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Table 3 Main findings sorted as themes, code groups, and sub-code groups

From: The influence of day care centres designed for people with dementia on family caregivers – a qualitative study

Themes Code groups Sub code groups
The complex caring role of the family caregiver
Added responsibilities and new tasks Guiding and assistance in activities of daily living Providing assistance in
• practical tasks
• personal hygiene
Being sensitive to the persons’ psychological needs
Adapting to changes in person’s social skills
Emotional and relational challenges Distressing emotions Feeling
• guilty conscience
• sorry for
• being tied down
Demanding interaction Increased dependency
Disagreements and misunderstandings
Confrontations
Nagging
Lack of interests and engagement
Adapt to the needs of the person with dementia
Resources affecting the situation positively Acceptation and adaptation Accept the situation
Find new solutions
Use humor
With God’s help
Support and help Help from friends and family
Seek knowledge in the literature
Receive professional help
Positive changes in the relationship Doing things together
Positive contact
Positive feedback
The influence of the DCCs on the family caregiver situation
Respite – assistance to meet the needs of the person with dementia More fellowship Inclusion
Social support
Meeting basic needs Nutrition, sleep, and rest
Improved structure in everyday life Schedule of daily events
More variation, activity and meaning Physical activity
Do something meaningful
Get out of home
Positive and negative influence on the relationship Higher quality of time spent together Less nagging
More calm, tired, and positively
exhausted
Something to talk about
Easier to cooperate with Increased wellbeing
Increased engagement and level of function
Fewer conflicts
Hard feelings and situations Tricking and lying
Increased separation time - more time to meet their own needs Increased time to spend on own needs Rest and relaxation Activities
Activities
Work undisturbed
Practical activities
Family and friends
Feeling of freedom
Needs that are not met by the DCCs Flexibility Flexible and long opening hours and days
Information, communication and information Needs of
• information about schedule and content of activities in the DCCs
• feedback about the participant
• information about dementia-related topics (was obtained in classes for family carers )
Quality and content designed for people withdementia Lack of tailored activities
Lack of inclusion and social support