56)   43   (65)   102   (57)  
Sex
 Male 16   (48)   27   (33)   14   (21)   57   (32)  
 Female 17   (52)   54   (67)   52   (79)   123   (68)  
Marital status
 Married 5   (15)   16   (20)   17   (26)   38   (21)  
 Widowed 27   (82)   54   (67)   42   (64)   123   (68)  
 Separated/Divorced 1   (3)   0   (0)   1   (2)   2   (1)  
 Single 0   (0)   11   (14)   6   (9)   17   (9)  
Education
 Left school aged ≤14 17   (52)   56   (69)   42   (64)   115   (64)  
 Left school aged ≥15 16   (48)   25   (31)   23   (35)   64   (36)  
 School leaving age unknown 0   (0)   0   (0)   1   (2)   1   (<1)  
Social classa
 Non-manual 17   (52)   30   (37)   32   (48)   79   (44)  
 Manual 16   (48)   51   (63)   32   (48)   99   (55)  
 Social class unknown 0   (0)   0   (0)   2   (3)   2   (1)  
Place of residence last interviewb
 Home (house, flat or ‘granny flat’) 31   (94)   73   (90)   30   (45)   134   (74)  
  alone 20   (65)   48   (66)   14   (47)   82   (61)  
  with others 11   (35)   25   (34)   16   (53)   52   (39)  
 Long-term carea 2   (6)   8   (10)   36   (55)   46   (26)  
  residential care home 2   (100)   7   (88)   33   (92)   42   (92)  
  nursing home 0   (0)   0   (0)   2   (6)   2   (4)  
  long-stay ward 0   (0)   1   (13)   1   (3)   2   (4)  
Disability in activities of daily living when last interviewed
 No disability 7   (21)   2   (2)   1   (2)   10   (6)  
 Disability: instrumental ADLs only 5   (15)   14   (17)   1   (2)   20   (11)  
 Disability: basic + instrumental ADLs 21   (64)   65   (80)   64   (97)   150   (83)  
Receiving service support (if community-dwelling)
 None 10   (32)   21   (29)   10   (33)   41   (31)  
 Once a week 7   (23)   21   (29)   10   (33)   38   (28)  
 More than once 14   (45)   29   (40)   8   (27)   51   (38)  
 Unknown 0   (0)   2   (3)   2   (7)   4   (3)  
Hospital admissions between last interview and death
 None 17   (52)   42   (52)   39   (59)   98   (54)  
 One or more 15   (45)   35   (43)   25   (38)   75   (42)  
 Unknown 1   (3)   4   (5)   2   (3)   7   (4)  
Hospital admissions per year between last interview and death, if any
 Median [IQR] 0.9   [0.6–1.7] 0.7   [0.5–1.7] 0.6   [0.4–1.2] 0.8   [0.5–1.6]
 [range]    [(0.2–29.6]    [0.2–3.7]    [0.2–4.6]    [0.2–29.6]
Duration of final illness
 Less than 1 week 8   (24)   19   (23)   17   (26)   44   (24)  
 7 days up to 1 month 16   (49)   36   (44)   28   (42)   80   (44)  
 1 month or more 9   (27)   26   (32)   21   (32)   56   (32)  
Place of care during final illnessb
 Home 11   (33)   17   (21)   5   (8)   33   (18)  
 Long-term care 4   (12)   18   (22)   50   (76)   72   (40)  
 Hospital 18   (55)   46   (57)   11   (17)   75   (42)  
Place of deathb
 Home 4   (12)   12   (15)   3   (5)   19   (11)  
 Long-term care 7   (21)   19   (23)   50   (76)   76   (42)  
 Hospital 22   (67)   50   (62)   13   (20)   85   (47)  
Place of death not usual address
 No 7   (21)   25   (31)   43   (65)   75   (42)  
 Yes 26   (79)   56   (69)   23   (35)   105   (58)  
Time from last interview to death
 Years: median [IQR] 1.8   [1.2–2.5] 1.6   [0.8–2.5] 2.2   [1.0–3.3] 1.8   [1.0–2.8]
 [range]    [0.1–5.3]    [0.3–5.7]    [0.1–6.8]    [0.1–6.8]
  1. Footnotes
  2. Column percentages total 100% - apparent slight discrepancies due to rounding
  3. aSocial class categorised following contemporary UK Office of National Statistics grading of occupation reported at baseline interview:
  4. Non-manual = I, II or IIIa, Manual = IIIb, IV or V
  5. bHome: community-dwelling in a house, flat, ‘granny flat’ (part of a relative’s home) or sheltered accommodation
  6. Long-term care: in an older people’s residential home, nursing home or long-stay ward
  7. Hospital: in an acute hospital
  8. Characteristics of the deceased, shown separately for study participants of different cognitive status and overall, summarise data drawn from interviews with the participants before they died and proxy informants after the participant died, CC75C study administrative data and death certificates