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Table 5 Demographic information for focus group participants

From: Using the Medical Research Council framework and public involvement in the development of a communication partner training intervention for people with primary progressive aphasia (PPA): Better Conversations with PPA

 

Person with PPA (PwPPA) and communication partner (CP)

PPA variant

Time since symptom onset

Time since diagnosis

Focus Group 1:

PwPPA (m) + CP (f)

lvPPA

4 years,

2 years

PwPPA (f) + CP (m)

Mixed

3 years

2 years

CP (f)

(Mixed)

(9 years)

(4 years)

PwPPA (f) + CP (m)

nfvPPA

5 years

4 years

Focus Group 2:

PwPPA (m)

lvPPA

4 years,

1 year

PwPPA (f) + CP (m)

svPPA

5 years

4 years

CP (m)

(Mixed)

(8 years)

(5 years)

  1. PwPPA Person with primary progressive aphasia, CP Communication partner, lvPPA Logopenic variant primary progressive aphasia, svPPA Semantic variant primary progressive aphasia, nfvPPA Non-fluent agrammatic variant primary progressive aphasia