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Table 3 Measures used within structured interviews with carers

From: Applying a new concept of embedding qualitative research: an example from a quantitative study of carers of people in later stage dementia

Person with dementia characteristics and circumstances
 -Demographic information (including gender, age, ethnicity, and marital status)
 -Living situation (home, hospital, or care home)
 -Practitioner Assessment of Network Type (PANT) [17]
 -Bristol Activities of Daily Living Scale (BADLS) [21]
Person with dementia quality of life
 -Dementia Quality of Life scale (DEMQOL) – proxy version (30-item) [22]
Carer characteristics, health and burden
 -Demographic information (including gender, age, ethnicity, marital status)
 -EQ-5D-5 L [23]
 -General Health Questionnaire (GHQ-12) [24]
 -Short Sense of Competence Questionnaire (SSCQ) [25]
 -Zarit Burden Interview (ZBI − 22-item) [26]
Support to person with dementia
 -Informal support by carer (relationship to person with dementia; care tasks undertaken – nature and frequency; employment status) Adapted from [27].
 -Formal care (health and social care services; adaptations and equipment; inpatient and outpatient care; and ambulance use) Adapted from [27]
 -Reliability, sufficiency and effectiveness of care (personal; daily household; and weekly household) [28]
  1. Adapted from [5]