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Table 2 Overview of (sub-) categories per type of focus group

From: Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

Categories and subcategories

 

People with dementia

Informal carers

Health and Social Care Professionals

1) Aspects related to the individuals involved

1.1 Characteristics and situation of the informal carers

 

Attitude and beliefs towards formal care

Being proactive

Mutual help between informal carers

Attitude and beliefs towards formal care and dementia

Personal motives, need factors & trigger situations

Knowledge/information

Attitude and beliefs towards formal care and dementia

Emotions of the informal carer

Personal motives & crisis as a trigger

Financial resources

1.2 Characteristics and situation of the people with dementia

 

Attitude and beliefs towards formal care

  ο perceiving formal care as a threat to independence

Attitude and beliefs towards dementia/dealing with the disease

Being involved in decision making

Knowledge, information and experiences

Accepting the diagnosis & adaptation process

Being proactive/initiative of others

Personal motives to use formal care

Financial resources

Attitude and beliefs towards formal care and dementia

Attitude and beliefs towards formal care towards dementia

Emotions

1.3 Expectations of healthcare professionals and formal care

 

Lack of or uncertain expectations

Lack of or uncertain expectations

Joint decisions and shared responsibilities

Sufficient information

Need-tailored support

Firm diagnosis & reliable information

Emotional support

Understanding care needs

1.4 Experiences with the uptake of formal care

 

(Dis-)Satisfaction

(Dis-)Satisfaction

Experiences towards the right moment of using formal care

(Dis-)Satisfaction

1.5 Family structures and social environment

 

1.6 Characteristics & strategies of the health and social care professionals

 

Attitude towards dementia, people with dementia and towards informal carers

Relationship with health and social care professionals

Attitude towards dementia, people with dementia and towards informal carers

Competencies (knowledge and social competences)

Trial visit

Attitude towards dementia, people with dementia and towards informal carers

Competencies (knowledge and social competences)

Strategies of the health and social care professionals

2) Aspects related to the (health and social care) system

2.1 Availability of services

 

Lack of services

Staff deficits and insufficient financing

Lack of services

External barriers in utilisation (limited resources, insufficient financing, non-transparent structures)

Lack of services (also regionally)

Staff deficits and insufficient financing

Time constraints

2.2 Features of the services

 

Need-tailored services

Key contact person

Need-tailored services

Key contact person

Cost factor

Need-tailored services

2.3 Complexity of the system

 

Complex regulations

Disjointed nature of the system

Complex regulations

Disjointed nature of the system

Complex regulations

Disjointed nature of the system

Variability of the system/unclear roles

2.4 Continuity

Key contact point/key contact person

Key contact point/key contact person

Key contact point/key contact person

2.5 Networking & collaboration

2.6 Role of the general practitioner (GP)

3) Over-arching aspects

3.1 Information

3.2 Public awareness

 

3.3 Early contact