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Table 2 Overview of themes and subthemes illustrated with quotes per focus group section

From: Overcoming barriers to the adoption of locating technologies in dementia care: a multi-stakeholder focus group study

Section 1: Exploration of perceptions on value of use

Themes

Subthemes

Illustrative quotes

Theme density (%)a

Promote security for persons with dementia

• Location finding

P2, Business, Company executive: “Security is guaranteed by the product since for example, when persons with dementia do not come home at a specific time, they can be located.”

nb = 5 (71)

nh = 3 (50)

nr = 6 (67)

 

• Risk reduction

P2, Business, Company executive: “A lot of people have been saved with these products from freezing, drowning, etc.

 

Counterargument

False sense of security

P15, Research, PhD student (gerontology): “I can see with the app where a person with dementia is, on which street corner, but I can’t see whether s/he is crossing at a red light or not.”

nb = 0 (0)

nh = 0 (0)

nr = 1 (11)

Promote independence for persons with dementia

• Autonomous mobility

P15, Research, PhD student (gerontology): “These products can also help maintain or increase the freedom of movement and independence of persons with dementia.”

P6, Business, Company executive: “If you don’t have such a system, then you have someone telling persons with dementia: “Stop” Stay put! Where are you going again?”

nb = 3 (43)

nh = 4 (67)

nr = 6 (67)

 

• Social engagement

P15, Research, PhD student (gerontology): “Yeah I mean like when you can see a daily profile of persons with dementia—where one likes to go, spend their time, what they find interesting in their neighbourhood.”

 

Counterargument

Feeling tracked

P5, Business, Marketing analyst: “The persons that wears the product can feel like they are being tracked, and that’s not a good feeling.

nb = 2 (29)

nh = 2 (33)

nr = 2 (22)

Reduce stress and burden for care partners

Counterargument

• Assistance with remote location

• Efficient resource utilization

Uneasiness about tracking

P2, Business, Company executive: “It makes me feel more secure because I’m worried that my [fictitious] dad might not find his way back home although he might be able to… We have clients come up to us and say: ‘Thank you, thank you, thank you! We can let our father, uncle, etc. walk alone again.”

P6, Business, Company executive: I see monitoring also positively. There are a lot of people in professional care settings or care partners who feel responsible in providing this monitoring.”

P22, Research, Research associate (gerontechnology): “To make it easier to care for persons with dementia… It might be more comfortable for formal care settings because they can save on personnel or invest less time in these [locating] task.”

P5, Business, Marketing analyst: “But also care partners that use the product can feel uneasy because they are tracking persons with dementia.”

nb = 2 (29)

nh = 2 (33)

nr = 5 (56)

nb = 1 (14)

nh = 0 (0)

nr = 0 (0)

Section 2: Exploration of adoption barriers

Themes

Subthemes

Illustrative quotes

Awareness limitations

• Low knowledge transfers between stakeholders

• Limited information on, and access to commercial products

• Low technological affinity of end-users

P14, Research, Postdoc (gerontology): “I can’t use what I don’t know exists. That’s the main problem I learned after conducting 105 interviews [with persons with dementia and care partners].”

P11, Healthcare, Managing director of AD society: “From the perspective of end-users, this is a product that I don’t know, that is unfamiliar… Product awareness is still largely inadequate.”

P2, Business, Company executive: “My personal opinion: Way too early. End-users don’t know that these products exist.”

P21, Research, Research associate (gerontechnology): “General practitioners don’t have an overview of all commercially available products. The same goes for nursing facilities.”

P4, Business, Software developer: “If care partners need it [GPS technology], where do they go? Where can you buy it? You won’t find it in a supermarket or media store! You first have to research it and if you’re not from this line of work, it’s hard [to find information].”

P14, Research, Postdoc (gerontology): “Some [persons with dementia and care partners] say: ‘I’ve read or heard about this, but I don’t know where I can buy these products. I guess online’.”

P18, Research, Project manager (gerontology): “There are certainly older adults that are good with technologies, which have smartphones. But there are some older adults that have no experience—that are technology skeptic.”

P13, Healthcare, Healthcare manager: “We are talking about the age group 70 plus, right? The next generation will be more familiar with these technologies.”

Technological limitations

• Unsatisfactory reliability and accuracy of location function

• Limited functionality

P16, Research, PhD student (rehabilitation science): “If it’s in the name, it has to work!”

P14, Research, Postdoc (gerontology): “If it [location] doesn’t work reliably, it won’t reduce care partners stress and burden.”

