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Table 2 Sample demographics and characteristics (n = 286)

From: End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey

 

Total sample

n(%)

Cancer

n(%)

Dementia

n(%)

Cancer & Dementia

n(%)

Chronic Disease

n(%)

p b

Total Sample a

286 (100)

48 (17)

140 (49)

12 (4)

86 (30)

 

Age

     

.20

 Lowest to 80 years

64 (23)

23 (49)

22 (16)

3 (25)

16 (19)

 

 81 years to 91 years

126 (45)

14 (30)

75 (54)

7 (58)

30 (36)

 

 92 years and over

91 (32)

10 (21)

41 (30)

2 (17)

38 (45)

 

Gender

 Male

104 (41)

25 (58)

52 (40)

3 (33)

24 (32)

.02

 Female

152 (59)

18 (42)

77 (60)

6 (67)

51 (68)

 

Ethnicity

     

.20

 NZ European

232 (86)

39 (89)

115 (85)

7 (58)

71 (89)

 

 Maori

6 (2)

1 (2)

1 (1)

2 (17)

2 (3)

 

 Pacific Islander

1 (0)

0 (0)

1 (1)

0 (0)

0 (0)

 

 Asian

10 (4)

0 (0)

9 (7)

1 (8)

0 (0)

 

 Other

22 (8)

4 (9)

9 (7)

2 (9)

7 (9)

 

Level of care at time of death

.12

 Rest Home (low level)

28 (10)

2 (4)

11 (8)

2 (17)

13 (16)

 

 Private Hospital (high level)

217 (77)

46 (96)

93 (67)

(67)

70 (83)

 

cSecure (dementia)

18 (6)

0 (0)

16 (12)

2 (17)

0 (0)

 

dPsychogeriatric

18 (6)

0 (0)

18 (13)

0 (0)

0 (0)

 

 Other

2 (1)

0 (0)

1 (1)

0 (0)

1 (1)

 

Resident able to express wishes about medical decisions

.00

 Yes

114 (42)

32 (68)

34 (26)

3 (25)

45 (55)

 

 No

160 (58)

15 (32)

99 (74)

9 (75)

37 (45)

 

End of life pathway/guideline used

.81

 Yes

52 (19)

8 (17)

28 (21)

0 (0)

16 (20)

 

 No

218 (81)

39 (83)

103 (79)

11 (100)

65 (80)

 

Local hospice involved in the last days of life

.00

 Yes

31 (11)

14 (30)

7 (5)

0 (0)

10 (12)

 

 No

241 (89)

33 (70)

123 (95)

12 (100)

73 (88)

 

Family members/friends involved in resident’s care during the last month of life

.42

 Yes

243 (87)

43 (90)

120 (89)

10 (83)

70 (83)

 

 No

36 (13)

5 (10)

15 (11)

2 (17)

14 (17)

 

CPR

.51

 Yes

11 (4)

3 (7)

4 (3)

1 (9)

3 (4)

 

 No

249 (96)

39 (93)

123 (97)

10 (91)

77 (96)

 

EPOA (Designated proxy decision maker)

.00

 No

36 (13)

14 (33)

6 (4)

4 (40)

12 (15)

 

 Yes

233 (87)

28 (67)

129 (96)

6 (60)

70 (85)

 

Death Expectation

.10

 Faster than Expected

195 (73)

42 (88)

89 (69)

7 (64)

57 (72)

 

 Neither expected or unexpected

56 (21)

6 (13)

32 (25)

2 (18)

16 (20)

 

 Unexpected

17 (6)

0 (0)

9 (7)

2 (18)

6 (8)

 

Sentinel Events Last Month of Life (multiple response)

 

 Pneumonia (yes/no)

70 (29)

7 (15)

40 (36)

1 (10)

22 (31)

.11

 Febrile episode (except pneumonia) (yes/no)

28 (12)

4 (8)

15 (13)

0 (0)

9 (13)

.83

 Problems eating/drinking (yes/no)

115 (48)

18 (38)

61 (55)

5 (50)

31 (44)

.43

 Hip fracture (yes/no)

11 (5)

0 (0)

6 (5)

2 (20)

3 (4)

.34

 Gastrointestinal Bleed (yes/no)

8 (3)

1 (2)

2 (2)

1 (10)

4 (6)

.31

 Stroke (yes/no)

29 (12)

2 (4)

16 (14)

0 (0)

11 (16)

.23

 Cancer (yes/no)

58 (24)

48 (100)

0 (0)

10 (100)

0 (0)

.00

 Other (yes/no)

60 (25)

7 (15)

28 (25)

0 (0)

25 (35)

.07

  1. aMissing values: primary diagnosis, gender, ethnicity, level of care, ability to express wishes, end of life pathway used, hospice use, family/friends involved, CPR, EPOA, death expectation. Percentage values represent actual percent not valid percent
  2. bComparisons based on diagnoses of cancer, dementia or chronic condition only. c24 hour care in a secure environment for those with dementia. d24 hour care in a secure environment for those with severe behavioural or psychological conditions