Table 2 Within-group and between- group differences in mean scores at T0 and T1

Perceived health

Perceived health (0–100)

46.91

−1.23

44.00

−6.33*

Perceived change in health (0–100)

46.30

−2.16

46.00

−2.00

Subjective burden

CarerQoL sum score (0–100)

84.93#

3.88*

80.73

−0.55

CarerQoL-VAS (0–10)

7.16

−0.07

6.97

−0.49*

Process Utility (−10-10)

2.59

−0.09

2.38

−0.71#

Self -Rated Burden (SRB) Scale (0–10)

3.97

0.54#

3.95

0.63#

Objective burden

% of caregivers performing household tasks

87.2%

7.7%

76.7%

−1.4%

% of caregivers performing personal care tasks

30.5%

4.9%

41.3%

14.6%*

% of caregivers performing instrumental care tasks

79.3%

−4.8%

69.7%

−6.6%

% reporting other informal caregivers

45.0%

6.2%

34.2%

4.1%

Hours spent per week on household tasks

7.25

1.46

8.93

2.44#

Hours spent per week on personal care tasks

1.86

0.76#

2.17

0.50

Hours spent per week on instrumental care tasks

2.51

0.46

1.79

−0.43

Total hours spent per week

11.15

2.44#

12.53

2.25

Total hours spent per week (incl. other caregivers)

13.25

3.14*

13.03

1.57

Quality of life

Quality of life (0–100)

55.63

−1.87

54.67

−5.67*

Change in quality of life (0–100)

48.15

−4.63#

46.33

−4.67#

Rating of quality of life (0–10)

7.35

−0.04

7.37

−0.29*