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Table 1 Learning objectives and timeline for development of the BCPPA training modules including the therapy program

From: Using the Medical Research Council framework and public involvement in the development of a communication partner training intervention for people with primary progressive aphasia (PPA): Better Conversations with PPA

BCPPA training modules

Learning objectives for speech and language therapists accessing the module

Module components

Development timeline

Module 1: What is PPA?

To explain what PPA is according to:

- People with PPA and their relatives who have worked on this module,

- Speech and language therapists working in the area

- The research literature in this area

Co- produced with steering group.

References selected by steering group.

Prior to launch of online BCPPA program

Module 2: What is conversation training?

To explain what conversation training is to clients, based on video recorded interviews with:

- Speech and language therapists working in the area

- People with PPA and their relatives who have worked on this module.

Co- produced with steering group

Video clips planned, filmed and selected by steering group

Prior to launch of online BCPPA program

Module 3: How to make a video

• To have an appropriate tool available to gain consent for the purpose of videoing of a couple in conversation with one another to be used in the conversation training intervention, BCPPA.

• To be aware of the Mental Capacity Act (2005) and how this will impact on consent.

• For speech and language therapists to be supported to make and store videos, in line with the data management guidance and policies of their local organisation, of conversation between a client and their conversation partner for the purpose of the BCPPA intervention.

• To be able to set up an optimal environment for the purposes of making a video for the BCPPA intervention

Co-produced work with the steering group included: a topic sheet to support participants in identifying what to discuss during video recording, example consent forms, video samples and formatting of module.

Prior to Phase II RCT Feasibility Pilot Study

Module 4: What to target in therapy

To understand the three stages of the goal setting process:

1) Identification of facilitators and barriers from pre-therapy videos

2) Selection of suitable video clips of appropriate length and focus to show clients, and

3) Negotiation of goals with a person with PPA and their conversation partner

Co- produced work with people with PPA included: video samples and formatting of module.

Prior to Phase II RCT Feasibility Pilot Study

Module 5: BCPPA therapy

To deliver the four synchronous BCPPA therapy sessions, supporting people with PPA and their communication partners (as a dyad) to:

- Understand concept of barriers and facilitators in conversation and consider thesis briefly in relation to their own conversation

- Identify barriers and facilitators in their own conversation

- Set goals for therapy based on this discussion

- Practice conversation using the strategies identified during goal setting

- Problem solve any issues that have arisen in using identified strategies in conversations outside of therapy sessions

- Consider planning for future changes in communication

Co- produced work with steering group included: Therapy handouts for sessions 1 and 4, therapy activities for session 3, video samples and formatting of module.

Prior to Phase II RCT Feasibility Pilot Study

Module 6: Measuring it

• To consider what options are available for measuring outcomes for BCPPA;

• To think about the pros and cons of different outcome measures;

• To consider how to use outcome measures in clinical practice.

Co-produced with speech and language therapists working with people with PPA (local collaborators who participated in the Phase II RCT Feasibility Study)

Prior to launch of online BCPPA program

Module 7: Useful Resources

• To learn about some activities people with PPA enjoy;

• To find out about some useful websites and resources;

• To have thought about what has been useful in your therapy.

Co-produced with steering group

Online resources selected by steering group

Prior to launch of online BCPPA program

  1. The language used for module titles and learning objectives reflects vocabulary selected by the steering group during co-production and was felt appropriate and accessible for the target audience (clinical speech and language therapists)
  2. PPA Primary Progressive Aphasia, BCPPA Better Conversations with Primary Progressive Aphasia, RCT Randomised Controlled Trial