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Table 3 Information needs classified according to severity of dementia

From: Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: a scoping review

Author(reference), year

Severity of dementia

Information needs

Edelman [46], 2006

Mostly mild

1. Identifying and understanding dementia

2. Experimental drugs

3. Current dementia medication

4. Genetic aspects of the disease

5. Current research on dementia

6. Where and how to use services/help available

Hirakawa [7], 2011

Mostly mild

1. General information on dementia

2. First aid and medical information

3. How to care for the patient

4. When to transfer patient to hospital

5. How to apply for care programs

de Jong [45], 2009

Mostly moderate - severe

1. General information on dementia

2. Identifying and understanding dementia

3. Dementia prognosis

4. How to deal with patient’s behaviour

5. Safety issues

6. Medical information

7. Where and how to use services/help available

Rosa [32], 2010

Mostly moderate - severe

1. General information on dementia

2. Identifying and understanding dementia

3. Current dementia medication

4. How to deal with patient’s behaviour

5. How to apply for care programs

6. Where and how to use services/help available

7. Financial help and services