P22, Research, Research associate (gerontechnology): “When one enters an underground parking lot or a building, then you can often pretty much forget about location. The product has to be more than 150% reliable. If not, you can forget it!”

P22, Research, Research associate (gerontechnology): “It should be low maintenance… You should be able to locate immediately, without having to wait for updates. And if there’s a discrepancy of a few meters and I’m in the pedestrian zone and there are a lot of people around, it could be that I don’t find someone who is two meters away.”

P16, Research, PhD (rehabilitation science): “The location of two minutes ago might not be valid.”

P11, Healthcare, Managing director of AD society: “For the battery, there’s a signal notifying you when you are running low on power. Of course, the question is when you receive a notification. Because it’s totally annoying if the product starts to beep when you are alone. This might lead to more disorientation.”

P5, Business, Marketing analyst: “Geofencing is one aspect. I would program other intelligent functions, such as integrated temperature recognition. There are maybe other things at persons with dementias’ location that could active an alarm. So I would program intelligent systems.”

P7, Business, UX designer: “I would like a product that notifies me when my [fictitious] mom leaves her home without the product.”

  

P22, Research, Research associate (gerontechnology): “And then an emergency recognition, so that when persons with dementia fall down or stumble on something, that the system recognizes this.

 

• Poor battery performance

P3, Business, Executive associate: “If I need a GPS product all day, maybe it won’t last all day. And cellphones [for care partners] either.”

  

P1, Business, Company executive: “How long does the battery last? Since our latest update, max two days…” [P4, Business, Software developer: “Max? Yeah, that’s a problem.”]

Product characteristic limitations

• Low end-user focus and product customizability in product development

P10, Healthcare, Managing director of AD society: “A decisive factor is how easy the different functions are to understand… Regarding product functions, less is more.”

P12, Healthcare, Healthcare manager: “There is a person with dementia who lives in our nursing facility. He doesn’t leave the grounds without his fanny pack. If you could put the product in his fanny pack and it would still work, that

would be ideal.”

P16, Research, PhD (rehabilitation science): “Individual configuration... to set up a custom area ‘from this crossroad to here’.”

P9, Healthcare, Gerontologist: “I find it good that there are different functions, such as the emergency and two-way communication. But these functions should be individually customizable, looking at actual severity level and other factors.”

P3, Business, Executive associate: “What dementia severity does the person have? A one-size-fits-all product won’t work.”

P9, Healthcare, Gerontologist: “Persons developing the technology don’t involve end-users. First of all to ask: ‘What do you want from your product? What should the product look like?’”

P2, Business, Company executive: “Persons with dementia and care partners are not our primary market group.”

P6, Business, Company executive: “I think I’ve realized that we have to think a lot more from the perspective of end-users. This should always be the starting point and then think about hardware and so forth.”

 

• Unsatisfactory and stigmatizing aesthetics

P11, Healthcare, Managing director of AD society: “Most products are not aesthetically pleasing for females.”

P10, Healthcare, Managing director of AD society: “For the design, yeah, there’s black, but I would think of offering products in more colors. This should be possible.”

P1, Business, Company executive: “The products are too big! We would gladly reduce the size if the technology would allow it… The problem is that you need space for a better battery, for power, for… And so that it’s comfortable to wear, particularly if it’s to be worn on the wrist.”

P1, Business, Company executive: “Some products have security straps. But no one wants to walk around with such a thing!”

 

• Product costs

P1, Business, Company executive: “The biggest barrier is always the price.”

P10, Healthcare, Managing director of AD society: “There’s a cost problem at the moment. Can I afford this? Are there any additional costs once I use it? Products are simply too expensive.”

P8, Healthcare, Social worker: “Cost is a big factor. Do I purchase it or not for the last phase of my life?”

Capital investment limitations

• Lack of funding

P1, Business, Company executive: “There’s no one here [in the other groups] that I know was involved in product development, right? There’s a big discrepancy. We could all say how products should be and what could be done. But you have to have the money to do this…you first have to have the money to invest.”

 

• Low product development follow-through

P1, Business, Company executive: “There are too many products that are not developed to the end.”

Unclear benefits

• Unclear perceived need by

• end-users

P11, Healthcare, Managing director of AD society: “Persons with dementia do not see that they need it [locating device]. At most, care partners recognize a need.”

P6, Business, Company executive: “I can imagine that my fictitious father might need such a product. But whether he sees a need? There might be no recognized need.”

P2, Business, Company executive: “No end-user purchases it out of prevention. All buy it because something has already happened.”

