Table 3 Identified reasons for rejection by carer advocate panel

Role of helper

The helper should not unilaterally discuss diagnosis without clear guidance and understanding of how to engage in the discussion.

I firmly believe that a medical professional needs to inform the person of the diagnosis, because some people may not accept it coming from their helper.

Disease progression

This would be OK if the person is at a stage of understanding these matters.

This is fine at early stages, but at later stages it may just add whole lot of anxiety.