Categories and subcategories | |||
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People with dementia | Informal carers | Health and Social Care Professionals | |
1) Aspects related to the individuals involved | 1.1 Characteristics and situation of the informal carers | ||
• Attitude and beliefs towards formal care | • Being proactive • Mutual help between informal carers • Attitude and beliefs towards formal care and dementia • Personal motives, need factors & trigger situations | • Knowledge/information • Attitude and beliefs towards formal care and dementia • Emotions of the informal carer • Personal motives & crisis as a trigger • Financial resources | |
1.2 Characteristics and situation of the people with dementia | |||
• Attitude and beliefs towards formal care ο perceiving formal care as a threat to independence • Attitude and beliefs towards dementia/dealing with the disease • Being involved in decision making • Knowledge, information and experiences • Accepting the diagnosis & adaptation process • Being proactive/initiative of others • Personal motives to use formal care • Financial resources | • Attitude and beliefs towards formal care and dementia | • Attitude and beliefs towards formal care towards dementia • Emotions | |
1.3 Expectations of healthcare professionals and formal care | |||
• Lack of or uncertain expectations | • Lack of or uncertain expectations • Joint decisions and shared responsibilities • Sufficient information • Need-tailored support | • Firm diagnosis & reliable information • Emotional support • Understanding care needs | |
1.4 Experiences with the uptake of formal care | |||
• (Dis-)Satisfaction | • (Dis-)Satisfaction • Experiences towards the right moment of using formal care | • (Dis-)Satisfaction | |
1.5 Family structures and social environment | |||
1.6 Characteristics & strategies of the health and social care professionals | |||
• Attitude towards dementia, people with dementia and towards informal carers • Relationship with health and social care professionals | • Attitude towards dementia, people with dementia and towards informal carers • Competencies (knowledge and social competences) • Trial visit | • Attitude towards dementia, people with dementia and towards informal carers • Competencies (knowledge and social competences) • Strategies of the health and social care professionals | |
2) Aspects related to the (health and social care) system | 2.1 Availability of services | ||
• Lack of services • Staff deficits and insufficient financing | • Lack of services • External barriers in utilisation (limited resources, insufficient financing, non-transparent structures) | • Lack of services (also regionally) • Staff deficits and insufficient financing • Time constraints | |
2.2 Features of the services | |||
• Need-tailored services • Key contact person | • Need-tailored services • Key contact person • Cost factor | • Need-tailored services | |
2.3 Complexity of the system | |||
• Complex regulations • Disjointed nature of the system | • Complex regulations • Disjointed nature of the system | • Complex regulations • Disjointed nature of the system • Variability of the system/unclear roles | |
2.4 Continuity | |||
• Key contact point/key contact person | • Key contact point/key contact person | • Key contact point/key contact person | |
2.5 Networking & collaboration | |||
2.6 Role of the general practitioner (GP) | |||
3) Over-arching aspects | 3.1 Information | ||
3.2 Public awareness | |||
3.3 Early contact |