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Table 1 Overview of focus groups and characteristics of participants per country. Values are numbers unless stated otherwise

From: Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

People with dementia Total DE IE IT NL NO PTc SE UK
 Number of focus groups 14 3 2 2 2 3 1   1
 Number of participants 51 10 7 6 8 9 4   7
 Number of female participants 28 7 6 4 2 4 3   2
 Mean age, years (range) 76 (54–96) 68 (55–84) 68.5 (54–88) 80 (75–87) 76 (64–85) 75 (61–86) 90 (82–96)   75 (66–85)
 Mean time since diagnosis, years (range) 2.5 (0–10) 2.5 (0–7) 2 (1–5) ≤ 1 5.5 (0–10) 3.5 (1–6) 3.5 (2–5)   3 (1–6)
 Living alone/with family member 16/31 4/6 3/4 2/4 4/4 2/7   1/6
Informal carers Total DE IEd IT NL NO PT SE UK
 Number of focus groups 21 5 3 2 2 2 2 2 3
 Number of participants 96 21 16 8 10 7 11 8 15
 Number of female participants 77 18 12 8 9 6 8 5 10
 Mean age, years (range) 63 (37–91) 65 (47–83) 64 (50–89) 58 (49–70) 77 (68–86) 50 (37–66) 59 (43–78) 68 (56–91) 66 (46–84)
 Mean caregiving time, years (range) 5 (1–12) 4.5 (1–10) 7 (2–12) 6 (2–10) 5.5 (1–11) 4 (1–9) 4 (0–8) 3 (2–7) 4 (1–10)
Relationship to person with dementia
 Spouse 47 10 9 10 2 4 2 10
 Child 42 8 7 8 3 7 5 4
 Other 7 3 2 1 1
Healthcare professionals Total DE IE IT NL NO PT SE UK
 Number of focus groups 20 4 3 2 2 2 2 2 3
 Number of participants 114 16 18 9 12 13 12 12 22
 Number of female participants 98 12 17 6 11 13 11 12 16
 Mean age, years (range) 45 (23–62) 49 (42–60) 42 (28–56) 45 (26–52) 42 (27–63) 46 (25–61) 41 (27–56) 52 (44–62) 42 (23–57)
 Mean working experience, years (range) 16 (0.25–42) 17 (3–30) 12 (2–25) 18 (1–26) 17 (3–35) 13 (0.25–30) 12 (2–30) 23 (7–42) 12 (0.25–30)
Professional backgrounds
 Nursesa 60 9 10 3 5 10 5 11 10
 Social workers 6 3 1 1 1
 General Practitioners 5 1 3
 Other specialist physicians 6 1 2   4
 Psychologists 10 1 6 1 2
 Othersb 27 2 5 4 1 3 2 1 6
  1. a Registered, assistant or community mental health nurses
  2. b Counsellors, educators, case managers
  3. c People with dementia living in institutional long-term care
  4. d n = 95 due to missing data