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Table 3 Measures used within structured interviews with carers

From: Applying a new concept of embedding qualitative research: an example from a quantitative study of carers of people in later stage dementia

Person with dementia characteristics and circumstances

 -Demographic information (including gender, age, ethnicity, and marital status)

 -Living situation (home, hospital, or care home)

 -Practitioner Assessment of Network Type (PANT) [17]

 -Bristol Activities of Daily Living Scale (BADLS) [21]

Person with dementia quality of life

 -Dementia Quality of Life scale (DEMQOL) – proxy version (30-item) [22]

Carer characteristics, health and burden

 -Demographic information (including gender, age, ethnicity, marital status)

 -EQ-5D-5 L [23]

 -General Health Questionnaire (GHQ-12) [24]

 -Short Sense of Competence Questionnaire (SSCQ) [25]

 -Zarit Burden Interview (ZBI − 22-item) [26]

Support to person with dementia

 -Informal support by carer (relationship to person with dementia; care tasks undertaken – nature and frequency; employment status) Adapted from [27].

 -Formal care (health and social care services; adaptations and equipment; inpatient and outpatient care; and ambulance use) Adapted from [27]

 -Reliability, sufficiency and effectiveness of care (personal; daily household; and weekly household) [28]

  1. Adapted from [5]