Theme | Sub-theme | Representative quotes |
---|---|---|
Poor awareness of the physician(s) in charge of their care at the skilled nursing facility | Inability to name or otherwise identify the physician(s) overseeing their care | “I’ve never really talked to him...I didn’t even know he was a doctor.” – Female, 70’s-80’s years old |
Expectation that external providers (i.e. their surgeons, hospitalist, or primary care provider) would be directing their post-acute care at the skilled nursing facility | “From what I’ve been told there’s a separate physician here. It’s not my surgeon, which I’m not crazy about. I mean, he gave me the surgery, he should be in here to check on meat least once or twice during the 10 days I’m here. But he hasn’t been. It’s been a different doctor who was only here one time.” - Female, 60’s-70’s year old | |
Confusion about the distinct roles of physicians, nurse practitioners, nurses, and nursing assistants on the care team | “It’s very hard to tell who’s a doctor. That person, I guess, he’s a doctor, it happens every once in a while, a guy comes in with a suit and tie on and he doesn’t really introduce himself. He just sits down and we start talking about things. I wish they would announce themselves - exactly who they are.” – Male, 60’s-70’s years old | |
Distress associated with the lack of understanding about the physician(s) coordinating their care | “I don’t know [if there is a separate doctor or nurse practitioner who coordinates my care in this facility]. I don’t know. I feel kind of stupid not knowing.” - Female, 70’s-80’s years old | |
Frequency and quality of communication with the physician did not meet participants’ expectations | Frequency of communication did not meet expectations | “I mean, if I need a question they always tell me to ask the nurse. And Dr. [last name], I only saw him once and I probably won’t see him again this week.” – Male, 50’s-60’s years old |
Quality of communication did not meet expectations: perceived to be rushed, superficial, insufficient to learn patient preferences for care | “I think that [physicians] can stay on top of stuff a little bit more. I know they have a lot of patients here and I know they’re really busy, but I just feel like I’m like their supervisor and I’m keeping on top of them and making sure they do their job. And I don’t think I should be doing that. I don’t want to have to be burdened with that mindset that I need to stay on top of these people in order for them to do what I need to have done.” – Female, 60’s-70’s years old | |
Caregivers expected more frequent and detailed communication with the physician | “I thought [the physician] should have had a little more [communication] with me when I asked him a question. I told him, ‘[My father] is an [80’s] year-old man. If you have a question, you need to call me.’”– Female, 30’s-40’s (caregiver) | |
Participants valued care that was perceived to be individualized to their needs by the physician(s) in the facility | Perception of physician(s) being dismissive of the patients’ symptoms | “I didn’t care for the doctor there because she acted like I didn’t know my own body and I didn’t know what I was talking about. And I know how much insulin I need, because I give it to myself, because I’ve been a diabetic for [many] years, which is a long time.” – Female, 70’s-80’s years old |
Appreciation of specialized care to meet individual needs | “And [the physician] is very understanding of my father and how he thinks. And thinking so much about my father and then specifically understanding of his needs, like the [diet] element, things like that. Some people really shake that off like it’s not important – he has to eat – but for a man who spent his life that way, it is important.” – Female, [declined to provide age] (caregiver) | |
Patients felt they were a burden due to their medical complexity or custodial needs | “You know one thing I think about this place – they knew that I was [medically complex and high needs] – why did they accept me? Don’t accept people because you need patients. You accept them because you wanna help them.” – Female, 70’s-80’s years old |