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Table 1 Themes and Supporting Quotes

From: A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model

Theme Additional Quotes
Self-care Trajectory and Burden of Responsibility Yeah, and like, you know, a lot of people, like a lot of older people, they live on their own and they don’t get the proper help that they should because they don’t either call or they don’t know, you know until it’s too late. So and the kids don’t, a lot of kids don’t care anymore. John (CG, 1)
And so it makes me kind of frail, you know. Alicia (C, 3)
I think I’m [pause] I’m not gunna get better. Because, like I say, but I know, I just hope, I just pray that I don’t get worse. Susan (C,1)
Learning, Changing Behaviour, and Confidence Because I actually listen more and try to understand more and take advice more than I did before. John (CG, 1)
Well, I feel very confident that they know what they’re doing and– I don’t know, I just feel confident. Maybe that’s a result of it. Well, I just feel more aware around when my blood oxygen is low, I don’t breathe very well. Alisha (C, 2)
One of the things that she helped me out with is she says “do I weigh myself?” I said “well no” [laughs]. She said, “well that’s a very good idea because now that you’re on fluid pills or water pills, that’ll tell you if everything is working or not because you’ll lose weight. If your weight goes up again, it means something is not right or something you’re not doing right and you have to get in and get it checked out”. So started weighing myself in the morning when I get up and weighing myself in the evenin’ before supper. Bob (C, 1)
Well like I said before, once you know the drugs you’re taking and you can identify with ‘em and you know rough, even if you have no medical background … they make it clear enough to you which pill is for which – what it’s supposed to be doing, then you know which ones for sure you can take or can’t forget to take it. Bob (C, 1)
Well, every zone tells you why you’re… ya know, obviously if you’re in the red zone it’s not good at all, but at least if you’re in the yellow zone it means to let you know you need to watch something or you need to go back to your doctor or … like there’s a problem coming. Oh, I understood that if you got, if you were silly enough to get back in the yellow zone somewhere you go straight to emerge [/Emergency Department/]. Bob (C, 1)
If you take the medications and follow the instructions they are things that are liveable. Could be worse [laughs]. These are things that can be taken care of in your life, and you can manage ‘em and you can go on and live your life as long as you follow the rules and take the pills and whatever. Bob (C, 1)
She was really good. She got me to understand how to do it properly. I was doing it the wrong way. Mary (C, 1)
Pre-emptive Connection to DIVERT-CARE Professionals She dealt with and checked out and made sure that I, you know, all my meds — I kept him in a blister pack, and she helped me; showed me some exercises and basically checked out the type of diet that I was on. And yes, I would say initially she came probably over a course of a few days and then she would check up on me primarily by phone. And of course, she was available if I had any problems. Jim (C, 1)
Just checking up on him was good. Carol (CG, 1)
She’d be by the next week at a certain date at a certain time and she’d always be there on time. She checked the blood pressure and asked me general questions and how I figure I was doing. Bob (C, 1)
They’re going to check in and that also, that was, uh, connecting down to the office. It was hooked up so it would go down to their computer. [home monitoring] Blood pressure run up, they’d phone, or down or if something might be wrong on the readings, they’d phone. Maureen (C, 2)
Connected to Information and Medical Advice It made it a little more understanding and, you know, things that are happening and that. Karen (C, 1)
Well, she explained everything. Like, you know, we wrote everything all down. She explained about watching the weight. She showed me all the danger zones and what I should watch for. Tammy (CG, 1)
She could tell if we were able to work on our own or if we need that extra assistance because of not being savvy. But you know she did everything: she simplified things, making sure that we were absorbing the information. Donna (CG, 1)
I like to be independent to a certain degree and she allows me that. Doesn’t try to tell me “Don’t do that because you’re not supposed to”. It’s a form of “let me try something”. If I can’t do it, I know she’s there to back me, to help me. Sarah (C, 1)
Connection through Therapeutic Relationships And [Nurse] was very patient, very understanding that way. She was a tremendous asset. I have to say, she was really, really awesome… Karla (CG, 1)
For one thing, it’s wonderful to talk to somebody else. Um, they’d come in and it’s like they’re friends, you know? Alisha (C, 2)