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Table 2 Overview of (sub-) categories per type of focus group

From: Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

Categories and subcategories
  People with dementia Informal carers Health and Social Care Professionals
1) Aspects related to the individuals involved 1.1 Characteristics and situation of the informal carers  
Attitude and beliefs towards formal care Being proactiveMutual help between informal carersAttitude and beliefs towards formal care and dementiaPersonal motives, need factors & trigger situations Knowledge/informationAttitude and beliefs towards formal care and dementiaEmotions of the informal carerPersonal motives & crisis as a triggerFinancial resources
1.2 Characteristics and situation of the people with dementia  
Attitude and beliefs towards formal care   ο perceiving formal care as a threat to independenceAttitude and beliefs towards dementia/dealing with the diseaseBeing involved in decision makingKnowledge, information and experiencesAccepting the diagnosis & adaptation processBeing proactive/initiative of othersPersonal motives to use formal careFinancial resources Attitude and beliefs towards formal care and dementia Attitude and beliefs towards formal care towards dementiaEmotions
1.3 Expectations of healthcare professionals and formal care  
Lack of or uncertain expectations Lack of or uncertain expectationsJoint decisions and shared responsibilitiesSufficient informationNeed-tailored support Firm diagnosis & reliable informationEmotional supportUnderstanding care needs
1.4 Experiences with the uptake of formal care  
(Dis-)Satisfaction (Dis-)SatisfactionExperiences towards the right moment of using formal care (Dis-)Satisfaction
1.5 Family structures and social environment  
1.6 Characteristics & strategies of the health and social care professionals  
Attitude towards dementia, people with dementia and towards informal carersRelationship with health and social care professionals Attitude towards dementia, people with dementia and towards informal carersCompetencies (knowledge and social competences)Trial visit Attitude towards dementia, people with dementia and towards informal carersCompetencies (knowledge and social competences)Strategies of the health and social care professionals
2) Aspects related to the (health and social care) system 2.1 Availability of services  
Lack of servicesStaff deficits and insufficient financing Lack of servicesExternal barriers in utilisation (limited resources, insufficient financing, non-transparent structures) Lack of services (also regionally)Staff deficits and insufficient financingTime constraints
2.2 Features of the services  
Need-tailored servicesKey contact person Need-tailored servicesKey contact personCost factor Need-tailored services
2.3 Complexity of the system  
Complex regulationsDisjointed nature of the system Complex regulationsDisjointed nature of the system Complex regulationsDisjointed nature of the systemVariability of the system/unclear roles
2.4 Continuity
Key contact point/key contact person Key contact point/key contact person Key contact point/key contact person
2.5 Networking & collaboration
2.6 Role of the general practitioner (GP)
3) Over-arching aspects 3.1 Information
3.2 Public awareness
  3.3 Early contact