Table 3 An example of the analysis path

Stage 3 on the Global Deterioration Scale/Functional Assessment Staging latest, it’s been too late for care planning

All clients don’t understand the diagnosis and what it means

During subsequent home visits by the nurse, the progression can sometimes be talked about

There are clients who don’t understand that they have a dementia illness, they lack illness insight and even deny illness

When clients come in for assessment, they’re already in stage 3 or 4

At stage 4 you no longer have the capacity to make your own decisions

Such clients don’t want to think about the future or a living will as they perceive themselves to be young and healthy

Clients ought to come for assessment in an earlier stage

When the client comes for assessment the illness can have progressed far

Not everyone is interested in an assessment

Barriers to contact the clinic can be challenging

Sometimes the client’s illness has progressed far

Single clients often come to assessment late in the trajectory

Delayed diagnosis

The person with dementia: losing capacity for self-determination, losing oneself