Person with dementia characteristics and circumstances | |
 -Demographic information (including gender, age, ethnicity, and marital status)  -Living situation (home, hospital, or care home)  -Practitioner Assessment of Network Type (PANT) [17]  -Bristol Activities of Daily Living Scale (BADLS) [21] | |
Person with dementia quality of life | |
 -Dementia Quality of Life scale (DEMQOL) – proxy version (30-item) [22] | |
Carer characteristics, health and burden | |
 -Demographic information (including gender, age, ethnicity, marital status)  -EQ-5D-5 L [23]  -General Health Questionnaire (GHQ-12) [24]  -Short Sense of Competence Questionnaire (SSCQ) [25]  -Zarit Burden Interview (ZBI − 22-item) [26] | |
Support to person with dementia | |
 -Informal support by carer (relationship to person with dementia; care tasks undertaken – nature and frequency; employment status) Adapted from [27].  -Formal care (health and social care services; adaptations and equipment; inpatient and outpatient care; and ambulance use) Adapted from [27]  -Reliability, sufficiency and effectiveness of care (personal; daily household; and weekly household) [28] |