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Table 5 Barriers to Receiving Information

From: In the Information Age, do dementia caregivers get the information they need? Semi-structured interviews to determine informal caregivers’ education needs, barriers, and preferences

Barriers to CG Seeking Information [n = 59]* n (%)
 CG did not initially acknowledge symptoms as a disease (esp. behavioral) 24 (40.7 %)
 CG did not know the diagnosis or what terms to search for 11 (18.6 %)
 CG did not know there would be information available (esp. behavioral) 10 (16.9 %)
 CG too busy or overwhelmed to seek information 6 (10.2 %)
 CG in denial or avoiding stigma of disease 4 (6.8 %)
 CG didn’t think of self as “caregiver” 3 (5.1 %)
 CG already familiar professionally 1 (1.7 %)
Barriers to Information Sources, [n = 38] n (%)
 Insufficient information provided by PCP 17 (44.7 %)
  PCP too busy to provide information 5 (13.2 %)
 Internet search frustrating 16 (42.1 %)
  1. CG caregiver, PCP primary care provider
  2. *some CG reported more than one barrier