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Table 1 Overview of focus groups and characteristics of participants per country. Values are numbers unless stated otherwise

From: Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

People with dementia

Total

DE

IE

IT

NL

NO

PTc

SE

UK

 Number of focus groups

14

3

2

2

2

3

1

 

1

 Number of participants

51

10

7

6

8

9

4

 

7

 Number of female participants

28

7

6

4

2

4

3

 

2

 Mean age, years (range)

76 (54–96)

68 (55–84)

68.5 (54–88)

80 (75–87)

76 (64–85)

75 (61–86)

90 (82–96)

 

75 (66–85)

 Mean time since diagnosis, years (range)

2.5 (0–10)

2.5 (0–7)

2 (1–5)

≤ 1

5.5 (0–10)

3.5 (1–6)

3.5 (2–5)

 

3 (1–6)

 Living alone/with family member

16/31

4/6

3/4

2/4

4/4

2/7

–

 

1/6

Informal carers

Total

DE

IEd

IT

NL

NO

PT

SE

UK

 Number of focus groups

21

5

3

2

2

2

2

2

3

 Number of participants

96

21

16

8

10

7

11

8

15

 Number of female participants

77

18

12

8

9

6

8

5

10

 Mean age, years (range)

63 (37–91)

65 (47–83)

64 (50–89)

58 (49–70)

77 (68–86)

50 (37–66)

59 (43–78)

68 (56–91)

66 (46–84)

 Mean caregiving time, years (range)

5 (1–12)

4.5 (1–10)

7 (2–12)

6 (2–10)

5.5 (1–11)

4 (1–9)

4 (0–8)

3 (2–7)

4 (1–10)

Relationship to person with dementia

 Spouse

47

10

9

–

10

2

4

2

10

 Child

42

8

7

8

–

3

7

5

4

 Other

7

3

–

–

–

2

–

1

1

Healthcare professionals

Total

DE

IE

IT

NL

NO

PT

SE

UK

 Number of focus groups

20

4

3

2

2

2

2

2

3

 Number of participants

114

16

18

9

12

13

12

12

22

 Number of female participants

98

12

17

6

11

13

11

12

16

 Mean age, years (range)

45 (23–62)

49 (42–60)

42 (28–56)

45 (26–52)

42 (27–63)

46 (25–61)

41 (27–56)

52 (44–62)

42 (23–57)

 Mean working experience, years (range)

16 (0.25–42)

17 (3–30)

12 (2–25)

18 (1–26)

17 (3–35)

13 (0.25–30)

12 (2–30)

23 (7–42)

12 (0.25–30)

Professional backgrounds

 Nursesa

60

9

10

3

5

10

5

11

10

 Social workers

6

3

1

1

–

–

1

–

–

 General Practitioners

5

1

–

–

–

–

3

–

–

 Other specialist physicians

6

1

2

–

 

–

–

–

4

 Psychologists

10

–

–

1

6

–

1

–

2

 Othersb

27

2

5

4

1

3

2

1

6

  1. a Registered, assistant or community mental health nurses
  2. b Counsellors, educators, case managers
  3. c People with dementia living in institutional long-term care
  4. d n = 95 due to missing data
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BMC Geriatrics

ISSN: 1471-2318

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