Category | Details | Number of Studies |
---|---|---|
(i) Self-management education and training programmes | All but one were group-based, ranging from 4 to 20 participants per group for those that specified, delivered by trained staff, and provided paper hand-outs. The other was delivered remotely, via mail, tailoring according to participant questionnaire responses [33]. Content topics are described in Table 3. | 13 |
(ii) Self-management training combined with other therapies. | The other therapies were: • Multidisciplinary rehabilitation • Physical exercise • Cognitive Behaviour Therapy (CBT) • Multidisciplinary care co-ordination • Mindfulness These mostly followed a group session model too, though when combined with CBT and care-coordination this was done on an individual basis. One study compared a group-based delivery of exercise and self-management training with a self-guided equivalent programme [24]. | 7 |
(iii) Specific self-management skill of self-monitoring | These made use of digital devices to self-monitor: • Symptoms and medication • Posture • Physical activity These were performed on an individual basis, though the physical activity monitoring also included an online peer support group. | 3 |
(iv) Self-management of individual clinical features of Parkinson’s | Clinical features targeted: • Anxiety, using CBT - individual • Drooling, via a digital cueing device - individual • Communication difficulties through Speech & Language Therapy (SLT) – small groups, based on diagnosis. | 3 |
(v) Self-management of specific treatments, i.e. self-guided treatment programmes | These included: • Medication • Physical exercise • Handwriting exercises • Acupressure & conduction exercise For these the individual was either taught or instructed on how to self-pursue the treatment. These studies either evaluated the self-guided delivery of a treatment, or compared different delivery methods for established interventions. | 10 |