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Table 6 Refinements for BCPPA manual and intervention

From: Using the Medical Research Council framework and public involvement in the development of a communication partner training intervention for people with primary progressive aphasia (PPA): Better Conversations with PPA

Decisions made

Examples of refinements made

Provide more options on strategies and practice activities in the intervention materials.

Addition of Home based task 2: Strategies to help turntaking and expansion of session plan 3 to include a list of 11 optional additional strategy practice ideas based on ideas collated from speech and language therapists, people with PPA and their families and a review of manuals for stroke aphasia CPT manuals.

Provide more information on resources and other services.

Expansion of session plan 4 to include a list of resources and other services for speech and language therapists making recommendations for the future.

Develop video examples of the intervention being delivered.

Addition of video recordings of conversation breakdown and intervention being delivered inserted to Module 5: The BCPPA therapy. These included:

Session 1:

Video examples of Keith and Rose watching videos of themselves and the speech and language therapist facilitating them to identify barriers and facilitators.

Session 2:

Video examples of Keith and Rose goal setting with the speech and language therapist.

Session 4:

Video example of Keith and the speech and language therapist discussing a difficult subject around future planning.

Include more testimonies from people with PPA in Module 1: What is PPA and Module 2: What is communication partner training?

Use of quotes to illustrate experience of communication facilitators and barriers in Module 4: What to target in therapy.

Provide more information on how PPA impacts on daily communication.

Refinement of Session 1. Handout 1. How does conversation work? And addition of Session 1. Handout 2. What can go wrong in conversations? in co- production with project steering group.

Provide a summary sheet including suggestions for future changes on one handout at the end of the intervention.

Addition of summary handout for session 4: Handout 6: Your strategies

  1. BCPPA Better Conversations with Primary Progressive Aphasia, PPA Primary progressive aphasia