TY - JOUR AU - Engedal, K. PY - 2005 DA - 2005// TI - Assessment of dementia and use of anti-dementia drugs in nursing homes JO - Tidsskr Nor Laegeforen VL - 125 ID - Engedal2005 ER - TY - STD TI - Statistics Norway. [Deaths, by place of death (1986–2009)]. https://www.ssb.no/statistikkbanken/selectout/ShowTable.asp?FileformatId=2&Queryfile=2015841364915210525Dodssted&PLanguage=1&MainTable=Dodssted. 2011. Ref Type: Electronic Citation. UR - https://www.ssb.no/statistikkbanken/selectout/ShowTable.asp?FileformatId=2&Queryfile=2015841364915210525Dodssted&PLanguage=1&MainTable=Dodssted ID - ref2 ER - TY - JOUR AU - Houttekier, D. AU - Cohen, J. AU - Surkyn, J. AU - Deliens, L. PY - 2011 DA - 2011// TI - Study of recent and future trends in place of death in Belgium using death certificate data: a shift from hospitals to care homes JO - BMC Public Health VL - 11 UR - https://doi.org/10.1186/1471-2458-11-228 DO - 10.1186/1471-2458-11-228 ID - Houttekier2011 ER - TY - STD TI - U.S.Department of Health and Human Services. Health, United States, 2010. Place of death, over time: United States, 1989, 1997, 2007. http://www.cdc.gov/nchs/data/hus/2010/fig33.pdf. 2015. Ref Type: Electronic Citation. UR - http://www.cdc.gov/nchs/data/hus/2010/fig33.pdf ID - ref4 ER - TY - JOUR AU - Stewart, F. AU - Goddard, C. AU - Schiff, R. AU - Hall, S. PY - 2011 DA - 2011// TI - Advanced care planning in care homes for older people: a qualitative study of the views of care staff and families JO - Age Ageing VL - 40 UR - https://doi.org/10.1093/ageing/afr006 DO - 10.1093/ageing/afr006 ID - Stewart2011 ER - TY - JOUR AU - Mullick, A. AU - Martin, J. AU - Sallnow, L. PY - 2013 DA - 2013// TI - An introduction to advance care planning in practice JO - BMJ VL - 347 UR - https://doi.org/10.1136/bmj.f6064 DO - 10.1136/bmj.f6064 ID - Mullick2013 ER - TY - JOUR AU - Molloy, D. W. AU - Guyatt, G. H. AU - Russo, R. AU - Goeree, R. AU - O'Brien, B. J. AU - Bedard, M. PY - 2000 DA - 2000// TI - Systematic implementation of an advance directive program in nursing homes: a randomized controlled trial JO - JAMA: Journal of the American Medical Association VL - 283 UR - https://doi.org/10.1001/jama.283.11.1437 DO - 10.1001/jama.283.11.1437 ID - Molloy2000 ER - TY - JOUR AU - Robinson, L. AU - Dickinson, C. AU - Rousseau, N. AU - Beyer, F. AU - Clark, A. AU - Hughes, J. PY - 2012 DA - 2012// TI - A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia JO - Age Ageing VL - 41 UR - https://doi.org/10.1093/ageing/afr148 DO - 10.1093/ageing/afr148 ID - Robinson2012 ER - TY - JOUR AU - Houben, C. H. AU - Spruit, M. A. AU - Groenen, M. T. AU - Wouters, E. F. AU - Janssen, D. J. PY - 2014 DA - 2014// TI - Efficacy of advance care planning: a systematic review and meta-analysis JO - J Am Med Dir Assoc VL - 15 UR - https://doi.org/10.1016/j.jamda.2014.01.008 DO - 10.1016/j.jamda.2014.01.008 ID - Houben2014 ER - TY - JOUR AU - Brinkman-Stoppelenburg, A. AU - Rietjens, J. A. AU - Heide, A. PY - 2014 DA - 2014// TI - The