Major Factors, Domains, Themes and their Dimensions | NH = 154 | AL = 156 | HCBS = 151 | ||||||
---|---|---|---|---|---|---|---|---|---|
White (n = 50) | AA (n = 96) | Other (n = 8) | White (n = 146) | AA (n = 3) | Other (n = 7) | White (n = 40) | AA (n = 60) | Other (n = 51) | |
PSYCHOSOCIAL | 50 | 99 | 7 | 227 | 5 | 6 | 43 | 63 | 42 |
Attitudes | 13 | 17 | 1 | 43 | 0 | 0 | 15 | 14 | 20 |
Care Providers | 9 | 11 | 1 | 16 | 0 | 0 | 10 | 6 | 18 |
Technical Expertise | 9 | 11 | 1 | 16 | 0 | 0 | 10 | 5 | 18 |
Interpersonal Skill | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 1 | 0 |
Affordability | 1 | 0 | 0 | 3 | 0 | 0 | 1 | 1 | 0 |
Perceived expense | 1 | 0 | 0 | 3 | 0 | 0 | 1 | 1 | 0 |
Home Ownership | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Social Environment | 2 | 6 | 0 | 11 | 0 | 0 | 2 | 6 | 1 |
Social interaction | 1 | 3 | 0 | 8 | 0 | 0 | 2 | 5 | 0 |
Activity Level | 0 | 1 | 0 | 0 | 0 | 0 | 0 | 1 | 1 |
Familiarity | 0 | 1 | 0 | 3 | 0 | 0 | 0 | 0 | 0 |
Diversity | 1 | 1 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Self-determination | 1 | 0 | 0 | 8 | 0 | 0 | 2 | 1 | 1 |
Privacy | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Dignity | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Independence | 1 | 0 | 0 | 8 | 0 | 0 | 2 | 1 | 1 |
Knowledge | 0 | 3 | 0 | 4 | 0 | 0 | 7 | 11 | 0 |
Content and Amount of Information | 0 | 0 | 0 | 1 | 0 | 0 | 0 | 1 | 0 |
Service types provided | 0 | 0 | 0 | 1 | 0 | 0 | 0 | 0 | 0 |
Eligibility rules | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 1 | 0 |
Legal/regulatory issues | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Financial coverage | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Sources of Information | 0 | 3 | 0 | 3 | 0 | 0 | 6 | 9 | 0 |
Family/friends/SELF- | 0 | 3 | 0 | 3 | 0 | 0 | 1 | 4 | 0 |
Lawyers | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Medical professionals | 0 | 0 | 0 | 0 | 0 | 0 | 5 | 5 | 0 |
Clergy | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Accessibility of Information | 0 | 0 | 0 | 0 | 0 | 0 | 1 | 1 | 0 |
Attainability | 0 | 0 | 0 | 0 | 0 | 0 | 1 | 1 | 0 |
Comprehensibility | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Social Norms | 11 | 20 | 1 | 81 | 2 | 1 | 11 | 20 | 13 |
Referents- | 4 | 12 | 1 | 42 | 0 | 1 | 10 | 17 | 8 |
Spouse, *FAMILY, children, *SELF | 3 | 7 | 0 | 28 | 0 | 1 | 2 | 6 | 4 |
Friends, neighbors | 0 | 1 | 1 | 2 | 0 | 0 | 0 | 0 | 1 |
Social workers, *nurse, clergy, doctors, lawyers, *other professionals, *they | 1 | 4 | 0 | 12 | 0 | 0 | 8 | 11 | 3 |
Relevant Norms | 7 | 8 | 0 | 39 | 2 | 0 | 1 | 3 | 5 |
Family burden | 1 | 2 | 0 | 11 | 0 | 0 | 1 | 0 | 0 |
Expectations of care | 3 | 1 | 0 | 9 | 1 | 0 | 0 | 2 | 5 |
*Losses and changes | 3 | 5 | 0 | 19 | 1 | 0 | 0 | 1 | 0 |
Perceived Control | 26 | 59 | 5 | 104 | 3 | 5 | 10 | 18 | 9 |
Role of Choice | 25 | 59 | 5 | 89 | 2 | 4 | 5 | 11 | 7 |
Decision maker-split into 4 layers | 21 | 51 | 4 | 79 | 2 | 4 | 3 | 9 | 2 |
Autonomous decision | 3 | 1 | 1 | 32 | 1 | 0 | 1 | 4 | 0 |
Collaborative decision | 3 | 4 | 0 | 23 | 0 | 1 | 0 | 1 | 0 |
Paternalistic decision | 9 | 19 | 0 | 18 | 0 | 2 | 2 | 2 | 1 |
Unsure/forgot how decision was made | 3 | 3 | 2 | 3 | 1 | 1 | 0 | 2 | 0 |
Placement | 3 | 24 | 1 | 3 | 0 | 0 | 0 | 0 | 1 |
Alternatives | 4 | 8 | 1 | 10 | 0 | 0 | 2 | 2 | 5 |
Planning for Future Needs | 1 | 0 | 0 | 15 | 1 | 1 | 5 | 7 | 2 |
Financial planning | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Psychological planning | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
ENABLING | 10 | 19 | 1 | 37 | 2 | 1 | 9 | 12 | 9 |
Availability of Support | 8 | 16 | 1 | 37 | 3 | 1 | 8 | 10 | 9 |
Formal Services | 4 | 8 | 0 | 23 | 1 | 1 | 7 | 9 | 6 |
Openings at facilities/waiting lists | 2 | 0 | 0 | 4 | 0 | 0 | 0 | 2 | 0 |
Hours of operation | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Proximity | 2 | 4 | 0 | 10 | 0 | 0 | 0 | 0 | 0 |
Tangible Support | 0 | 4 | 0 | 9 | 1 | 1 | 7 | 7 | 6 |
Informal Support | 4 | 8 | 1 | 14 | 2 | 0 | 1 | 1 | 3 |
Willingness to provide support | 1 | 0 | 1 | 0 | 0 | 0 | 0 | 0 | 0 |
Ability to provide support- split into 2 layers | 2 | 7 | 0 | 13 | 1 | 0 | 1 | 1 | 2 |
Proximity | 0 | 0 | 0 | 2 | 1 | 0 | 0 | 0 | 0 |
Capability | 2 | 7 | 0 | 11 | 0 | 0 | 1 | 1 | 2 |
Accessibility of informal support | 1 | 1 | 0 | 1 | 1 | 0 | 0 | 0 | 1 |
Financial Resources | 2 | 3 | 0 | 0 | 0 | 0 | 1 | 1 | 0 |
Financial Well-being | 0 | 2 | 0 | 0 | 0 | 0 | 1 | 0 | 0 |
Income | 0 | 1 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |
Assets | 0 | 1 | 0 | 0 | 0 | 0 | 1 | 0 | 0 |
Protection against Risk | 2 | 1 | 0 | 0 | 0 | 0 | 0 | 1 | 0 |
Insurance | 2 | 1 | 0 | 0 | 0 | 0 | 0 | 1 | 0 |
NEED | 18 | 47 | 3 | 70 | 1 | 2 | 15 | 30 | 32 |
Objective/Perceived Need | 18 | 47 | 3 | 70 | 1 | 2 | 15 | 30 | 32 |
Degree of Disability | |||||||||
Functional health | 18 | 44 | 3 | 70 | 1 | 2 | 15 | 30 | 32 |
Duration of Disability | |||||||||
Functional health | 0 | 3 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |