Table 3 Baseline characteristics of patients and informal caregivers
Baseline characteristics | Scores (N) | |
|---|---|---|
Patients (N = 190) | Intervention group (N = 99) | Usual care group (N = 91) |
Background characteristics | ||
 Mean age (SD) | 78.9 (7.0) | 79.0 (6.5) |
 Female sex N (%) | 69 (69.7) | 46 (51.1) |
 Mean cognitive status (MMSE) (SD) | 21.9 (5.2) | 22.0 (4.1) |
 Maried with a partner N (%) | 39 (40) | 43 (47) |
 Living situation | ||
• Independent alone N (%) | 53 (54.0) | 43 (47.3) |
• Independent with others N (%) | 45 (45.5) | 47 (51.6) |
Outcome measurement at baseline | Observed mean (SD) | |
 Primary outcome | ||
 Frenchay Activity Index (FAI) | 40.2 (8.8) | 38.8 (7.3) |
 Secondary outcome | ||
 Impact on Participation and Activity (IPA) | ||
• Autonomy outdoors | 15.4 (4.4) | 14.8 (4.3) |
• Relationship | 15.3 (3.9) | 15.8 (3.1) |
Katz-15 | 6.0 (4.0) | 6.5 (3.3) |
Stroke Specific Quality of Life (SSQoL) | ||
• Subscale physical functioning | 99.6 (20.8) | 97.1 (21.3) |
• Subscale psychosocial functioning | 77.2 (16.8) | 76.2 (16.9) |
Informal caregivers (N = 172) | Intervention group (N = 90) | Usual care group (N = 82) |
Background characteristics | ||
 Mean age (SD) | 61.0 (13.5) | 60.5 (13.5) |
 Female sex N (%) | 53 (64.6) | 58 (70.7) |
 Relationship with patient | ||
 Husband, wife, life partner N (%) | 28 (31.1) | 32 (39.0) |
 Sister, brother, brother in law, sister in law N (%) | 3 (3.3) | 5 (6.1) |
 Daughter (in law), son (in law) N (%) | 56 (62.2) | 40 (48.8) |
 Other N (%) | 3 (3.3) | 5 (6.1) |
 Outcome measurement at baseline | Observed mean (SD) | |
 Carer Quality of Life | 85.9 (12.7) | 82.5 (14.7) |
 Erasmus iBMG (time spended on helping patient) | ||
 Item 1: helping patient with ADL-activities | 0.5 (0.4) | 0.5 (0.4) |
 Item 2: helping patient with personal care | 0.8 (0.3) | 0.8 (0.4) |
 Item 3: helping patient with moving outside | 0.5 (0.4) | 0.5 (0.4) |
 Item 4: help by other informal caregivers or volunteers | 0.7 (0.4) | 0.7 (0.4) |
 Self-Rated Burden VAS | 4.0 (2.4) | 4.3 (2.4) |