Table 1 Summary of the thematic analysis related to the theme “Power of position, knowledge and language”
Text unit | Code | Sub-theme | Theme |
|---|---|---|---|
If one contributes, one must be taken seriously. I gather that we are very popular with researchers because they will not receive funding if they don’t include service users. It’s rather scary. One doesn’t really know if research becomes more applicable with user involvement | Contribute Respect Researchers need Users Alibi Condition for funding Scepticism Applicable | Tension between different purposes | Power of position, knowledge and language |
So, our participation in this, it’s to be able to help those coming after us. That’s the way it’ll be, so it becomes interesting to see if what we’ve contributed to the project can help others. That’s the way it has to be. Because we are past that stage, so we could just have turned our backs and not cared, because we are done with all of this, but that’s not who we are. I want to contribute. I want to make a difference to those coming after us | Focus on future Impact Altruism Responsibility Make a difference Contribution Participation | Involvement must have impact | |
The research must have some consequences, must lead to something within health and social care or in politics, not least for the people in question. Research on causality might be too optimistic. As previously mentioned, it is my opinion that grasping the experiences of those with dementia and their carers is important for facilitation and obtaining insight | Consequence for health services Impact Consequence for politics Consequence for public users The importance of users’ experiences Realistic Relevance Facilitation Obtaining insight | Importance of knowledge for policy and health services |