An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts

Van Houtven, Courtney Harold; Voils, Corrine I; Weinberger, Morris

doi:10.1186/1471-2318-11-77

Table 1 Studies included in the literature review, and checklist of features and measures

From: An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts

Authors	Publication Year	Disease/Condition	Model/Theory	Caregiving Activities (ACT)	Caregiver Outcomes? (CG)	Recipient Outcomes? (CR)	All Three?	ACT/CG/CR¹Outcomes?
Akkerman, Ostwald et al.	2004	Dementia	√		√			CG
Albert, Im et al.	2002	TBI	√	√	√			ACT/CG
Bakas, Farran et al	2009	Stroke	√		√	√		CG/CR
Bank, Arguelles et al	2006	Dementia		√	√			ACT/CG
Beauchamp Irvine et al	2005	Dementia	√	√	√			ACT/CG
Belle, Burgio et al	2006	Dementia		√	√			ACT/CG
Boerner, Schulz et al	2004	Alzheimer's	√		√			CG
Bourgeois, Schulz et al	2002	Dementia		√	√			ACT/CG
Burgio, Stevens et al	2003	Dementia		√	√			ACT/CG
Burns, Nichols et al	2003	Dementia			√			CG
Callahan, Boustani et al	2006	Alzheimer's	√		√	√		CG/CR
Carneval, Anselmi et al	2002	Traumatic Brain Injury			√			CG
Carter	2006	Cancer			√			CG
Castro, Wilcox et al	2002	Dementia	√	√	√			ACT/CG
Chee, Gitlin et al	2007	Alzheimer's			√			CG
Clark, Lester et al	2000	Multimorbidity	√	√	√			ACT/CG
Clark, Rummans, et al	2006	Cancer			√			CG
Connell, Janevic et al	2009	Dementia	√	√	√			ACT/CG
Coon, Thompson et al	2003	Dementia	√		√			CG
Corcoran, Gitlin et al	2001	Dementia			√			CG
Dellasega, Zerbe et al	2002	Frailty		√	√	√	yes	ACT/CG/CR
Devor, Renvall et al	2008	Dementia		√	√			ACT/CG
Dew, Goycoolea et al	2004	Heart	√		√			CG
Drentea, Clay et al	2006	Alzheimer's		√	√			ACT/CG
Eisdorfer, Czaja, et al	2003	Dementia		√	√			ACT/CG
Elliott, Brossart et al	2009	Spinal cord	√		√			CG
Elliott, Berry et al	2008	Spinal cord	√	√	√			ACT/CG
Farran, Gilley et al	2004	Dementia			√			CG
Farran, Gilley et al	2007	Dementia	√	√	√	√	yes	ACT/CG/CR
Farran, Stafileno et al	2008	Dementia	√		√			CG
Finkel, Schulz et al	2007	Dementia		√	√			ACT/CG
Fortinski, Kulldorff et al	2009	Dementia	√		√			CG
Gallagher-Thompson, Coon et al	2003	Dementia		√		√		ACT/CR
Gallagher-Thompson, Gray et al	2007	Alzheimer's	√		√	√		CG/CR
Gallagher-Thompson, Lovett et al	2000	Dementia	√	√	√	√	yes	ACT/CG/CR
Gant, Steffen et al	2007	Dementia		√	√	√	yes	ACT/CG/CR
Garand, Buckwalter et al	2002	Dementia	√		√			CG
Gaugler, Roth et al	2008	Alzheimer's			√			CG
Gerdner, Buckwalter et al	2002	Dementia	√			√		CR
Gitlin, Burgio et al	2003	Alzheimer's	√		√	√		CG/CR
Gitlin, Corcoran et al	2001	Alzheimer's	√	√		√		ACT/CR
Gitlin, Hauck et al	2005	Alzheimer's		√	√	√	yes	ACT/CG/CR
Gitlin, Hauck et al	2006	Dementia	√	√	√	√	yes	ACT/CG/CR
Gitlin, Reever et al	2006	Alzheimer's	√	√	√	√	yes	ACT/CG/CR
Gitlin, Winter et al	2003	Alzheimer's		√	√	√	yes	ACT/CG/CR
Gitlin, Winter, Burke et al	2008	Alzheimer's	√	√	√			ACT/CG
Given, Given, Sikorskii et al	2006	Cancer	√	√	√			ACT/CG
Gluekhauf, Sharma et al	2007	Dementia		√	√			ACT/CG
Gonyea, O'Connor et al	2006	Alzheimer's				√		CR
Grant, Elliot, Weaver et al	2002	Stroke		√	√			ACT/CG
Grant, McKibbin et al	2004	Dementia			√			CG
Haley, Bergman et al	2008	Dementia			√			CG
Haley, Gitlin et al.	2004	Alzheimer's	√	√	√			ACT/CG
Hartke, King et al	2003	Stroke				√		CR
Hazel, McDonnell et al	2004	Schizophrenia	√			√		CR
Hendrix, Abernathy et al	2009	Cancer		√	√			ACT/CG
Hepburn, Lewis et al	2003	Dementia		√	√	√	yes	ACT/CG/CR
Hepburn, Lewis et al	2007	Dementia	√	√	√			ACT/CG
