Table 4 Scores on Statements about Components of Case Management for People with Dementia

A good dementia case manager must be sensitive to the differences in perception between patients and their informal carers.

28

6.64

0.49

7

Care coordination is one of the dementia case manager's key duties.

28

6.61

0.69

7

Good case management requires a systematic listing - and discussion with the patient and their system - of the specific needs for care and support that can be provided.

28

6.54

0.51

7

A dementia case manager can only provide proper support and counselling if there is room for addressing the emotions of both the patient and their system.

28

6.54

0.51

7

Informing patients and their systems about the disease and the care and support options that are available is one of the dementia case manager's key duties.

28

6.54

0.84

7

A dementia case manager must give the patient and their system the confidence that they can jointly work on finding solutions to the problems caused by dementia.

28

6.50

0.58

7

Offering emotional support and counselling to patients and their systems is one of the dementia case manager's key duties.

28

6.43

0.74

7

Coaching the system on how to deal with behavioural changes in the patient is one of the dementia case manager's key duties.

27

6.41

0.64

7

The provision of information will have no effect if the information is not fine-tuned to the patient and their system.

27

6.41

0.80

7

A good dementia case manager will help patients and their systems to make difficult decisions.

28

6.29

0.66

6

A dementia case manager cannot function without establishing a sense of 'being there' for all persons concerned or without showing dedication and commitment.

28

6.29

1.049

7

A good dementia case manager actively provides information to the patient and their system.

27

6.22

0.85

6

A good dementia case manager will prepare patients and their systems for the effects and implications of the disease.

26

6.12

0.77

6

A dementia case manager should protect the interests of the patient and their system.

28

6.04

0.84

6

A dementia case manager should systematically consult with other care providers involved with the patient.

28

6.00

0.94

6

A good dementia case manager will evaluate and monitor the quality of the care provided by third parties, and will intervene whenever necessary.

26

5.85

1.41

7

A good dementia case manager will facilitate a safe environment for patients living at home, e.g. by applying for technical aids or home adjustments or by facilitating interventions in cases of danger.

27

5.78

1.12

6

A good dementia case manager will reinforce the patient's social system and promote the patient's involvement in community life.

28

5.75

0.93

6

Offering help with filling in forms (e.g. applications for home care or household help) is one of the dementia case manager's key duties.

27

5.70

1.27

6

Compassionate interference in cases where patients refuse the care they need is one of the dementia case manager's key duties.

27

5.70

1.27

6

A good dementia case manager is active in case finding, e.g. by offering consultations to fellow care providers and/or through public information.

28

5.68

1.09

6

Statements with consensus, rated as non-essential

N

M1

SD

M2

A good dementia case manager schedules separate meetings with the patient's system.

28

5.43

1.07

6

A case manager must always share her information with the patient in several meetings.

27

5.41

1.01

6

A good dementia case manager will inform the patient and their system of the diagnosis, the current status, and future prospects.

28

5.39

1.40

6

A good dementia case manager will organise a group discussion with the patient's system and the caregivers involved in order to coordinate the care.

28

5.32

1.16

6

A dementia case manager should discuss all information originating from other care providers with the patient and their system.

27

5.19

1.30

6

Participating in educating the public about dementia, e.g. by participating in informal meetings in 'Alzheimer Cafes', dementia information centres or dementia shops, is one of the case manager's key duties.

28

5.18

1.31

6

Organising consultation, coaching or training sessions with other professionals, e.g. about behavioural changes, is one of the dementia case manager's key duties.

28

5.04

1.40

6

A dementia case manager may be expected to counsel support groups for informal carers of people with dementia.

28

5.00

1.41

4

A dementia case manager can only provide information effectively by offering the information to the patient and their system both orally and in writing.

28

4.71

1.49

4

A dementia case manager should be able to lead discussion groups organised for people with dementia.

28

4.71

1.49

6

A good dementia case manager will invite the patient and their system to visit assisted living facilities.

28

4.68

1.34

5

Giving training or educational courses to informal carers is one of the case manager's key duties.

27

4.30

1.44

4

Statements without consensus

N

M1

SD

M2

A good dementia case manager also offers assistance to informal carers after the patient is admitted or has died.

28

5.39

1.58

6

29

5.34

1.70

6

A dementia case manager should be able to handle elements of a patient's treatment in the context of a multi-disciplinary treatment plan.

28

5.25

1.78

6

28

4.89

1.89

6

Case manager and patients must communicate on a level playing field when sharing information, making choices about the care provided, etc.

27

5.00

1.64

6

27

4.48

1.67

4

A dementia case manager should organise transport for patients and their systems to training centres, day activity centres, appointments with professional carers, etc..

28

4.39

1.52

5/6

24

4.04

1.73

2/5

A case manager is not a specialist and can at most support or counsel, but not treat, a patient.

28

4.07

1.68

4

28

3.64

1.52

3

A dementia case manager can give treatment independently.

28

3.79

1.89

6

29

3.45

1.59

2

A dementia case manager should be willing to provide occasional practical help, e.g. by performing a household chore or running an errand.

26

3.62

1.63

2

29

3.07

1.51

2