effects of advance care planning on end-of-life care: a systematic review JO - Palliat Med VL - 28 UR - https://doi.org/10.1177/0269216314526272 DO - 10.1177/0269216314526272 ID - Brinkman-Stoppelenburg2014 ER - TY - JOUR AU - Sharp, T. AU - Moran, E. AU - Kuhn, I. AU - Barclay, S. PY - 2013 DA - 2013// TI - Do the elderly have a voice? Advance care planning discussions with frail and older individuals: a systematic literature review and narrative synthesis JO - Br J Gen Pract VL - 63 UR - https://doi.org/10.3399/bjgp13X673667 DO - 10.3399/bjgp13X673667 ID - Sharp2013 ER - TY - JOUR AU - Steen, J. T. AU - Soest-Poortvliet, M. C. AU - Hallie-Heierman, M. AU - Onwuteaka-Philipsen, B. D. AU - Deliens, L. AU - Boer, M. E. PY - 2014 DA - 2014// TI - Factors associated with initiation of advance care planning in dementia: a systematic review JO - J Alzheimers Dis VL - 40 ID - Steen2014 ER - TY - JOUR AU - Gjerberg, E. AU - Forde, R. AU - Bjørndal, A. PY - 2011 DA - 2011// TI - Staff and family relationship in Norwegian nursing homes JO - Nurs Ethics VL - 18 UR - https://doi.org/10.1177/0969733010386160 DO - 10.1177/0969733010386160 ID - Gjerberg2011 ER - TY - JOUR AU - Husebo, B. S. AU - Husebo, S. PY - 2005 DA - 2005// TI - Nursing homes as arenas of terminal care--how do we do in practice?]. [Norwegian] JO - Tidsskrift for Den Norske Laegeforening VL - 125 ID - Husebo2005 ER - TY - STD TI - Gjerberg E, Lillemoen L, Forde R, Pedersen R. Is coercion always a threat? Nursing home patients' and relatives perspectives. Nurs Ethics. in press ID - ref15 ER - TY - JOUR AU - Graverholt, B. AU - Riise, T. AU - Jamtvedt, G. AU - Ranhoff, A. H. AU - Kruger, K. AU - Nortvedt, M. W. PY - 2011 DA - 2011// TI - Acute hospital admissions among nursing home residents: a population-based observational study JO - BMC Health Serv Res VL - 11 UR - https://doi.org/10.1186/1472-6963-11-126 DO - 10.1186/1472-6963-11-126 ID - Graverholt2011 ER - TY - STD TI - Nys H, Raemaekers P. Competence assessment and advance directives for people with dementia: Ethical and legal aspects. http://www.kbs-frb.be/publication.aspx?id=307047&langtype=1033&src=true, 1–73. 2014. King Baudouin Foundation. Ref Type: Electronic Citation. UR - http://www.kbs-frb.be/publication.aspx?id=307047&langtype=1033&src=true ID - ref17 ER - TY - BOOK PY - 1999 DA - 1999// TI - The Patients' and Users' Rights Act ID - ref18 ER - TY - JOUR AU - Murtagh, F. E. AU - Thorns, A. PY - 2006 DA - 2006// TI - Evaluation and ethical review of a tool to explore patient preferences for information and involvement in decision making JO - J Med Ethics VL - 32 UR - https://doi.org/10.1136/jme.2005.012484 DO - 10.1136/jme.2005.012484 ID - Murtagh2006 ER - TY - JOUR AU - Parker, S. M. AU - Clayton, J. M. AU - Hancock, K. AU - Walder, S. AU - Butow, P. N. AU - Carrick, S. PY - 2007 DA - 2007// TI - A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information JO - J Pain Symptom Manage VL - 34 UR - https://doi.org/10.1016/j.jpainsymman.2006.09.035 