Table 1 Overview of studies
Study | Aim | Inclusion criteria/Sample | Settinga | Themes |
|---|---|---|---|---|
Behm et al. 2013 [33] Sweden | Description of older people's experiences of a preventive home visit and meaning for (future) health | N = 17 participants aged 80 or older who live at home, are cognitively intact and are independent of help, recruited via “Elderly persons in the risk zone” intervention (seven men, twelve women) | Home visits | • The preventive home visit (PHV) made me visible and proved my human value • The PHV brought a feeling of security • The PHV gave an incentive to action • The PHV was not for me |
Berkelmans et al. 2010 [34] Netherlands | Description of non-medical service and product attributes older people value in GP care | N = 13 participants (mean age 81.2 years), recruited via four GP practices (six men, seven women) | Ambulatory general practice or specialist care | • Continuity of caregiver • Distance to the practice • Accessibility • Expertise and trust • Attitude • Information • Pro-active Initiatives • Waiting time in the waiting room • Free choice of GP |
Bjornsdottir 2018 [35] Iceland | Understanding of the nature of home care nursing practice | N = 15 home care nursing clients aged 80 or over, identified as frail, recruited via home care nurses (six men, nine women) | Home care and community-based long-term care | • The world at home • Relating to an ailing body and treatments • Give-and-take – life in relations • Home care services as world making |
Faeo et al. 2020 [36] Norway | Description of experiences and attitudes of home-dwelling persons with dementia regarding assistive technology, volunteer support, home care services and day care centers | N = 12 participants aged 65 and over (mean age 82 years) with a registered dementia diagnosis who live at home, recruited via four daycare centers (six men, six women) | Ambulatory general practice or specialist care | • (Assistive technology – safety with side effects) • (Volunteer support – the complexity of preferences) • Home care services – the diversity of car experience • Daycare centers – it’s all in the details |
Gowing et al. 2016 [37] UK | Exploration of views and experiences of patients and carers regarding a case management programme | N = 16 older participants (median age 82.5 years) enrolled in the Northumberland High Risk Patient Programme who live at home and do not receive palliative care, recruited via 11 GP practices (five men, eleven women) (N = 7 family members) | Case management | • Awareness and understanding of the NHRPP • Confidence in the primary healthcare team • Limitations of home care • The active role of being a patient |
Jarling et al. 2017 Sweden | Description of meaning of home care from the perspective of multimorbid older people | N = 12 home care clients aged 75 or older (77–90 years) with multimorbidity who live alone, recruited via the municipality’s contact person (four men, eight women) | Home care and community-based long-term care | • Becoming a guest in your own home • Adapting to a caring culture • Feeling exposed • Unable to influence care • Forced relations |
King et al. 2017 New Zealand | Description of experiences of older people and health professionals regarding a primary healthcare gerontology nurse specialist role | N = 5 participants aged 75 and older (mean age > 80 years) who received the intervention, recruited via primary healthcare practices (selection from a random numbers table; two men, three women) (N = 6 healthcare professionals) | Case management | • Holistic expertise • Communication • (Competency) • (Service delivery) |
Krothe 1992 [38] USA | Description of community-based services needed by older people to avoid institutionalization | N = 9 clients of an Area Agency on Ageing (mean age 81.4 years), recruited via the agency’s case manager (two men, seven women) | Home care and community-based long-term care | • Maintaining control • Goal setting • The nursing home • Role of family • Essential formal services • Informal help/assistive devices • Significance of home and possessions • Day to day activities/community connectedness • Finding out about CB-LTC • Future needs for CB-LTC and assisted living • Significance of past experience • Loss theme • Spirituality • Listening for individualized needs • Some elderly people are like that • Being alone and loneliness |
Martin-Matthews & Sims-Gould 2008 [39] Canada | Description of salient home support services issues from the perspective of employers, home support workers and clients | N = 14 home care clients (mean age 83 years), recruited via home support agencies (four men, ten women) (N = 11 home care employers and n = 32 home support workers) | Home care and community-based long-term care | • (Recruitment and retention) • (Increasing complexity of client needs) • (Acknowledgement of the needs and desires of clients) • (Appropriateness of home support as part of the healthcare continuum) • (Scheduling and time demand) • (Tension in providing intimate ongoing care at an emotional distance) • (Balance between tasks outlined in the care plan and the needs and wants of elderly clients) • Ongoing need to prepare for and manage service • Desire and need for companionship |
Michel et al. 2015 [40] Brazil | Analysis of similarities and dissimilarities in the meanings assigned to healthcare by older people and nursing professionals | N = 10 participants aged 80 and over who were users of the basic health unit for at least six months (five men, five women) (N = 10 nursing professionals) | Ambulatory general practice or specialist care | • “Because we are older”: reasons to provide health care to long-lived elders • “Being well served” and more help at home: attributes of health care for long-lived elders • Health services and practices that do good: used to provide health care to long-lived elders • (Old age and vulnerability: reasons to provide health care to long-lived elders) • (Deficits in proper care: attributes of health care for long-lives elders) • (Responsibility of families and guidance: used to provide health care to long-lives elders) |
