Table 4 Sample of responses organized by theme and sub-theme
Topics | Subtopics | Illustrative Quotations |
|---|---|---|
LEARN HOW TO WEAR THE CAMERA | Learning | Patient 04: Well, the first time, the first time I tried to open the clasp on the cord, I didn’t turn it as I should have and I wasn’t able to open it…but from then on… Caregiver 04: We told him to look at it as if it was a ring and from then on, everything went very well (US04, FUS04, focus group 1). |
Caregiver 09: on the first day, we couldn’t connect the cable to the USB port, we tried but it didn’t fit. Then we tried the middle port and it fitted perfectly (US09, FUS09, focus group 2). | ||
Training session | Caregiver 02: During the session the trainer explained everything well and therefore everything went well (FUS02, focus group 1). | |
Support of caregivers | Patient 03: When I couldn’t do something, for whatever reason, he did it and that was it! (US03, focus group 1). | |
RELUCTANCE TO USE THE CAMERA | It can be seen | Patient 03: Yes, people look at you Patient 04: I sometimes had to cover the camera, ... but Patient 01: When you interact with other people, if people are close to you, they understand it well. But if people don’t know you, they look at you as if they are thinking “well, what is he doing?”, it’s a study...in the end, when I found myself in that situation, I took the camera off and I put it in my pocket because I thought that people were uncomfortable with all of this (US01, US03, US04, focus group 1). |
It’s watching us | Caregiver 01: It was like the reality show “Big Brother” [...] the camera watches everything, including relatives, or in the kitchen, if someone is cooking, or if there are things to wash, when you open the cupboards ... Patient 02: Yes, yes, it makes you feel a bit uneasy, everybody can see everything (FUS01, US02, focus group 1) | |
Emotional impact | Patient 01: The truth is that I wasn’t bothered. Well you’re always a little aware of the camera, but when I took it off, I felt relieved... (US01, focus group 1). | |
ACCEPTANCE OF THE CAMERA | Decisional balance | Patient 02: I believe that this camera will serve us or those who come after us. To not lose our head even more Patient 01: I think it’s positive for us, because it can correct us when we fail and help us to improve Patient 05: Although my family and I were sometimes bothered by the camera, there were moments that I didn’t remember having it on me. In fact, I’ve gone about my normal life without thinking about the camera. |
Recommendations | Patient 03: the camera is black and people look at it a lot. I think that if it were a more natural colour, people would look at it less. |