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Table 5 List of indicators for measuring programme outcomes

From: Protocol for a mixed-methods and multi-site assessment of the implementation process and outcomes of a new community-based frailty programme

Outcomes

Assessment

Measure

Patient engagement

Shared decision making

collaboRATE For Patient – 5-point anchor scale

Patient’s experience of shared decision making

Patient activation

13-item Patient Activation Measure (PAM-13)

Level of patient activation, including ability to self-manage, maintain functioning, collaborate with healthcare providers, and access healthcare services

Healthcare experiences

Experience of care delivered

Consumer Assessment of Healthcare Providers and System Clinician & Group Survey Version 3.0 (CG-CAHPS)

Patients’ experience with healthcare providers and staff in doctors’ offices

Health status, adverse outcomes and quality of life

Functional status

Barthel Index of Activities of Daily Living (ADL)

Functional independence in ADL, such as feeding, bathing, and continence

Frequency of falls

Count of falls

Marker of poor health and declining function

Health-related quality of life

EuroOol-5D-5 L

Health-related quality of life in domains including mobility, self-care, usual activities, pain, anxiety and depression

19-item Quality of Life Scale (CASP-19)

Quality of life in later life in domains including control, autonomy, self-realisation, and pleasure

Caregiver burden

Level of caregiver burden

Zarit Burden Interview (ZBI)

Level of burden experienced by primary caregivers of older adults with dementia

Direct and indirect cost

Societal cost

Client Service Receipt Inventory (CSRI)

Health, social and informal care use and cost