  

P8, Healthcare, Social worker: “It [using a locating technology] of course depends on dementia severity.

 

• Reliance on other trusted locating methods

P5, Business, Marketing analyst: “I [care partners] might pragmatically get more involved with the [local] community.”

 

• Lack of studies and unclear clinical effectiveness

P21, Research, Research associate (gerontechnology): “End-users should be more involved [in research and development]. They should test products and then we will better understand what needs to be improved.”

P1, Business, Company executive: “We need the Charité and the German Alzheimer Society to come out with studies. Then there will be a bigger discussion.”

P2, Business, Company executive: “There are dementia severities, and then it’s always the question: ‘How long can I [care partners] let persons with dementia move about and use the product [without studies with persons with dementia with different AD severities]?”

P19, Research, Project manager (gerontology): “I can’t evaluate products as a lay person. Do I need it? Does it work?”

 

• Previous negative user experience

P1, Business, Company executive: “The technology is constantly changing. And those [end-users] who did test it three-four years ago… they had bad experiences. And if it doesn’t work on the first attempt: Next! Forget it!”

Ethical concerns

• Balance between autonomous mobility of persons with dementia and control by care partners

• Unclear information on data privacy and security

P19, Research, Project manager (gerontology): “As a person with dementia, I have my autonomy, I have my rights. I might not know that I am being located at a particular time. But for care partners, that’s really not a problem because they have a sense of security. There’s a big difference between medical professionals and care partners, where medical professionals say: ‘That’s an infringement on personal freedom’, and care partners say: ‘I don’t care. I have to know where [person with dementia] is!’”

P13, Healthcare, Healthcare manager: “There are also data security aspects, so basically the fear of being watched or controlled.”

P3, Business, Executive associate: “I think of tracking firms that collect large amounts of data, secretly collecting information on movement profiles… Do we reduce independence or increase security?”

• Unclear legal rights on location of others

P6, Business, Company executive: “We are very involved with this at the moment. How many movement profiles can be programmed and saved, under which conditions, etc.? This is a very difficult situation at the moment for all businesses involved.”

P15, Research, PhD student (gerontology): “There are a lot of decisions at the moment on what is allowed regarding locating others.”

P2, Business, Company executive: “Ultimately, it’s a legal problem with too many unknowns. Are we allowed to do this, to do that? This hinders commercialization. First get approval from a court of law. The external framework could be better. This is one of the main reasons why it [GPS technologies] has not spread so quickly.”

Section 3: Exploration of services and information dissemination strategies

Themes

Subthemes

Illustrative quotes

Digital autonomy support

• Installation and product training support

P15, Research, PhD student (gerontology): “A support that’s really tailored to end-users. Particularly to help set up and configure the product.”

  

P3, Business, Executive associate: “If I use it for the first time, I would like to have an installation assistance on how to use the app that I can maybe turn on and off.”

P17, Research, Project manager (health services administration): “That you really have an on-location support that also makes house calls to help one get started with the product.”

P5, Business, Marketing analyst: “Case-management service support… If I have a person with deficits, with a certain problem severity, then I can also offer other attractive service support features.”

 

• Automated technical support

P6, Business, Company executive: “…for example, that telephone numbers are listed on a website, that frequent questions such as ‘How to install the program’, etc. are provided.”

Counterargument

Unclear affordability of services for end-users

P2, Business, Company executive: “But these services have to be affordable and there are simply too many older adults that do not have the financial capacity.”

Emergency support

• Emergency call centers

P10, Healthcare, Managing director of AD society: “At a minimum [for emergency situations], there has to be a hotline.”

P17, Research, Project manager (health services administration): “It’s important to have an emergency support call service that answers whatever question you might have.”

Counterargument

Lack of personnel and financial resources

P6, Business, Company executive: “When an alarm is set out, because you have personnel changes every 24 h, you have to have a lot of people that do this [job]. Who does it on the weekends?”

P22, Research, Research associate (gerontechnology): “Support that is available 24/7…but this has to be financed. That’s also really expensive!”

Information dissemination actors

• Multi-actor approach: memory clinics, medical supply stores, general practitioners, local government, and healthcare insurance companies

P9, Healthcare, Gerontologist: “You could involve memory clinics.”

P?, Healthcare: “It would be really easy to involve medical supply stores.”

P17, Research, Project manager (health services administration): “I think that general practitioners should be involved because they are typically the starting point. There’s a trust-based relationship there.”