Modig et al. 2012 [41] Sweden | Description of frail older people's experiences regarding information about their medications | N = 12 participants aged 65 and older (median age 80.5 years), needing help with two or more ADL, who were admitted to hospital twice or more, had at least four outpatient contacts in the prior twelve months, and received cardiovascular medication; recruited via a case manager intervention study (five men, seven women) | Ambulatory general practice or specialist care | • Comfortable with information • Insecure with information |
Moe et al. 2013 [42] Norway | Description of the meaning of receiving home nursing care for chronically ill older people living at home | N = 11 participants aged 80 and over, living at home with chronic conditions, and receiving home nursing care (five men, six women) | Home care and community-based long-term care | • Being ill and dependent on help • Being at the mercy of help • Feeling inferior as human being |
Sandberg et al. 2014 [43] Sweden | Description of frail older people's and case manager's experiences of a case management intervention | N = 14 participants aged 65 or older (mean age 83 years) who received the intervention, lived in an ordinary home, needed help for at least two ADL, were admitted to hospital at least twice and had for outpatient care contacts in the prior twelve months; recruited via one university hospital, four primary care centers, the municipal home care organization (four men, ten women) (N = 6 case managers) | Case management | • The case manager as a helping hand • Case management as a possible additional resource • (The case manager as a coaching guard) • (Case management as entering a new professional role) |
Schulman-Green et al. 2006 [44] USA | Description of older adults’ interaction regarding their life and health goals during the clinical encounter | N = 42 participants aged 60 or over (mean age 81 years) living in a high-income independent living facility, a subsidized assisted living facility or a private condominium complex, identified by a contact person for each residential site (15 men, 25 women) (N = 11 clinicians) | Ambulatory general practice or specialist care | • Not a priority given limited time • Focus on symptoms • Clinician-patient mutual perception of disinterest in goal setting • Presumption that all patients’ goals are the same |
Soodeen et al. 2007 [45] Canada | Description of home care experiences of physically impaired older people and their spouses | N = 9 home care receivers (mean age 80 years) with at least one ADL or IADL and one chronic condition, recruited via newspaper a article, referrals from seniors housing complexes and the staff of church-run programs (three men, six women) (N = 9 spouses) | Home care and community-based long-term care | • Independence • Developing a trusting relationship with home care workers • (Relief) • (Continuity) |
Spoorenberg et al. 2015 [46] Netherlands | Description of older adults’ perspective regarding integrated care and support | N = 23 participants of the intervention (mean age 82 years); frail people or those with complex care needs were recruited by their case managers; robust people were recruited by project managers (ten men, 13 women) | Ambulatory general practice or specialist care | • Experiences with aging ◦ Struggling with health ◦ Increasing dependency ◦ Decreasing social interaction ◦ Loss of control ◦ Fears • Experiences with Embrace ◦ Relationship with the case manager ◦ Interactions ◦ Feeling in control, safe and secure |
Tiilikainen et al. 2019 [47] Finland | Description of older people's perceptions of quality of life from the perspective of access and use of health and social care services | N = 19 participants who lived alone (mean age 80 years) and received health and social services during the past six months, recruited via local health and social service professionals (four men, 15 women) | Ambulatory general practice or specialist care | • Access to services and information • Recognition inside the services |
Toien et al. 2015 [48] Norway | Description of older people's perspectives regarding preventive home visits | N = 10 participants (mean age 85.5 years) who had at least six years of experience with the preventive home visits service and with various characteristics, recruited via a municipal health care service nurse (four men, 6 women) | Home visits | • To feel safe • To manage daily life • To live well • To be somebody |
Turjamaa et al. 2014 [49] Finland | Description of older people's and practical nurses' perspectives regarding available home care and enablers for continuity of living home | N = 23 home care clients aged 75 or older (mean age 84 years) with at least one or two home visits a day, recruited via practical nurses (N = 14 practical nurses) | Home care and community-based long-term care | • Organisationally driven care • Individual encountering the multifaceted system |
van Blijswijk et al. 2018 [50] Netherlands | Description of older people's experiences regarding hindering health complaints, how they deal with them and what they expect from their GP | N = 24 participants aged 80 or older with pain and/or problems with walking/standing, recruited via an integrated care trial (six men, 18 women) | Ambulatory general practice or specialist care | • Health complaints and impact • Self-management of health complaints and limitations • Expectations of their GP concerning their health complaints ◦ Shared decision-making ◦ Pro-active care ◦ Attentive care: support and empathy ◦ Attainability and accessibility ◦ Coordinating health care and medication |
van Kempen et al. 2012 [51] Netherlands | Description of frail older people's views and needs regarding home visits | N = 11 frail patients aged 65 or over (median age 80 years, two men, nine women) (N = 11 informal caregivers) | Home visits | • The need for home visits • Preferences for home visits |
Walker et al. 2018 [52] Australia | Description of older dementia patients' and their family caregivers' experiences and preferences regarding dementia assessment services | N = 9 participants aged 65 or older (mean age 80 years) with a formal diagnosis of mild dementia within the prior three months, recruited via a geriatrics service and an Alzheimer’s Association (five men, four women) (N = 7 caregivers) | Ambulatory general practice or specialist care | • Being “handled” properly: facilitators and barriers to a formal diagnosis • Perceptions on length of time between diagnosis and accessing support services • Preferences for diagnostic service settings: importance of avoiding stigma |