DO - 10.1016/j.jpainsymman.2006.09.035 ID - Parker2007 ER - TY - JOUR AU - Selbaek, G. AU - Kirkevold, O. AU - Engedal, K. PY - 2007 DA - 2007// TI - The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes JO - Int J Geriatr Psychiatry VL - 22 UR - https://doi.org/10.1002/gps.1749 DO - 10.1002/gps.1749 ID - Selbaek2007 ER - TY - JOUR AU - Petriwskyj, A. AU - Gibson, A. AU - Parker, D. AU - Banks, S. AU - Andrews, S. AU - Robinson, A. PY - 2014 DA - 2014// TI - A qualitative metasynthesis: family involvement in decision making for people with dementia in residential aged care JO - Int J Evid Based Healthc VL - 12 UR - https://doi.org/10.1097/XEB.0000000000000002 DO - 10.1097/XEB.0000000000000002 ID - Petriwskyj2014 ER - TY - JOUR AU - Legault, A. AU - Ducharme, F. PY - 2009 DA - 2009// TI - Advocating for a parent with dementia in a long-term care facility: the process experienced by daughters JO - J Fam Nurs VL - 15 UR - https://doi.org/10.1177/1074840709332929 DO - 10.1177/1074840709332929 ID - Legault2009 ER - TY - JOUR AU - Caron, C. D. AU - Griffith, J. A. M. PY - 2005 DA - 2005// TI - Decision making at the end of life in demenetia:how family caregivers perceive their interactions with health care providers in long term-care JO - J Appl Gerontol VL - 24 UR - https://doi.org/10.1177/0733464805275766 DO - 10.1177/0733464805275766 ID - Caron2005 ER - TY - JOUR AU - Black, B. S. AU - Fogarty, L. A. AU - Phillips, H. AU - Finucane, T. AU - Loreck, D. J. AU - Baker, A. PY - 2009 DA - 2009// TI - Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care JO - J Aging Health VL - 21 UR - https://doi.org/10.1177/0898264309333316 DO - 10.1177/0898264309333316 ID - Black2009 ER - TY - JOUR AU - Reamy, A. M. AU - Kim, K. AU - Zarit, S. H. AU - Whitlatch, C. J. PY - 2011 DA - 2011// TI - Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers JO - Gerontologist VL - 51 UR - https://doi.org/10.1093/geront/gnr010 DO - 10.1093/geront/gnr010 ID - Reamy2011 ER - TY - JOUR AU - Shalowitz, D. I. AU - Garrett-Mayer, E. AU - Wendler, D. PY - 2006 DA - 2006// TI - The accuracy of surrogate decision makers: a systematic review JO - Arch Intern Med VL - 166 UR - https://doi.org/10.1001/archinte.166.5.493 DO - 10.1001/archinte.166.5.493 ID - Shalowitz2006 ER - TY - JOUR AU - Fagerlin, A. AU - Ditto, P. H. AU - Danks, J. H. AU - Houts, R. M. AU - Smucker, W. D. PY - 2001 DA - 2001// TI - Projection in surrogate decisions about life-sustaining medical treatments JO - Health Psychol VL - 20 UR - https://doi.org/10.1037/0278-6133.20.3.166 DO - 10.1037/0278-6133.20.3.166 ID - Fagerlin2001 ER - TY - JOUR AU - Gjerberg, E. AU - Helene, H. M. AU - Forde, R. AU - Pedersen, R. PY - 2013 DA - 2013// TI - How to avoid and prevent coercion in nursing homes: A qualitative study JO - Nurs Ethics VL - 20 UR - https://doi.org/10.1177/0969733012473012 DO - 10.1177/0969733012473012 ID - Gjerberg2013 ER - TY - BOOK AU - Ra, K. AU - Casey, M. A. PY - 2009 DA - 2009// TI - Focus groups. a practical