Table 1 Tests, interviews und questionnaires (alphabetic order) used for study purposes [25]

Barthel Index - activities of daily living

[26]

At the visit;

Caregiver interview

10 subitems. Total score 0-100. The higher the better.

Clinical Dementia Rating Scale (CDR)

[27]

At the visit;

Medical opinion based on the assessment of the PWAD and caregiver interview

Global score 0-3. Score 2: moderate dementia; Score 3: severe dementia

End-of-Life in Dementia Scale: Symptom Management (EOLD-SM)

[28]

Last 90 days; Caregiver interview

9 subitems. Total score 0-45. The higher the better symptom control.

Mini-Mental-State-Examination (MMSE)

[29]

At the visit;

Cognitive test

Total score 0-30. The higher the less cognitive impairment.

Mini-Suffering-State-Examination (MSSE)

[30]

At the visit;

Medical opinion based on the assessment of the PWAD and caregiver interview

10 subitems. Total score 0-10. The higher the more suffering.

Neuropsychiatric Inventory (NPI)

[31]

Last four weeks;

Caregiver interview

12 subitems. Total score 0-144. The higher the more neuropsychiatric symptoms.

Pain Assessment in Dementia (PAINAD)

[32]

At the visit;

5-minute observation by study physician

5 subitems. Total score 0-10. The higher the more pain.

Quality of Life in Late Stage Dementia (QUALID)

[33]

Last week;

Caregiver interview

11 subitems. Total score 11-55. The higher the lower quality of life.