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Table 1 Characteristics of patients and substitute decision-makers (n = 45)

From: Factors influencing decision regret regarding placement of a PEG among substitute decision-makers of older persons in Japan: a prospective study

Patients
Mean age (years) 84.1 ± 8.3  
Female 24 53.3%
Diagnosis Aspiration pneumonia 17  
Dementia 11  
Cerebral infarction 11  
Parkinson disease 2  
Depression 2  
Pneumonia 2  
Intractable neurological diseases 2  
Cancer 1  
Other disease 13  
(multiple answers allowed)   
Setting Acute care hospital 16 35.6%
Long-term care hospital 8 17.8%
Mixed care hospital 10 22.2%
Nursing home 8 17.7%
Patients’ home 3 6.7%
Physical activity Bed-bound (cannot toss and turn) 24 53.3%
Bed-bound (can toss and turn) 10 22.2%
Primarily use a wheelchair 4 8.9%
Ambulant 4 8.9%
Other level 3 6.7%
Communicative ability Can easily communicate 7 15.6%
Cannot sometimes communicate 22 48.9%
Cannot communicate at all 16 35.6%
Ability to convey wishes about PEG placement Able to convey own wishes 12 26.7%
Unable to convey own wishes 28 62.2%
Neither 5 11.1%
Wishes regarding PEG placement Place PEG 7/12 58.3%
Withhold PEG 5/12 41.7%
Substitute decision-makers
Mean age (years) 62.1 ± 10.5  
Male 25 55.6%
Relationship to the patient Child 24 53.3%
Spouse 11 24.4%
Son/daughter-in-law 5 11.1%
Nephew/niece 1 2.2%
Brother/sister-in-law 1 2.2%
Other relative 3 6.7%
How decision aid was obtained Website 44 97.8%
Medical staff 1 2.2%
Read the contents of the decision aid All 43 95.6%
Some 1 2.2%
None 1 2.2%
Consulted with Physician in charge of the patient 11  
Care manager 6  
Nurse 5  
Physician not in charge of the patient 2  
Social worker 1  
Nobody (multiple answers allowed) 23  
Decision in accordance with the patient’s wishes PEG placed 7/7 100%
PEG withheld 5/5 100%