Table 2 An overview of the categories and subcategories
Categories | Subcategories |
|---|---|
Want to be involved without being in charge | Having access to healthcare Assigning responsibility to healthcare providers Being reinforced by regular follow-ups Expects that care is coherent |
A desire to be in control without acting as the driving force in the care situation | Staying up-to date Acting as the patient’s advocate |
A need for sustainability without being overlooked | Well-functioning contacts over time Being in good hands |
Focusing on making life meaningful while being preoccupied with caregiving activities | Balancing existential concerns and caregiving activities Staying engaged in life, despite caregiving activities |