Table 1 Item distribution of the 36 questions within the physical, psychological, social, and spiritual dimensions of the questionnaire.
Item number and question | Response options | Missing n (%) | ||||
|---|---|---|---|---|---|---|
Physical Dimension (P1-P9) | Not at all n (%) | A little bit n (%) | Somewhat n (%) | Quite a bit/lot n (%) | Very much n (%) | |
P1. Getting outside the home | 129(48) | 40(15) | 30(11) | 36(13) | 34(13) | 0 |
P2. Limitations in dressing or bathing | 165(61) | 52(19) | 25(9) | 14(5) | 13(5) | 0 |
P3. Limitations in daily activities | 92(34) | 60(22) | 55(20) | 44(16) | 18(7) | 0 |
P6. Pain | 27(10) | 53(20) | 63(23) | 61(23) | 65(24) | 0 |
P7. Pain interfere with daily living | 61(23) | 68(25) | 58(22) | 53(20) | 29(11) | 0 |
P8. Fatigue in general | 35(13) | 55(20) | 62(23) | 80(30) | 37(14) | 0 |
P9. Fatigue interfere with physical functioning | 41(15) | 71(26) | 58(22) | 60(22) | 39(15) | 0 |
Very much | Quite a bit | Somewhat | A little bit | Not at all | ||
P4. Managing personal hygiene | 186(69) | 45(17) | 25(9) | 11(4) | 2(1) | 0 |
Excellent | Very Good | Good | Fair | Poor | ||
P5. Overall physical health | 46(17) | 86(32) | 62(23) | 58(22) | 17(6) | 0 |
Psychological Dimension (Ps1-Ps9) | Very confident | Quite confident | Somewhat confident | Little confident | Not at all confident | |
Ps1. Symptom management at home | 49(18) | 94(35) | 76(28) | 36(13) | 14(5) | 0 |
Ps2. Humoristic despite symptoms | 92(34) | 100(37) | 54(20) | 20(7) | 3(1) | 0 |
Ps3. Coping daily living | 56(21) | 108(40) | 62(23) | 37(14) | 6(2) | 0 |
Ps4. Coping worsening in health | 57(21) | 110(41) | 65(24) | 28(10) | 9(3) | 0 |
Very much | Quite a bit | Somewhat | A little bit | Not at all | ||
Ps5. Comfortable of needing help | 39(15) | 69(26) | 76(28) | 39(15) | 46(17) | 0 |
Ps6. Self-control in life | 96(36) | 95(35) | 56(21) | 17(6) | 5(2) | 0 |
Ps7. Positive about the future | 76(28) | 87(32) | 67(25) | 34(13) | 5(2) | 0 |
Excellent | Very Good | Good | Fair | Poor | ||
Ps8. Overall mood | 52(19) | 106(39) | 65(24) | 37(14) | 9(3) | 0 |
Ps9. Overall quality of life | 33(12) | 90(33) | 79(29) | 53(20) | 14(5) | 0 |
Social Dimension (1S-9S) | Always | Usually | Sometimes | Rarely | Never | |
S1. Talk about heath | 163(61) | 61(23) | 28(10) | 12(4) | 4(1) | 1(0.4) |
S2. Share worries and fears | 158(59) | 57(21) | 33(12) | 13(5) | 7(3) | 1(0.4) |
S3. Support from family | 203(75) | 33(12) | 15(6) | 6(2) | 11(4) | 1(0.4) |
S4. Support from others | 97(36) | 77(29) | 55(20) | 17(6) | 22(8) | 1(0.4) |
S5. Support from GP | 120(45) | 102(38) | 29(11) | 17(6) | 0(0) | 1(0.4) |
S6. Feeling needed | 131(49) | 77(29) | 37(14) | 11(4) | 12(4) | 1(0.4) |
Not at all | A little bit | Somewhat | Quite a bit | Very much | ||
S7. Feeling lonely | 180(67) | 48(18) | 22(8) | 13(3) | 5(2) | 1(0.4) |
S8. Burden to others | 167(62) | 66(25) | 25(9) | 8(3) | 2(1) | 1(0.4) |
S9. Limitations in participating social activities | 89(33) | 74(28) | 47(17) | 34(13) | 24(9) | 1(0.4) |
Spiritual Dimension (Sp1-Sp9) | Very much | Quite a bit | Somewhat | A little bit | Not at all | |
Sp1 Spiritual person | 12(4) | 27(10) | 37(14) | 31(12) | 161(60) | 1(0.4) |
Sp2. Religious person | 17(6) | 26(10) | 46(17) | 76(28) | 103(38) | 1(0.4) |
Sp3. Spiritual or religious beliefs | 15(6) | 33(12) | 32(12) | 38(14) | 72(27) | 79(30) |
Sp4. Praying | 15(6) | 19(7) | 20(7) | 38(14) | 98(36) | 79(30) |
Sp5. Beliefs strengthen when ill | 12(4) | 12(4) | 31(12) | 31(12) | 104(39) | 79(30) |
Sp6. Meaning and purpose in life | 8(3) | 26(10) | 81(30) | 77(29) | 76(28) | 1(0.4) |
Sp7. Thoughts of death | 20(7) | 37(14) | 85(32) | 73(27) | 53(20) | 1(0.4) |
Sp8. Planned funeral | 29(11) | 27(10) | 35(13) | 60(22) | 116(43) | 2(0.7) |
Perfectly acceptable | Acceptable | Neutral | Unacceptable | Totally unacceptable | ||
Sp9. Acceptable to talk about death | 35(13) | 96(36) | 110(41) | 19(7) | 6(2) | 3(1) |