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Table 2 Demographic data: age, symptom onset, sex, marital status, living situation, dementia etiology, dementia severity, functional and cognitive impairment, pain, behavioral symptoms and suffering Mean ± standard deviation (minimum-maximum)

From: A bitter pill to swallow - Polypharmacy and psychotropic treatment in people with advanced dementia

PWAD age

74.1 ± 11.1 (40 - 101)

CDR

sum score

17.3 ± 1.2 (11 – 18)

Symptom onset

YOD: 49%

LOD: 51%

MMSE

total score

1.5 ± 3.1 (0 - 14)

Sex

Female: 55%

Male: 45%

Barthel-Index

26.9 ± 23.7

(0 - 85)

Marital status

Married/ in partnership: 68%

Single: 32%

NPI

total score

24.6 ± 17.0 (0 - 84)

Place of living

At home: 46%

LTC: 54%

EOLD-SM

total score

33.1 ± 7.6

(10 - 45)

Dementia etiology

AD: 65%

FTLD: 24%

Other: 11%

PAINAD

total score

1.5 ± 1.8

(0 - 9)

If home care: family caregiver

Spouse/ partner: 62%

Child: 29%

Mother: 2%; Other: 7%

QUALID total score

21.6 ± 6.4

(11 - 44)

  

MSSE

total score

2.3 ± 1.6

(0 - 7)

  1. AD Alzheimer‘s dementia, CDR clinical dementia rating scale, EOLD-SM end of life in dementia symptom-management scale, FTLD Frontotemporal lobar degeneration, GDS global deterioration scale, HC home care, LTC long term care, LOD late onset dementia, MMSE mini-mental-state-examination, MSSE mini-suffering-state-examination, NPI neuropsychiatric inventory, PAINAD pain assessment in dementia, PWAD person with advanced dementia, QUALID quality of life in late stage dementia, YOD young onset dementia