guide for applied research PB - Sage CY - Los Angeles ID - Ra2009 ER - TY - JOUR AU - Graneheim, U. H. AU - Lundman, B. PY - 2004 DA - 2004// TI - Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness JO - Nurse Educ Today VL - 24 UR - https://doi.org/10.1016/j.nedt.2003.10.001 DO - 10.1016/j.nedt.2003.10.001 ID - Graneheim2004 ER - TY - BOOK AU - Malterud, K. PY - 2012 DA - 2012// TI - Fokusgrupper som forskningsmetode for medisin og helsefag [Focus groups as a research method in medicine and health sciences] PB - Universitetsforlaget CY - Oslo ID - Malterud2012 ER - TY - JOUR AU - Morse, J. M. PY - 2008 DA - 2008// TI - Confusing categories and themes JO - Qual Health Res VL - 18 UR - https://doi.org/10.1177/1049732308314930 DO - 10.1177/1049732308314930 ID - Morse2008 ER - TY - BOOK AU - Miles, M. AU - Huberman, A. M. PY - 1994 DA - 1994// TI - Qualitative Data Analysis. An expanded Sourcebook PB - SAGE publications CY - London ID - Miles1994 ER - TY - BOOK AU - Kvale, S. AU - Brinkmann, S. PY - 2009 DA - 2009// TI - Interviews. Learning the Craft of Qualitative Research Interviewing PB - Sage CY - Los Angeles, London, New Dehli, Singapore ID - Kvale2009 ER - TY - STD TI - Declaration of Helsinki. http://www.wma.net/en/30publications/10policies/b3/. 2015. Ref Type: Electronic Citation. UR - http://www.wma.net/en/30publications/10policies/b3/ ID - ref36 ER - TY - BOOK AU - Beauchamp, T. L. AU - Childress, J. F. PY - 2001 DA - 2001// TI - Principles of biomedical ethics PB - Oxford University Press CY - Oxford ID - Beauchamp2001 ER - TY - JOUR AU - Hall, S. AU - Longhurst, S. AU - Higginson, I. J. PY - 2009 DA - 2009// TI - Challenges to conducting research with older people living in nursing homes JO - BMC Geriatr VL - 9 UR - https://doi.org/10.1186/1471-2318-9-38 DO - 10.1186/1471-2318-9-38 ID - Hall2009 ER - TY - JOUR AU - Pleschberger, S. AU - Seymour, J. E. AU - Payne, S. AU - Deschepper, R. AU - Onwuteaka-Philipsen, B. D. AU - Rurup, M. L. PY - 2011 DA - 2011// TI - Interviews on end-of-life care with older people: reflections on six european studies JO - Qual Health Res VL - 21 UR - https://doi.org/10.1177/1049732311415286 DO - 10.1177/1049732311415286 ID - Pleschberger2011 ER - TY - JOUR AU - Wiener, C. L. AU - Kayser-Jones, J. S. PY - 1990 DA - 1990// TI - The uneasy fate of nursing home residents:an organizational-interaction perspective JO - Sociol Health Illn VL - 12 UR - https://doi.org/10.1111/1467-9566.ep10844893 DO - 10.1111/1467-9566.ep10844893 ID - Wiener1990 ER - TY - STD TI - American Heart Association. Doctors reluctant to discuss end-of-life care with heart failure patients. http://www,sciencedaily.com/releases/2014/06/140604115107.htm, 1–2. 