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Table 2 Examples of professional panel members’ comments about areas of difference

From: Development of guidelines for family and non-professional helpers on assisting an older person who is developing cognitive impairment or has dementia: a Delphi expert consensus study

Finding Supporting comments
Action being perceived as requiring helper to act in the role of a professional “I think it’s important to add in that fitness to drive is a medical decision, not a personal one. Family can be vital in facilitating how smoothly the transition is made, but they don’t decide.”
  “The helper’s role is supportive, not responsible for all these aspects.”
  “Will NOT always be appropriate for the helper to discuss these topics. Think it is important for helper to be aware of these issues but not to automatically assume responsibility…The helper knowledge of these issues may be very limited.”
  “This information would be likely to come from a registered health professional rather than a helper in the home environment.”
Action that may be appropriate for some helpers, but not others “Depends who helper is. If it’s family member they should not be having to make judgements re driving safety and stopping driving.”
  “I think the role of the helper in making decisions about driving very much depends on their relationship with the person.”
  “The role a particular helper has in making the person aware (or not) of his/her diagnosis depends very much on the relationship between them and the legal standing of the helper—next of kin…etc).”
  “This also depends on the relationship of the helper, contractual obligations and the individual person with dementia.”