P19, Research, Project manager (gerontology): “There’s a pilot project in [German city], where the government has set up a counselling center also for technology for older adults…They can advise you there…You can go to them, but they can also go to you.”

  

P5, Business, Marketing analyst: “What we need is support from an established healthcare insurancecompany that creates a ‘service-support platform’.”

Counterargument

Financial, time and lack of follow-up limitations of proposed actors

P9, Healthcare, Gerontologist: “But persons with dementia come here [memory clinic] at max every six months…”

P22, Research, Research associate (gerontechnology): “If my general practitioner talks to me about such products, I’d feel like they are trying to sell me something. I don’t go to my general practitioner for that.”

P19, Research, Project manager (gerontology): “GPs are saying: ‘What else are we also supposed to do?’ Who pays for this extra work?”

Product acquisition

• Retail options

P19, Research, Project manager (gerontology): “At the moment, most products can be bought online. So there’s a lack of vendors with whom older adults can talk to. I think personal talks are extremely important.”

 

• Trial periods

P8, Healthcare, Social worker: “I might see an ad for such a product and think: ‘Oh, that’s cool!’ But I still have no experience with the product. Experience is elementary. If I don’t have experience, I won’t use the product.”

P12, Healthcare, Healthcare manager: “For me, it would be a requirement that I can test the product first for two to three weeks without having to pay a big amount for this. Maybe a little fee, but not the entire amount.”

P16, Research, PhD (rehabilitation science): “For many, it’s important to be able to experience the product, to touch it, feel it. Maybe offer a trial purchase.”

 

• Government subsidies

P5, Business, Marketing analyst: “In nursing care, there are a lot of government care grants…different financial plans, how you can use these various services.”

Product advertising

• Promotion of independence and autonomy

P2, Business, Company executive: “We are trying to erase the word tracking.”

P3, Business, Executive associate: “We’ve replaced the word tracking with guardian angel.”

  

P10, Healthcare, Managing director of AD society (flyer-feedback): “And particularly in old age, the importance of remaining independent without sacrificing comfort and safety.”

P11, Healthcare, Managing director of AD society (flyer-feedback): “I prefer the description on this flyer. It’s simple and contains all you need to know. I see security, quality of life, liberty. The visual presentation is good, and the font size is nice and large. This other flyer is not directed toward persons with dementia, but rather only toward care partners.”

P19, Research, Project manager (gerontology; flyer feedback): “This picture is a no-no for the current generation of older adults.”

 

• Seal of quality from trusted organisations

P1, Business, Company executive: “There have to be institutions. That’s why I’m here today… In the end, the Charité or similar is missing. The stamp from ISO does not suffice. When Charité or German Healthcare Ministry is visible, then there’s a completely different quality level that is achieved.”

 

• Addressing concerns of end-users: data security, product characteristics, and service details

P20, Research, PhD (medical sociology and rehabilitation science): “It could be a marketing problem… for example, that it’s not clear that it can be avoided that everyone sees my data and locate me. If I don’t know that, I don’t buy it.”

P10, Healthcare, Managing director of AD society: “This aspect [data security] has to be covered in product advertising.”

  

P16, Research, PhD (rehabilitation science): “I really think that there is a general lack of clear information on data security. It’s really important that data security is communicated and mentioned and that it’s theoretically possible for a third party to access data sensitive information. So that people know what to do in such situations.”

P5, Business, Marketing analyst (flyer feedback): “What I still don’t know is whether I have to take the watch off every day and charge it.”

P6, Business, Company executive: “Let’s say I receive a message at 4 am about my mother and this happens three nights in a row. I’ll be woken up and I can’t really help… What happens then?”

 

• Conventional advertising platforms: television, magazines, pharmacies

P14, Research, Postdoc (gerontology): “There are probably people that don’t check online for this [GPS product], but rather watch TV. So maybe use TV ads to multiply information.”

P22, Research, Research associate (gerontechnology): “I saw an ad in [free magazine with large older adult readership] about a high blood pressure product. I thought that was really good. A magazine that a lot of older adults read—not just persons with dementia and care partners. And the magazines are free. You can just take one.”

P14, Research, Postdoc (gerontology): “Maybe there should just be ads placed in pharmacy windows.”

Counterargument

Financial limitations

P1, Business, Company executive: “I don’t produce million-dollar TV ads.”

  1. Abbreviations: n number; nb business, nh healthcare, nr research
  2. Percentages in parentheses rounded to nearest whole number
  3. aTheme density calculated based on professionals’ written keywords or phrases and supplemented by contributions in the open discussion