Hepburn, Lewis, et al	2005	Alzheimer's	√	√	√	√	yes	ACT/CG/CR
Hepburn, Tornatore, et al	2001	Dementia	√		√	√		CG/CR
Hilgeman, Burgio, et al	2007	Alzheimer's	√		√	√		CG/CR
Holland, Courier et al	2009	Dementia	√		√			CG
Huyn-Hohnbaum, Villa et al	2008	Disability	√		√			CG
Jang, Lay et al	2004	Alzheimer's			√			CG
King, Baumann et al	2002	Dementia			√			CG
King, Hartke et al	2007	Stroke	√	√	√	√	yes	ACT/CG/CR
Kopelowicz, Zarate et al	2003	Schizophrenia			√	√		CG/CR
Korn, Logsdon, et al	2009	Dementia			√	√		CG/CR
Kuhn, Deleon et al	2001	Alzheimer's	√	√	√	√	yes	ACT/CG/CR
Kuhn, Fulton et al	2004	Alzheimer's			√	√		CG/CR
Kurtz, Kurtz et al	2005	Cancer	√		√	√		CG/CR
Kwak, Salmon et al	2007	End-of-life	√		√	√		CG/CR
Lenz, Perkins et al	2000	Heart	√		√	√		CG/CR
Leutz, Capitman, et al	2002	Multimorbidity		√	√	√	yes	ACT/CG/CR
Logsdon, McCurry, et al	2006	Dementia			√	√		CG/CR
MacKenzie, Wiprzycka et al	2007	Multimorbidity			√	√		CG/CR
Mahoney, Mutschler et al	2008	Dementia	√	√	√	√	yes	ACT/CG/CR
Mahoney, Tarlow et al	2003	Dementia	√		√	√		CG/CR
Martin-Cook, David et al	2005	Dementia		√	√	√	yes	ACT/CG/CR
McCurry, Gibbons et al	2003	Alzheimer's			√	√		CG/CR
McCurry, Gibbons et al	2005	Alzheimer's			√	√		CG/CR
McGinnis, Schulz et al	2006	Dementia	√		√	√		CG/CR
McMillan, Small et al	2006	Cancer	√	√	√	√	yes	ACT/CG/CR
McMillan, Small et al	2007	Cancer	√			√		CR
Mittelman, Haley et al	2006	Alzheimer's				√		CR
Mittelman, Roth et al	2007	Alzheimer's			√			CG
Mittelman, Roth et al (J Psych)	2004	Alzheimer's			√	√		CG/CR
Mittelman, Roth et al (J Geron)	2004	Alzheimer's	√			√		CR
Nichols, Chang et al	2008	Dementia				√		CR
Northouse, Kershaw et al	2005	Cancer	√	√	√	√	yes	ACT/CG/CR
Ostwald, Hepburn et al	2003	Dementia	√		√			CG
Pasacreta, Barg et al	2000	Cancer		√	√			ACT/CG
Phillips	2008	Dementia	√		√			CG
Pillemer and Suitor	2002	Alzheimer's			√			CG
Powers	2006	Multimorbidity		√				ACT
Quayhagen, Corbeil et al	2000	Dementia				√		CR
Rabinowitz, Mausbach et al	2006	Dementia		√	√			ACT/CG
Rabinowitz, Mausbach, et al	2007	Dementia	√	√	√			ACT/CG
Rexilius, Mundt et al	2002	Stem cell trans			√			CG
Rivera, Elliot et al	2008	Traumatic Brain Injury	√	√	√			ACT/CG
Rose, Radciewicz et al	2008	Cancer	√		√			CG
Rose, Taylor et al	2009	Dementia	√	√	√			ACT/CG
Roth, Mittleman et al	2005	Alzheimer's		√	√	√	yes	ACT/CG/CR
Schulz, Czaja et al	2009	Spinal cord	√		√	√		CG/CR
Schwarz, Mion et al	2008	Stroke		√	√	√	yes	ACT/CG/CR
Smith, Toseland et al	2006	Frailty		√	√			ACT/CG
Stern, d"Ambrosio et al	2008	Driving Cessation		√	√			ACT/CG
Teri, Gibbons et al	2003	Alzheimer's	√			√		CR
Teri, McCurry et al	2005	Alzheimer's		√	√	√	yes	ACT/CG/CR
Tompkins, Bell, 2009	2009	Dementia			√	√		CG/CR
Toseland, Smith et al	2006	Alzheimer's				√		CR
Tremont, Davis et al	2008	Dementia	√	√	√	√	yes	ACT/CG/CR
Vickrey, Mittman et al	2006	Dementia		√	√	√	yes	ACT/CG/CR
Waelde, Thompson et al	2004	Dementia		√	√	√	yes	ACT/CG/CR
Walsh, Martin et al	2004	Cancer			√	√		CG/CR
Walsh, Radcliff et al	2007	Cancer	√		√	√		CG/CR
Walsh, Schmidt et al	2003	Cancer	√	√	√	√	yes	ACT/CG/CR
Weuve, Boult et al	2000	High risk			√	√		CG/CR
Winter, Gitlin et al	2007	Dementia			√	√		CG/CR
Wolff, Rand-Giovannetti et al	2009	End-of-life	√		√	√		CG/CR
Won, Fitts et al	2008	Disability	√		√	√		CG/CR

Note: 1. ACT = caregiver activities; CG = caregiver outcomes; CR = Care recipient outcomes.

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ISSN: 1471-2318

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