Table 1 Key data elements in ADNeT Registry Minimum Data Set

Patient identifiers

First name, Last name, Sex, Date of birth

Patient demographic information

Country of birth, Preferred spoken language, Aboriginal and/or Torres Strait Islander status, Highest level of education, Living arrangements, Residential setting

Information relevant to recruitment methods

Capacity to opt out, Person responsible (if appropriate), Communication of diagnosis

Baseline clinical data

Referral date, Initial appointment date, date of dementia or MCI diagnosis, Type of dementia or MCI, Scores of completed cognitive assessments (e.g., MMSE, RUDAS, MoCA, etc) Core blood tests undertaken within the 12 months prior to or at diagnosis (Yes/No), Structural neuro-imaging completed within the 12 months prior to or at diagnosis (e.g., CT, MRI) completed (Yes/No), Functional neuro-imaging completed undertaken within the 12 months prior to or at diagnosis (e.g., PET, SPECT) (Yes/No), Cholinesterase inhibitor recommended or prescribed (Yes/No), Total of prescribed medication, Comorbidity (e.g., history of stroke, hypertension, etc), Independent in personal activities of daily living (Yes/No), Independent in instrumental activities of daily living (Yes/No)