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Table 2 Sample demographics and characteristics (n = 286)

From: End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey

  Total sample n(%) Cancer n(%) Dementia n(%) Cancer & Dementia n(%) Chronic Disease n(%) p b
Total Sample a 286 (100) 48 (17) 140 (49) 12 (4) 86 (30)  
Age       .20
 Lowest to 80 years 64 (23) 23 (49) 22 (16) 3 (25) 16 (19)  
 81 years to 91 years 126 (45) 14 (30) 75 (54) 7 (58) 30 (36)  
 92 years and over 91 (32) 10 (21) 41 (30) 2 (17) 38 (45)  
Gender
 Male 104 (41) 25 (58) 52 (40) 3 (33) 24 (32) .02
 Female 152 (59) 18 (42) 77 (60) 6 (67) 51 (68)  
Ethnicity       .20
 NZ European 232 (86) 39 (89) 115 (85) 7 (58) 71 (89)  
 Maori 6 (2) 1 (2) 1 (1) 2 (17) 2 (3)  
 Pacific Islander 1 (0) 0 (0) 1 (1) 0 (0) 0 (0)  
 Asian 10 (4) 0 (0) 9 (7) 1 (8) 0 (0)  
 Other 22 (8) 4 (9) 9 (7) 2 (9) 7 (9)  
Level of care at time of death .12
 Rest Home (low level) 28 (10) 2 (4) 11 (8) 2 (17) 13 (16)  
 Private Hospital (high level) 217 (77) 46 (96) 93 (67) (67) 70 (83)  
cSecure (dementia) 18 (6) 0 (0) 16 (12) 2 (17) 0 (0)  
dPsychogeriatric 18 (6) 0 (0) 18 (13) 0 (0) 0 (0)  
 Other 2 (1) 0 (0) 1 (1) 0 (0) 1 (1)  
Resident able to express wishes about medical decisions .00
 Yes 114 (42) 32 (68) 34 (26) 3 (25) 45 (55)  
 No 160 (58) 15 (32) 99 (74) 9 (75) 37 (45)  
End of life pathway/guideline used .81
 Yes 52 (19) 8 (17) 28 (21) 0 (0) 16 (20)  
 No 218 (81) 39 (83) 103 (79) 11 (100) 65 (80)  
Local hospice involved in the last days of life .00
 Yes 31 (11) 14 (30) 7 (5) 0 (0) 10 (12)  
 No 241 (89) 33 (70) 123 (95) 12 (100) 73 (88)  
Family members/friends involved in resident’s care during the last month of life .42
 Yes 243 (87) 43 (90) 120 (89) 10 (83) 70 (83)  
 No 36 (13) 5 (10) 15 (11) 2 (17) 14 (17)  
CPR .51
 Yes 11 (4) 3 (7) 4 (3) 1 (9) 3 (4)  
 No 249 (96) 39 (93) 123 (97) 10 (91) 77 (96)  
EPOA (Designated proxy decision maker) .00
 No 36 (13) 14 (33) 6 (4) 4 (40) 12 (15)  
 Yes 233 (87) 28 (67) 129 (96) 6 (60) 70 (85)  
Death Expectation .10
 Faster than Expected 195 (73) 42 (88) 89 (69) 7 (64) 57 (72)  
 Neither expected or unexpected 56 (21) 6 (13) 32 (25) 2 (18) 16 (20)  
 Unexpected 17 (6) 0 (0) 9 (7) 2 (18) 6 (8)  
Sentinel Events Last Month of Life (multiple response)  
 Pneumonia (yes/no) 70 (29) 7 (15) 40 (36) 1 (10) 22 (31) .11
 Febrile episode (except pneumonia) (yes/no) 28 (12) 4 (8) 15 (13) 0 (0) 9 (13) .83
 Problems eating/drinking (yes/no) 115 (48) 18 (38) 61 (55) 5 (50) 31 (44) .43
 Hip fracture (yes/no) 11 (5) 0 (0) 6 (5) 2 (20) 3 (4) .34
 Gastrointestinal Bleed (yes/no) 8 (3) 1 (2) 2 (2) 1 (10) 4 (6) .31
 Stroke (yes/no) 29 (12) 2 (4) 16 (14) 0 (0) 11 (16) .23
 Cancer (yes/no) 58 (24) 48 (100) 0 (0) 10 (100) 0 (0) .00
 Other (yes/no) 60 (25) 7 (15) 28 (25) 0 (0) 25 (35) .07
  1. aMissing values: primary diagnosis, gender, ethnicity, level of care, ability to express wishes, end of life pathway used, hospice use, family/friends involved, CPR, EPOA, death expectation. Percentage values represent actual percent not valid percent
  2. bComparisons based on diagnoses of cancer, dementia or chronic condition only. c24 hour care in a secure environment for those with dementia. d24 hour care in a secure environment for those with severe behavioural or psychological conditions