2014. Science Daily. Ref Type: Electronic Citation ID - ref41 ER - TY - JOUR AU - Silveira, M. J. AU - Kim, S. Y. AU - Langa, K. M. PY - 2010 DA - 2010// TI - Advance directives and outcomes of surrogate decision making before death JO - N Engl J Med VL - 362 UR - https://doi.org/10.1056/NEJMsa0907901 DO - 10.1056/NEJMsa0907901 ID - Silveira2010 ER - TY - JOUR AU - Mack, J. W. AU - Weeks, J. C. AU - Wright, A. A. AU - Block, S. D. AU - Prigerson, H. G. PY - 2010 DA - 2010// TI - End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences JO - J Clin Oncol VL - 28 UR - https://doi.org/10.1200/JCO.2009.25.4672 DO - 10.1200/JCO.2009.25.4672 ID - Mack2010 ER - TY - JOUR AU - Rhee, J. J. AU - Zwar, N. A. AU - Kemp, L. A. PY - 2013 DA - 2013// TI - Advance care planning and interpersonal relationships: a two-way street JO - Fam Pract VL - 30 UR - https://doi.org/10.1093/fampra/cms063 DO - 10.1093/fampra/cms063 ID - Rhee2013 ER - TY - BOOK AU - Grimen, H. AU - Skirbekk, H. PY - 2012 DA - 2012// TI - Tillit i Norge PB - Res Publica CY - Oslo ID - Grimen2012 ER - TY - BOOK AU - Delmar, C. PY - 1999 DA - 1999// TI - Tillid og Magt [Trust and Power] PB - Munksgaard CY - København ID - Delmar1999 ER - TY - JOUR AU - Ventres, W. PY - 2014 DA - 2014// TI - Educating our patients about life and the end of life: toward a pedagogy of dying JO - J Am Board Fam Med VL - 27 UR - https://doi.org/10.3122/jabfm.2014.05.130301 DO - 10.3122/jabfm.2014.05.130301 ID - Ventres2014 ER - TY - JOUR AU - Roeland, E. AU - Cain, J. AU - Onderdonk, C. AU - Kerr, K. AU - Mitchell, W. AU - Thornberry, K. PY - 2014 DA - 2014// TI - When Open-Ended Questions Don't Work:The Role of Palliative Paternalism in Difficult Medical Decisions JO - J Palliat Care VL - 17 ID - Roeland2014 ER - TY - STD TI - Norwegian Nurses Organization. The ethical guidelines for nurses. https://www.nsf.no/ikbViewer/Content/2182990/seefile. 2014. Ref Type: Electronic Citation. UR - https://www.nsf.no/ikbViewer/Content/2182990/seefile ID - ref49 ER - TY - STD TI - The Norwegian Medical Association. Code of Ethics for Doctors. http://legeforeningen.no/Om-Legeforeningen/Organisasjonen/Rad-og-utvalg/Organisasjonspolitiske-utvalg/etikk/etiske-regler-for-leger/. 2014. Ref Type: Electronic Citation UR - http://legeforeningen.no/Om-Legeforeningen/Organisasjonen/Rad-og-utvalg/Organisasjonspolitiske-utvalg/etikk/etiske-regler-for-leger/ ID - ref50 ER - TY - STD TI - Friis P, Forde R. Forhåndssamtaler med geriatriske pasienter. Tidsskr Nor Laegeforen in press. ID - ref51 ER - TY - JOUR AU - Dreyer, A. AU - Forde, R. AU - Nortvedt, P. PY - 2010 DA - 2010// TI - Life-prolonging treatment in nursing homes: how do physicians and nurses describe and justify their own practice? JO - J Med Ethics VL - 36 UR - https://doi.org/10.1136/jme.2010.036244 DO - 10.1136/jme.2010.036244 ID - Dreyer2010 ER - TY - JOUR AU - Ko, D. N. AU - Perez-Cruz, P. AU - Blinderman, C. D. PY - 2011 DA - 2011// TI - Ethical issues in palliative care JO - Prim Care VL - 38 UR - https://doi.org/10.1016/j.pop.2011.03.003 DO - 10.1016/j.pop.2011.03.003 ID - Ko2011 ER - TY - JOUR AU - Kon, A. A. PY - 2010 DA - 2010// TI - The shared decision-making continuum JO - JAMA VL - 304 UR - https://doi.org/10.1001/jama.2010.1208 DO - 10.1001/jama.2010.1208 ID - Kon2010 ER -